Skip to main content
Have a personal or library account? Click to login
The Personal is Political – And Then What? Ideology, Representation, and Legitimacy in a Swedish Disability Organisation Cover

The Personal is Political – And Then What? Ideology, Representation, and Legitimacy in a Swedish Disability Organisation

Open Access
|Jun 2023

References

  1. Anonymous. 1969. ”Handikappade i demonstration kräver vänligare samhälle.” [“Disabled Persons in Demonstration Demands a Friendlier Society.”] Arbetet, April 15.
  2. Bahner, Julia. 2022. “Nothing About Us Without … Who? Disability Rights Organisations, Representation and Collaborative Governance.” The International Journal of Disability and Social Justice 2(2). DOI: 10.13169/intljofdissocjus.2.2.0040
  3. Barton, Len. 2004. “The Disability Movement: Some Observations.” In Disabling Barriers Enabling Environments, 2nd ed., edited by John Swain, Sally French, Colin Barnes, and Carol Thomas, 285290. London: Sage.
  4. Benhabib, Seyla. 1996. “Toward a Deliberative Model of Democratic Legitimacy.” In Democracy and Difference – Contesting the Boundaries of the Political, edited by Seyla Benhabib, 6794. Princeton, New Jersey: Princeton University Press. DOI: 10.1515/9780691234168-005
  5. Berg, Bruce L. 2001. Qualitative Research Methods for the Social Sciences 4th ed. Boston: Allyn & Bacon.
  6. Berg, Susanne. 2007. DHR – 80 år av rörelse. [DHR – 80 Years of Movement.] Stockholm: De Handikappades Riksförbund.
  7. Bezzina, Lara. 2019. “Disabled People’s Organisations and the Disability Movement: Perspectives from Burkina Faso.” African Journal of Disability 8: a500. DOI: 10.4102/ajod.v8i0.500
  8. Burnard, Philip. 1996. “Teaching the Analysis of Textual Data: An Experiential Approach.” Nurse Education Today 16: 278281. DOI: 10.1016/S0260-6917(96)80115-8
  9. Campbell, Jane, and Mike Oliver. 1996. Disability Politics – Understanding Our Past, Changing Our Future. London: Routledge.
  10. Charlton, James I. 1998. Nothing About Us Without Us. Disability Oppression and Empowerment. Berkeley and Los Angeles, California: University of California Press. DOI: 10.1525/9780520925441
  11. Crow, Liz, and Wendy Merchant. 2019. “Disabled Mothers of Disabled Children. An Activism of Our Children and Ourselves.” In The Routledge Handbook of Disability Activism, edited by Maria Berghs, Tsitsi Chataika, Yahya El-Lahib, and Kudakwashe Dube, 157170. London: Routledge. DOI: 10.4324/9781351165082-12
  12. Curtin, Michael, and Ellie Fossey. 2007. “Appraising the Trustworthiness of Qualitative Studies: Guidelines for Occupational Therapists.” Australian Occupational Therapy Journal 54: 8894. DOI: 10.1111/j.1440-1630.2007.00661.x
  13. Danforth, Scot. 2018. “Becoming the Rolling Quads: Disability Politics at the University of California, Berkeley, in the 1960s.” History of Education Quarterly 58(4): 506536. DOI: 10.1017/heq.2018.29
  14. de Wilde, Pieter. 2013. “Representative Claims Analysis: Theory Meets Method.” Journal of European Public Policy 20(2): 278294. DOI: 10.1080/13501763.2013.746128
  15. Drake, Robert F. 1997. “What Am I Doing Here? ‘Non-disabled’ people and the Disability Movement.” Disability & Society 12(4): 643645. DOI: 10.1080/09687599727173
  16. Ekensteen, Vilhelm. 1968. På folkhemmets bakgård. En debattbok om de handikappades situation. [On the Backyard of the People’s Home. A Debate Book Concerning the Disabled Persons Situation.] Halmstad, Sweden: Prisma.
  17. Erevelles, Nirmala, and Minear, Andrea. 2010. “Unspeakable Offenses: Untangling Race and Disability in Discourses of Intersectionality.” Journal of Literary & Cultural Disability Studies 4(2): 127146. DOI: 10.3828/jlcds.2010.11
  18. Finkelstein, Vic. 2004. “Representing Disability.” In Disabling Barriers Enabling Environments 2nd ed., edited by John Swain, Sally French, Colin Barnes, and Carol Thomas, 1320. London: Sage.
  19. Freise, Matthias, and Torsten Hallman. 2014. “Modernizing Democracy? Associations and Associating in the Twenty-First Century.” In Modernizing Democracy – Associations and Associating in the 21st Century, edited by Matthias Freise, and Torsten Hallman, 115. New York: Springer. DOI: 10.1007/978-1-4939-0485-3_1
  20. Goodley, Dan. 2011. Disability Studies – An Interdisciplinary Introduction. London: Sage.
  21. Graneheim, Ulla H., and Berit Lundman. 2004. “Qualitative Content Analysis in Nursing Research: Concepts, Procedures and Measures to Achieve Trustworthiness.” Nurse Education Today 24: 105112. DOI: 10.1016/j.nedt.2003.10.001
  22. Griffiths, Miro. 2019. “These Days Are Ours: Exploring Young Disabled People’s Experiences and Views of the Disabled People’s Movement.” PhD diss., Liverpool John Moores University.
  23. Henriksen, Lars Skov, Kristin Strømsnes, and Lars Svedberg. 2019. “Comparative and Theoretical Lessons from the Scandinavian Case.” In Civic Engagement in Scandinavia – Volunteering, Informal Help and Giving in Denmark, Norway and Sweden, edited by Lars Skov Henriksen, Kristin Strømsnes, and Lars Svedberg, 199207. Switzerland: Springer Nature Switzerland AG. DOI: 10.1007/978-3-319-98717-0_9
  24. Hugemark, Agneta, and Christine Roman. 2007. “Diversity and Divisions in the Swedish Disability Movement: Disability, Gender, and Social Justice.” Scandinavian Journal of Disability Research 9(1): 2645. DOI: 10.1080/15017410600979553
  25. Hugemark, Agneta, and Christine Roman. 2012. Kamper i handikapprörelsen: Resurser, erkännande, representation. [Struggles of the Disability Rights Movement: Resources, Recognition, Representation.]. Umeå, Sweden: Boréa Bokförlag.
  26. Hughes, Bill. 2009. “Disability Activisms: Social Model Stalwarts and Biological Citizens.” Disability & Society 24(6): 677688. DOI: 10.1080/09687590903160118
  27. Höijer, Sigrid. 1951. “Cripple Welfare in Sweden.” Svensk Vanföretidskrift 28: 130134. [Available in English from: https://disability-studies.leeds.ac.uk/wp-content/uploads/sites/40/library/hojer-hojer.pdf].
  28. Jayal Niraja, Gopal. 2016. “Contending Representative Claims in Indian Democracy.” India Review 15(2): 172195. DOI: 10.1080/14736489.2016.1165556
  29. Jonsson, Gun. 2006. ”Tanter och representanter. Dilemman i frivilliga organisationer – en fråga om oligarki eller demokrati?” [“Democratic Dilemmas in Voluntary Organizations – A Question About Oligarchy or Democracy?”]. PhD diss., Faculty of Social Sciences, Umeå University, Sweden.
  30. Kilbourn, Brent. 2006. “The Qualitative Doctoral Dissertation Proposal.” Teachers College Record 108(4): 529576. DOI: 10.1111/j.1467-9620.2006.00660.x
  31. Lindqvist, Rafael. 2021. Funktionshindrade i välfärdssamhället. [Disabled Persons in the Welfare Society] 5th ed. Malmö, Sweden: Gleerups.
  32. Lord, Christopher, and Johannes Pollak. 2013. “The Pitfalls of Representation as Claims-Making.” Journal of European Integration 35(5): 517530. DOI: 10.1080/07036337.2013.799941
  33. Mansbridge, Jane. 2003. “Rethinking Representation.” American Political Science Review 97(4): 515528. DOI: 10.1017/S0003055403000856
  34. Meekosha, Helen. 2010. “The Complex Balancing Act of Choice, Autonomy, Valued Life, and Rights: Bringing a Feminist Disability Perspective to Bioethics.” International Journal of Feminist Approaches to Bioethics 3(2): 18. DOI: 10.3138/ijfab.3.2.1
  35. Montanaro, Laura. 2017. “Representing Affected Interests.” In Reclaiming Representation: Contemporary Advances in the Theory of Political Representation, 1st ed., edited by Monica Brito Vieira, 210226. New York: Routledge. DOI: 10.4324/9781315681696
  36. Nilsson, Erik. 1963. “The National Cripples’ Organization. An Introduction to the Cripples’ Own Organization in Sweden.” Svensk Vanföretidskrift 40: 56. [Available in English from: https://disability-studies.leeds.ac.uk/wp-content/uploads/sites/40/library/nilsson-nilsson.pdf].
  37. Oliver, Mike. 1990. The Politics of Disablement. London: Macmillan. DOI: 10.1007/978-1-349-20895-1
  38. Persson Bergvall, Inger, and Malena Sjöberg. (2012). Åratal ur handikapphistorien. [Years of Disability History.] 4th ed. Sweden: HandikappHistoriska Föreningen.
  39. Peter, Fabienne. 2017. “Political Legitimacy.” In The Stanford Encyclopedia of Philosophy (Summer 2017 Edition), edited by Edward N. Zalta. Accessed October 19, 2022. https://plato.stanford.edu/archives/sum2017/entries/legitimacy/.
  40. Phillips, Anne. 1995. The Politics of Presence. Oxford: Clarendon Press.
  41. Phillips, Anne. 2012. “Representation and Inclusion.” Politics & Gender 8(4): 512518. DOI: 10.1017/S1743923X12000529
  42. Pitkin, Hanna F. 1967. The Concept of Representation. Berkeley and Los Angeles, California: University of California Press.
  43. Rehfeld, Andrew. 2006. “Towards a General Theory of Political Representation.” The Journal of Politics 68(1): 121. DOI: 10.1111/j.1468-2508.2006.00365.x
  44. Rehfeld, Andrew. 2009. “Representation Rethought: On Trustees, Delegates, and Gyroscopes in the Study of Political Representation and Democracy.” American Political Science Review 103(2): 214230. DOI: 10.1017/S0003055409090261
  45. Rydström, Jens. 2019. “Disability, Socialism and Autonomy in the 1970s: Case Studies from Denmark, Sweden and the United Kingdom.” Disability & Society 34(9–10): 16371659. DOI: 10.1080/09687599.2019.1605883
  46. Saward, Michael. 2006. “The Representative Claim.” Contemporary Political Theory 5: 297318. DOI: 10.1057/palgrave.cpt.9300234
  47. Saward, Michael. 2010. The Representative Claim. New York: Oxford University Press. DOI: 10.1093/acprof:oso/9780199579389.001.0001
  48. Sépulchre, Marie, and Lars Lindberg. 2020. “Swedish Disability Activism – From Welfare to Human Rights?” In The Routledge Handbook of Disability Activism, edited by Maria Berghs, Tsitsi Chataika, Yahya El-Lahib, and Kudakwashe Dube, 398411. Abingdon, UK: Routledge. DOI: 10.4324/9781351165082-32
  49. SFS 2003:460. Lagen om etikprövning av forskning som avser människor. [The Swedish Statute-book 2003: 460. The Act concerning the Ethical Review of Research Involving Humans.].
  50. Swedish Research Council. 2017. Good Research Practice. Accessed October 5, 2022. https://www.vr.se/english/analysis/reports/our-reports/2017-08-31-good-research-practice.html.
  51. Squires, Judith. 2008. “The Constitutive Representation of Gender: Extra-parliamentary Re-presentations of Gender Relations.” Representation 44(2): 187204. DOI: 10.1080/00344890802080464
  52. Symeonidou, Simoni. 2009. “The Experience of Disability Activism Through the Development of the Disability Movement: How do Disabled Activists Find their Way in Politics?” Scandinavian Journal of Disability Research 11(1): 1734. DOI: 10.1080/15017410802461905
  53. Thomas, Carol. 2007. Sociologies of Disability and Illness: Contested Ideas in Disability Studies and Medical Sociology. Basingstoke: Palgrave Macmillan. DOI: 10.1007/978-1-137-02019-2_7
  54. UPIAS, Union of the Physically Impaired Against Segregation. 1975. Fundamental Principles of Disability. Accessed June 20, 2019. https://disability-studies.leeds.ac.uk/wp-content/uploads/sites/40/library/UPIAS-fundamental-principles.pdf.
  55. Young, Iris Marion. 1990. Justice and the Politics of Difference. Princeton: Princeton University Press.
DOI: https://doi.org/10.16993/sjdr.1001 | Journal eISSN: 1745-3011
Language: English
Page range: 198 - 211
Submitted on: Jan 5, 2023
Accepted on: May 25, 2023
Published on: Jun 21, 2023
In partnership with: Paradigm Publishing Services

© 2023 Oskar Krantz, Stina Melander, Julia Bahner, published by Stockholm University Press
This work is licensed under the Creative Commons Attribution 4.0 License.