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A Multi-Informant Approach to Exploring Connections, Disruptions, and the Multidimensional Elements of Transition to Adulthood for People with Intellectual Disabilities Cover

A Multi-Informant Approach to Exploring Connections, Disruptions, and the Multidimensional Elements of Transition to Adulthood for People with Intellectual Disabilities

Scandinavian Journal of Disability Research
Volume 27 (2025): Issue 1
By: ,   and    
Open Access
|Jun 2025
Figures & tables

Figures & Tables

Table 1

An outline of the analysis process adapted from Braun and Clarke 2022.

1. Familiarisation: Listening to audio recordings and reading transcripts and post-it notes.
2. Generating codes: Reviewing a data set and allocating codes to interesting or significant aspects. Revisiting and adjusting codes while moving through the data.
3. Constructing tentative themes: Collating similar codes and sections of data together into tentative themes.
4. Reviewing tentative themes: Ensuring tentative themes align with the coded extracts and the entire data set, consolidating, and adjusting themes as needed.
5. Defining and naming themes: Assigning names to themes and producing written summaries to capture the main points in each theme.
6. Repeating Steps 1–5 for each data set
7. Uniting the data; brining the themes for the data sets together, grouping similar themes, and determining overarching themes.
Table 2

Overview of themes.

THE TRANSITION MINEFIELDNETWORKS OF SUPPORTENCOUNTERING ADULTHOOD
Young peopleLoss and connection

  • - Support from PAs

  • - Spending less time with family

  • - Loss of college relationships

Moving towards adulthood

  • - Responsibility for self and others

  • - Work

  • - Increasing independence skills


Disability and difference

  • - Impact of impairment

  • - Desire to change

  • - Comparing self to others

MothersPowerlessness

  • - Problematic planning

  • - Waiting

  • - Perceived disrespect

  • - Funding decisions


Fighting

  • - Challenging decisions

  • - Battle language

  • - Advocating for change


Life goes on

  • - Health issues

  • - Loss of support

  • - Other issues cropping up

Support to empower

  • - Mutual understanding

  • - Sharing information

  • - empowerment

  • - Family support

Letting go and enabling adulthood

  • - Concern for risks/desire to protect

  • - Recognition of adult status

  • - Focussing on ‘independence skills’


Aspirations bounded by reality

  • - Taking what one can get

  • - Discriminatory attitudes

  • - LA perceived as a barrier


Worry for the future

  • - Lack of trust

  • - Thinking ahead

  • - Concern for state of adult social care

ProfessionalsCurtailed compassion

  • - Belief expectations too high

  • - Understanding of issues experienced

  • - Pressures from above

Regardless of capacity, they are an adult

  • - Tensions between capacity and adulthood

  • - Issues with consent

  • - Educating parents


Hindered futures

  • - Discriminatory attitudes

  • - LA perceived as a barrier

  • - Lack of role models

[i] The three overarching themes are in the top row with the corresponding subthemes below. Examples of codes are in lists.

DOI: https://doi.org/10.16993/sjdr.1202 | Journal eISSN: 1745-3011
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Language: English
Page range: 330 - 344
Submitted on: Sep 16, 2024
Accepted on: May 29, 2025
Published on: Jun 12, 2025
Published by: Stockholm University Press
In partnership with: Paradigm Publishing Services
Keywords:
Transition,
intellectual disabilities,
learning disability,
adulthood,
preparing for adulthood

© 2025 Francesca Ribenfors, Sue Caton, Leanne Rimmer, published by Stockholm University Press
This work is licensed under the Creative Commons Attribution 4.0 License.

Volume 27 (2025): Issue 1
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