References
- Groleger K. Klinicne smernice za diagnostiko in spremljanje otrok s cerebralno paralizo v rehabilitaciji. Rehabilitacija 2014; 13(Suppl 1): 84-96.
- Rosenbaum P, Paneth N, Leviton A, Goldstein M, Bax M, Damiano D, et al. A report: the definition and classification of cerebral palsy April 2006. Dev Med Child Neurol Suppl 2007; 109: 8-14.
- Surveillance of cerebral palsy in Europe: a collaboration of cerebral palsy surveys and registers. Surveillance of Cerebral Palsy in Europe (SCPE). Dev Med Child Neurol 2000; 42: 816-24.
- Colver A, Fairhurst C, Pharoah PO. Cerebral palsy. Lancet 2014; 383: 1240-9.
- Colver A, Rapp M, Eisemann N, Ehlinger V, Thyen U, Dickinson HO, et al. Self-reported quality of life of adolescents with cerebral palsy: a cross-sectional and longitudinal analysis. Lancet 2015; 385: 705-16.
- Shikako-Thomas K, Dahan-Oliel N, Shevell M, Law M, Birnbaum R, Rosenbaum P, et al. Play and be happy? Leisure participation and quality of life in school-aged children with cerebral palsy. Int J Pediatr 2012, ID 387280: 1-7.
- The World Health Organization Quality of Life assessment (WHOQOL): position paper from the World Health Organization. Soc Sci Med 1995; 41: 1403-9.
- Gurkova E. Issues in the definitions of HRQoL. J Nurs Soc Stud Public Health Rehabilit 2011; 3-4: 190-7.
- Mc Manus V, Corcoran P, Perry IJ. Participation in everyday activities and quality of life in pre-teenage children living with cerebral palsy in South West Ireland. BMC Pediatr 2008; 8: 50.
- Dickinson HO, Parkinson KN, Ravens-Sieberer U, Schirripa G, Thyen U, Arnaud C, et al. Self-reported quality of life of 8-12-year-old children with cerebral palsy: a cross-sectional European study. Lancet 2007; 369: 2171-8.
- Boling S, Tarja V, Helena M, Wivi F, Ilona AR, Leena H. Measuring quality of life of Finnish children with cerebral palsy. J Pediatr Rehabilit Med 2013; 6: 121-7.
- Fayed N, de Camargo OK, Kerr E, Rosenbaum P, Dubey A, Bostan C, et al. Generic patient-reported outcomes in child health research: a review of conceptual content using World Health Organization definitions. Dev Med Child Neurol 2012; 54: 1085-95.
- Waters E, Davis E, Mackinnon A, Boyd R, Graham HK, Kai Lo S, et al. Psychometric properties of the quality of life questionnaire for children with CP. Dev Med Child Neurol 2007; 49: 49-55.
- Baars RM, Atherton CI, Koopman HM, Bullinger M, Power M. The European DISABKIDS project: development of seven condition-specific modules to measure health related quality of life in children and adolescents. Health Qual Life Outcomes. 2005; 3: 70.
- Simeoni MC, Schmidt S, Muehlan H, Debensason D, Bullinger M. Field testing of a European quality of life instrument for children and adolescents with chronic conditions: the 37-item DISABKIDS Chronic Generic Module. Qual Life Res 2007; 16: 881-93.
- Fava L, Muehlan H, Bullinger M. Linking the DISABKIDS modules for health-related quality of life assessment with the International Classification of Functioning, Disability and Health (ICF). Disabil Rehabil 2009; 31: 1943-54.
- Schmidt S. The European DISABKIDS Group. The DISABKIDS Questionnaires: Quality of life Questionnaires for children with chronic conditions. Lengerich: Pabst Science Publishers, 2006.
- Varni JW, Burwinkle TM, Sherman SA, Hanna K, Berrin SJ, Malcarne VL, et al. Health-related quality of life of children and adolescents with cerebral palsy: hearing the voices of the children. Dev Med Child Neurol 2005; 47: 592-7.
- Radsel A, Jekovec M. The new cerebral palsy register. Slov Pediatr 2014; 21(Suppl 1): 128.
- Davis E, Shelly A, Waters E, Mackinnon A, Reddihough D, Boyd R, et al. Quality of life of adolescents with cerebral palsy: perspectives of adolescents and parents. Dev Med Child Neurol 2009; 51: 193-9.
- Fauconnier J, Dickinson HO, Beckung E, Marcelli M, McManus V, Michelsen SI, et al. Participation in life situations of 8-12 year old children with cerebral palsy: cross sectional European study. BMJ 2009; 338: b1458.
- Gates P, Otsuka N, Sanders J, McGee-Brown J. Functioning and health-related quality of life of adolescents with cerebral palsy: self versus parent perspectives. Dev Med Child Neurol 2010; 52: 843-9.
- Oeffinger D, Gorton G, Bagley A, Nicholson D, Barnes D, Calmes J, et al. Outcome assessments in children with cerebral palsy, part I: descriptive characteristics of GMFCS Levels I to III. Dev Med Child Neurol 2007; 49: 172-80.
- Rosenbaum P. Family and quality of life: key elements in intervention in children with cerebral palsy. Dev Med Child Neurol 2011; 53(Suppl 4): 68-70.
