Co-production with Disabled People during the Pandemic: The Creation of a New Political Discourse that Acknowledges the Role of Human Rights in Policymaking in Wales
By: Deborah Foster
References
- Alford, John. 2014. “The Multiple Facets of Co-Production: Building on the work of Elinor Ostrom.” Public Management Review 16(3): 299–316. DOI: 10.1080/14719037.2013.806578
- Arstein-Kerslake, Anna, Gooding, Piers, Mercer, Sarah, Raymond, Marlena, and Bernadette McSherry. 2019. “Implementing a participatory Human Rights-based research methodology: The unfitness to plead project.” Journal of Human Rights Practice 11(3): 589–606. DOI: 10.1093/jhuman/huz034
- Arstein-Kerslake, Anna, Maker, Yvette, Flynn, Eilionoir, Ward, Olympia, Bell, Ruby, and Theresia Degener. 2020. “Introducing a Human Rights-based Disability Research Methodology.” Human Rights Law Review 20(3): 412–432. DOI: 10.1093/hrlr/ngaa021
- Baird, Marian. 2020. “The academic as activist: managing tension and creating impact.” Community, Work & Family 23(5): 612–621. DOI: 10.1080/13668803.2020.1807915
- Barnes, Colin. 1992. “Qualitative Research: Valuable or Irrelevant?” Disability, Handicap & Society 7(2): 115–124. DOI: 10.1080/02674649266780151
- Bovaird, Tony, Van Ryzin, Greg, Loeffler, Elke, and Parrado, Salvador. 2015. “Activating Citizens to Participate in Collective Co-Production of Public Services.” Journal of Social Policy 44(1): 1–23. DOI: 10.1017/S0047279414000567
- Cepiku, Denita and Filippo Giordano. 2014. “Co-Production in Developing Countries: Insights from the community health workers experience.” Public Management Review 16(3): 317–340. DOI: 10.1080/14719037.2013.822535
- Disability Research on Independent Living and Learning (DRILL). 2015–2020. “A message from Disability Rights UK, Disability Action Northern Ireland, Disability Wales, and Inclusion Scotland.” Accessed February 15, 2024.
https://www.drilluk.org.uk/ . - Equality and Human Rights Commission (EHRC). 2020a. “Evidence to the Women and Equalities Committee (WEC) inquiry on coronavirus (COVID-19) and the impact on people with protected characteristics (May 2020).” Accessed February 15, 2024.
https://www.equalityhumanrights.com/our-work/advising-parliament-and-governments/evidence-women-and-equalities-committee-wec-inquiry . - Equality and Human Rights Commission (EHRC). 2020b. “Human rights and equality considerations in responding to the coronavirus pandemic.” Accessed February 15, 2024.
https://www.equalityhumanrights.com/en/our-work/news/human-rights-and-equality-considerations-responding-coronavirus-pandemic . - Foster, Deborah. 2022. “Disability and why the personal is political in socio-legal research.” Journal of Law & Society Conversations blog. Accessed February 15, 2024.
https://journaloflawandsociety.co.uk/blog/disability-and-why-the-personal-is-political-in-socio-legal-research/ . - Foster, Deborah. 2024. “Witness Statement provided for the COVID-19 Public Inquiry in Wales.”
https://covid19.public-inquiry.uk/wp-content/uploads/2024/02/28191746/INQ000274189.pdf . - Foster, Deborah, and Natasha Hirst. 2020.
“Legally Disabled? The Career Experiences of Disabled People Working in the Legal Profession.” Full report. Cardiff University.http://www.legallydisabled.com . - Foster, Deborah, and Natasha Hirst. 2022. “Doing diversity in the legal profession in England and Wales: why do disabled people continue to be unexpected?” Journal of Law and Society 49(3): 447–469. DOI: 10.1111/jols.12382.
- Harding, Sandra. 2004.
“Introduction, Standpoint Theory as a site of Political, Philosophical and Scientific debate.” In The Feminist Standpoint Theory Reader: Intellectual and Political controversies, edited by Sandra Harding, 1–16. New York: Routledge. - Hood, Christopher. 1991. “A Public Management for All Seasons?” Public Administration 69: 3–19. DOI: 10.1111/j.1467-9299.1991.tb00779.x
- Joshi Anuradha, and Mick Moore. 2004. “Institutionalised Co-production: Unorthodox Public Service Delivery in Challenging Environments.” The Journal of Development Studies 40(4): 31–49. DOI: 10.1080/00220380410001673184
- Liddiard, Kirsty, Runswick-Cole, Katherine, Goodley, Dan, Whitney, Sally, Vogelmann, Emma, and Lucy Watts. 2019. “‘I was Excited by the Idea of a Project that Focuses on those Unasked Questions’ Co-Producing Disability Research with Disabled Young People.” Children & Society 33: 154–167. DOI: 10.1111/chso.12308
- Löve, Laufey, Traustadóttir, Rannveig, and James Rice. 2019. “Shifting the Balance of Power: The Strategic Use of the CRPD by Disabled People’s Organizations in Securing ‘a Seat at the Table’.” Laws 8(2): 11. DOI: 10.3390/laws8020011
- Lukes, Stephen. 2005. Power: A Radical View. Basingstoke: Palgrave Macmillan. DOI: 10.1007/978-0-230-80257-5_2
- Marmot, Micheal, Allen, Jessica, Goldblatt, Peter, Herd, Eleanor, and Joana Morrison. 2020. Build Back Fairer: The COVID-19 Marmot Review. The Pandemic, Socioeconomic and Health Inequalities in England. London: Institute of Health Equity. Accessed February 16, 2024.
https://www.health.org.uk/publications/build-back-fairer-the-covid-19-marmot-review . - Massoud, Mark Fathi. 2022. “The price of positionality: assessing the benefits and burdens of self-identification in research methods.” Journal of Law and Society 49(1): 64–86. DOI: 10.1111/jols.12372
- Office for National Statistics (ONS). 2020a. “Coronavirus (COVID-19) related deaths by disability status, England and Wales 2 March to 14 July 2020.” Accessed February 16, 2024.
https://www.ons.gov.uk/peoplepopulationandcommunity/birthsdeathsandmarriages/deaths/articles/coronaviruscovid19relateddeathsbydisabilitystatusenglandandwales/2marchto14july2020 . - Office for National Statistics (ONS). 2020b. “Coronavirus and the social impacts on disabled people in Great Britain: September 2020.”
https://www.ons.gov.uk/peoplepopulationandcommunity/healthandsocialcare/disability/articles/coronavirusandthesocialimpactsondisabledpeopleingreatbritain/latest . - Office for National Statistics. 2020c. “Updated estimates of coronavirus (COVID-19) related deaths by disability status, England: 24 January to 20 November 2020.” Accessed February 16, 2024.
https://www.ons.gov.uk/peoplepopulationandcommunity/birthsdeathsandmarriages/deaths/articles/coronaviruscovid19relateddeathsbydisabilitystatusenglandandwales/24januaryto20november2020 . - Oliver, Mike. 1992. “Changing the Social Relations of Research Production?” Disability, Handicap & Society 7(2): 101–114. DOI: 10.1080/02674649266780141
- Oliver, Mike, and Len Barton. 2000. “The Emerging Field of Disability Studies: A View from Britian.” Paper presented at Disability Studies: A Global Perspective, Washington DC, October. Accessed February 16, 2024.
https://disability-studies.leeds.ac.uk/wp-content/uploads/sites/40/library/Oliver-Emerging-field.pdf . - Pollitt, Christopher. 1990. “Doing Business in the Temple? Managers and Quality Assurance in the Public Services.” Public Administration 68: 435–452. DOI: 10.1111/j.1467-9299.1990.tb00771.x
- Quinn, Gerard, and Eilionoir Flynn. 2012. “Transatlantic borrowings: The past and future of EU non-discrimination law and policy on the ground of disability.” The American Journal of Comparative Law 60: 23–48. DOI: 10.5131/AJCL.2011.0023
- Royal National Institute for the Blind (RNIB). 2020. “Survey: Lockdown could have long-term impact on people with sight loss in Wales.”
https://www.rnib.org.uk/news/rnib-survey-lockdown-could-have-long-term-impact-on-people-with-sight-loss-in-wales/ . - Stone, E., and Mark Priestley. 1996. “Parasites, pawns and partners: disability research and the role of non-disabled researchers.” British Journal of Sociology 47(4): 699–716. E-print available at:
https://eprints.whiterose.ac.uk/927/1/priestleym1.pdf . DOI: 10.2307/591081 - Swain, Jon, Heyman, Bob, and Maureen Gillman. 1998. “Public research, private concerns: ethical issues in the use of open-ended interviews with people who have learning difficulties.” Disability & Society 13: 21–36. DOI: 10.1080/09687599826894
- United Nations (UN). 2017. “Inquiry Concerning the United Kingdom of Great Britain and Northern Ireland Carried Out by the Committee Under Article 6 of the Optional Protocol of the Convention: Report of the Committee.”
https://digitallibrary.un.org/record/1311200?ln=en . - Weber, Max. 1954. Economy and Society. Cambridge: Harvard University Press.
- Welsh Government. 2020. “COVID-19 Black, Asian and Minority Ethnic Socio-economic SubGroup Report: Welsh Government response.” Accessed February 19, 2024.
https://www.gov.wales/covid-19-bame-socio-economic-subgroup-report-welsh-government-response-html . - Welsh Government. 2021a. “Locked out: liberating disabled people’s lives and rights in Wales beyond COVID-19.” Report. Accessed February 15, 2024.
https://www.gov.wales/locked-out-liberating-disabled-peoples-lives-and-rights-wales-beyond-covid-19 . - Welsh Government. 2021b. “Locked out: liberating disabled people’s lives and rights in Wales beyond COVID-19: the Welsh Government’s response”. Accessed February 15, 2024.
https://www.gov.wales/locked-out-liberating-disabled-peoples-lives-and-rights-wales-beyond-covid-19-welsh-governments . - Zarb, Gerry. 1992. “On the Road to Damascus: First Steps towards Changing the Relations of Disability Research Production.” Disability, Handicap & Society 7(2): 125–138. DOI: 10.1080/02674649266780161
DOI: https://doi.org/10.16993/sjdr.1054 | Journal eISSN: 1745-3011
Language: English
Page range: 410 - 422
Submitted on: Jun 30, 2023
Accepted on: Jun 18, 2024
Published on: Jul 10, 2024
Published by: Stockholm University Press
In partnership with: Paradigm Publishing Services
Keywords:
© 2024 Deborah Foster, published by Stockholm University Press
This work is licensed under the Creative Commons Attribution 4.0 License.