‘Plenty of Disabled People Care’: Revealing Reciprocity and Interdependence in Disabled People’s Everyday Caregiving Practices
By: Claire Edwards and Cliona Loughnane
References
- Abrams, Thomas, and David Abbott. 2020. “Disability, Deadly Discourse, and Collectivity amid Coronavirus (COVID-19).” Scandinavian Journal of Disability Research 22(1): 168–174. DOI: 10.16993/sjdr.732
- Abrams, Thomas, and Michael Orsini. 2022. “Waves of Ableism: Affective Arrangements in the Time of COVID-19.” Canadian Journal of Disability Studies 11(3): 154–180. Retrieved from
https://cjds.uwaterloo.ca/index.php/cjds/article/view/930 . - Bowlby, Sophie. 2011. “Friendship, Co-Presence and Care: Neglected Spaces.” Social & Cultural Geography, 12(6): 605–622. DOI: 10.1080/14649365.2011.601264
- Bowlby, Sophie, and Linda McKie. 2019. “Care and Caring: An Ecological Framework.” Area 51(3): 532–539. DOI: 10.1111/area.12511
- Bowlby, Sophie, Linda McKie, Susan Gregory, and Isobel Macpherson. 2010. Interdependency and Care over the Lifecourse. London: Routledge. DOI: 10.4324/9780203860076
- Bowlby, Sophie, Ruth Evans, Jane Ribbens McCarthy, and Josephine Wouango, J. 2022. “Time-Space Practices of Care after a Family Death in Urban Senegal.” Social & Cultural Geography 23(8): 1174–1192. DOI: 10.1080/14649365.2021.1901978
- Brannelly, Tula, and Marian Barnes. 2022. Researching with Care: Applying Feminist Care Ethics to Research Practice. Bristol: Policy Press. DOI: 10.1332/policypress/9781447359760.001.0001
- Braun, Virginia, and Victoria Clarke. 2006. “Using Thematic Analysis in Psychology.” Qualitative Research in Psychology 3(2): 77–101. DOI: 10.1191/1478088706qp063oa
- Citizens’ Assembly. 2021. Report of the Citizens’ Assembly on Gender Equality. Dublin: The Citizens’ Assembly. Available at:
https://citizensassembly.ie/wp-content/uploads/2023/02/report-of-the-citizens-assembly-on-gender-equality.pdf . - Clifford Simplican, Stacey. 2018. “Democratic Care and Intellectual Disability: More than Maintenance.” Ethics and Social Welfare 12(4): 298–313. DOI: 10.1080/17496535.2018.1452954
- Daly, Felicity, and Claire Edwards. 2022. “Tracing State Accountability for COVID-19: Representing Care within Ireland’s Response to the Pandemic.” Social Policy and Society, 1–13. DOI: 10.1017/S1474746422000665
- Daly, Felicity, and Jacqui O’Riordan. 2024. “Intersecting Vulnerabilities and Compounded Risks of Women Asylum Seekers Working in Care During COVID-19 in Ireland.” International Journal of Care and Caring 8(2): 333–350. DOI: 10.1332/23978821Y2024D000000029
- Daly, Mary. 2022. “COVID-19, Social Policy and Care: A Complex Set of Processes and Outcomes.” Frontiers in Sociology 6(808239): 1–8. DOI: 10.3389/fsoc.2021.808239
- Davy, Laura. 2019. “Between an Ethic of Care and an Ethic of Autonomy: Negotiating Relational Autonomy, Disability, and Dependency.” Angelaki 24(3): 101–114. DOI: 10.1080/0969725X.2019.1620461
- Edwards, Claire, Felicity Daly, Carol Kelleher, Cliona Loughnane, and Jacqui O’Riordan. 2023. CareVisions: Re-Envisioning a Care-Centred Society in Ireland Beyond COVID-19. Cork: University College Cork.
https://www.ucc.ie/en/media/research/iss21/CareVisionsfinalreportDec.2023(1).pdf - Fine, Michael, and Caroline Glendinning. 2005. “Dependence, Independence or Inter-Dependence? Revisiting the Concepts of ‘Care’ and ‘Dependency’.” Ageing and Society 25(4): 601–621. DOI: 10.1017/S0144686X05003600
- Fisher, Berenice, and Tronto, Joan C. 1990.
“Toward a Feminist Theory of Caring.” In Circles of Care, edited by E. Abel and M. J. Nelson, 29–42. New York: Suny Press. - Fudge-Schormans, Anne. 2015.
“People with Intellectual Disabilities (Visually) Reimagine Care.” In Ethics of Care: Critical Advances in International Perspective, edited by Marian Barnes, Tula Brannelly, Lizzie Ward and Nicki Ward, 179–194. Bristol: Policy Press. DOI: 10.56687/9781447316527-016 - Goodley, Dan, Rebecca Lawthom, Kirsty Liddiard, and Katherine Runswick-Cole. 2023. “Affect, Dis/Ability and the Pandemic.” Sociology of Health & Illness 45(6): 1187–1204. DOI: 10.1111/1467-9566.13483
- Held, Virginia. 2006. The Ethics of Care: Personal, Political, Global. Oxford: Oxford University Press. DOI: 10.1093/0195180992.001.0001
- Hughes, Bill, Linda McKie, Debra Hopkins, and Nick Watson. 2005. “Love’s Labours Lost? Feminism, the Disabled People’s Movement and an Ethic of Care.” Sociology 39(2): 259–275. DOI: 10.1177/0038038505050538
- Kelly, Christine. 2011. “Making ‘Care’ Accessible: Personal Assistance for Disabled People and the Politics of Language.” Critical Social Policy 31(4): 562–582. DOI: 10.1177/0261018311410529
- Kelly, Christine. 2013. “Building Bridges with Accessible Care: Disability Studies, Feminist Care Scholarship and Beyond.” Hypatia 28(4): 784–800. DOI: 10.1111/j.1527-2001.2012.01310.x
- Kelly, Christine. 2014. “Re/Moving Care from the Ontario Direct Funding Program: Altering Conversations Among Disability and Feminist Scholars.” Social Politics 21(1): 124–127. DOI: 10.1093/sp/jxt017
- Kittay, Eva Feder. 2019. Love’s Labor: Essays on Women, Equality and Dependency. New York: Routledge. DOI: 10.4324/9781315108926
- Kröger, Teppo. 2009. “Care Research and Disability Studies: Nothing in Common?” Critical Social Policy 29(3): 398–420. DOI: 10.1177/0261018309105177
- Kullman, Kim. 2014. “Children, Urban Care and Everyday Pavements.” Environment and Planning A 46(12): 2864–2880. DOI: 10.1068/a46260
- Loughnane, Cliona, and Claire Edwards. 2023. “Reimagining Care Discourses through a Feminist Ethics of Care: Analysing Ireland’s Citizens’ Assembly on Gender Equality.” International Journal of Care and Caring 7(4): 675–690. DOI: 10.1332/239788221X16686175446798
- Loughnane, Cliona, and Claire Edwards. 2024. “The Politics of Care and Confinement: Disabled People’s Affective Lives during COVID-19.” Child and Family Social Work 29(4): 831–1114. DOI: 10.1111/cfs.13099
- Loughnane, Cliona, Carol Kelleher, and Claire Edwards. 2023. “Care Full Deliberation? Care Work and Ireland’s Citizens’ Assembly on Gender Equality.” Critical Social Policy 43(4): 697–717. DOI: 10.1177/02610183231169195
- Lynch, Kathleen. 2022. Care and Capitalism. Cambridge: Polity.
- Macpherson, Hannah, Ed Hall, Andrew Power, and Alex Kaley. 2023. “Debilitating Landscapes of Care and Support: Envisaging Alternative Futures.” Social & Cultural Geography 24(1), 140–156. DOI: 10.1080/14649365.2021.1922736
- McLaughlin, Janice. 2020. “Valuing Care and Support in an Era of Celebrating Independence.” Sociology 54(2): 397–413. DOI: 10.1177/0038038519868630
- O’Riordan, Jacqui, Felicity Daly, Cliona Loughnane, Carol Kelleher, and Claire Edwards. 2023. “CareVisions: Enacting the Feminist Ethics of Care in Empirical Research.” Ethics and Social Welfare 17(2): 109–124. DOI: 10.1080/17496535.2023.2173794
- Perkins, Elizabeth A, and William E. Haley. 2013. “Emotional and Tangible Reciprocity in Middle- and Older-Aged Carers of Adults with Intellectual Disabilities.” Journal of Policy and Practice in Intellectual Disabilities 10(4): 334–444. DOI: 10.1111/jppi.12061
- Piepzna-Samarasinha, Leah Lakshmi. 2018. Care Work: Dreaming Disability Justice. Vancouver, BC: Arsenal Pulp Press.
- Power, Andrew, Andy Coverdale, Abigail Croydon, Ed Hall, Alex Kaley, Hannah Macpherson, and Melanie Nind. 2022. “Personalisation Policy in the Lives of People with Learning Disabilities: A Call to Focus on How People Build Their Lives Relationally.” Critical Social Policy 42(2): 220–240. DOI: 10.1177/02610183211004534
- Power, Emma R, and Miriam J. Williams. 2020. “Cities of Care: A Platform for Urban Geographical Care Research.” Geography Compass 14(1): 1–11. DOI: 10.1111/gec3.12474
- Puig de la Bellacasa, María. 2017. Matters of Care: Speculative Ethics in More than Human Worlds. Minneapolis: University of Minnesota Press. DOI: 10.1017/S2753906700002096
- Raghuram, Parvati. 2016. “Locating Care Ethics Beyond the Global North.” ACME: An International Journal for Critical Geographies 15(3): 511–533. DOI: 10.14288/acme.v15i3.1353
- Raghuram, Parvati. 2019. “Race and Feminist Care Ethics: Intersectionality as Method.” Gender, Place & Culture 26(5): 613–637. DOI: 10.1080/0966369X.2019.1567471
- Runswick-Cole, Katherine, Martina Smith, Sara Ryan, and Patty Douglas. 2024. “Dis/ Entangling Disability, Mental Health, and the Cultural Politics of Care.” Scandinavian Journal of Disability Research 26(1): 28–43. DOI: 10.16993/sjdr.1101
- Sevenhuijsen, S. 2003. “The Place of Care: The Relevance of the Feminist Ethic of Care for Social Policy.” Feminist Theory 4(2): 179–197. DOI: 10.1177/14647001030042006
- Shakespeare, Tom. 2000.
“The Social Relations of Care.” In Rethinking Social Policy edited by Gail Lewis, Sharon Gewirtz and John Clarke, 52–65. London: Sage Publications/Open University Press. - Shakespeare, Tom. 2013. Disability Rights and Wrongs Revisited (2nd Edition). London: Routledge. DOI: 10.4324/9781315887456
- Shakespeare, Tom, Andrea Stöckl, and Tom Porter. 2018. “Metaphors to Work By: The Meaning of Personal Assistance in England.” International Journal of Care and Caring 2(2): 165–179. DOI: 10.1332/239788218X15187915600658
- Thompson, Samantha. 2022. “‘Not Your “poor dear”’: Practices and politics of care in women’s non-profit housing in Vancouver.” Canada, Gender, Place & Culture 29(8): 1121–1140. DOI: 10.1080/0966369X.2021.1937063
- Tronto, Joan C. 2013. Caring Democracy: Markets, Equality, and Justice. New York: New York University Press.
- Truesdale, Maria, Laurence Taggart, Assumpta Ryan, and Roy McConkey. 2021. “Experiences of Reciprocal Caring Among Adults with an Intellectual Disability Caring for an Older Family Member.” Journal of Policy and Practice in Intellectual Disabilities 18(3): 240–248. DOI: 10.1111/jppi.12380
- Ungerson, Clare. 1999. “Personal Assistants and Disabled People: An Examination of a Hybrid Form of a Hybrid Form of Work and Care.” Work, Employment and Society 13(4): 583–600. DOI: 10.1177/09500179922118132
- Ward, Nicki. 2011. “Care Ethics and Carers with Learning Disabilities: A Challenge to Dependence and Paternalism.” Ethics and Social Welfare 5(2): 168–180. DOI: 10.1080/17496535.2011.571066
- Ward, Nicki. 2015.
“Reciprocity and Mutuality: People with Learning Disabilities as Carers.” In Ethics of Care: Critical Advances in International Perspective, edited by Marian Barnes, Tula Brannelly, Lizzie Ward, and Nicki Ward, 165–178. Bristol: Policy Press. DOI: 10.46692/9781447316527.013 - Watson, Nick, Linda McKie, Bill Hughes, Debra Hopkins, and Sue Gregory. 2004. “(Inter)Dependence, Needs and Care: The Potential for Disability and Feminist Theorists to Develop an Emancipatory Model.” Sociology 38(2): 331–350. DOI: 10.1177/0038038504040867
- Williams, Val, and Carol Robinson. 2001. “‘He Will Finish Up Caring for Me’: People with Learning Disabilities and Mutual Care.” British Journal of Learning Disabilities 29(2): 56–62. DOI: 10.1046/j.1468-3156.2001.00111.x
DOI: https://doi.org/10.16993/sjdr.1182 | Journal eISSN: 1745-3011
Language: English
Page range: 588 - 600
Submitted on: Aug 13, 2024
Accepted on: Oct 25, 2024
Published on: Nov 8, 2024
Published by: Stockholm University Press
In partnership with: Paradigm Publishing Services
© 2024 Claire Edwards, Cliona Loughnane, published by Stockholm University Press
This work is licensed under the Creative Commons Attribution 4.0 License.