Demographic and health-related data of 91 participants_
| All participants - proxy reports | Self-reported participants | |||||
|---|---|---|---|---|---|---|
| Children | Adolesc. | All | Children | Adolesc. | All | |
| Age (mean) | 10 y 6 mo, | 14 y, | 12 y 4 mo, | 10 y 8 mo, | 13 y 11mo, | 12 y 2 mo, |
| Gender | ||||||
| male | 26 (23.3%) | 27 (56.3%) | 53 (58.2%) | 13 (50.0%) | 10 (45.5%) | 23 (47.9%) |
| female | 17 (39.5%) | 21 (43.8%) | 38 (41.8%) | 13 (50.0%) | 12 (54.5%) | 25 (52.1%) |
| CP classification | ||||||
| spastic | 35 (81.4%) | 43 (89.6%) | 78 (85.7%) | 24 (92.3%) | 22 (100%) | 46 (95.8%) |
| dyskinetic dystonia | 7 (16.3%) | 4 (8.3%) | 11 (12.1%) | 2 (7.6%) | / | 2 (4.2%) |
| dys.choreoathetosis | / | 1 (2.1%) | 1 (1.1%) | / | / | / |
| ataxic | 1 (2.3%) | / | 1 (1.1%) | / | / | / |
| GMFCS | ||||||
| I | 18 (41.9%) | 11 (22.9%) | 29 (31.9%) | 16 (61.5%) | 8 (36.4%) | 24 (50%) |
| II | 10 (23.2%) | 10 (20.8%) | 20 (22.0%) | 7 (26.9%) | 7 (31.8%) | 14 (29.2%) |
| III | 3 (7.0%) | 8 (16.7%) | 11 (12.1%) | 1 (3.8%) | 4 (18.2%) | 5 (10.4%) |
| IV | 7 (16.3%) | 8 (16.7%) | 15 (16.5%) | 2 (7.7%) | 3 (13.6%) | 5 (10.4%) |
| V | 5 (11.6%) | 11 (22.9%) | 16 (17.6%) | / | / | / |
| IQ | ||||||
| > 70 | 25 (58.1%) | 21 (43.8%) | 48 (52.7%) | 26 (100%) | 22 (100%) | 48 (100%) |
| 50-70 | 7 (16.3%) | 10 (20.8%) | 15 (16.5%) | / | / | / |
| 20-50 | 7 (16.3%) | 11 (22.9%) | 18 (19.8%) | / | / | / |
| < 20 | 4 (9.3%) | 6 (12.5%) | 10 (11.0%) | / | / | / |
| Epilepsy | 15 (34.9%) | 17 (35.4%) | 32 (35.2%) | 3 (11.5%) | 3 (13.6%) | 6 (12.5%) |
| Speech disorder | 19 (44.2%) | 22 (45.8%) | 41 (45.1%) | 7 (26.9%) | 6 (27.3%) | 13 (27.1%) |
| Attention disorder | 14 (32.6%) | 11 (22.9%) | 25 (27.5%) | 10 (38.5%) | 5 (22.7%) | 15 (31.3%) |
| Visual impairment | 15 (34.9%) | 19 (39.6%) | 34 (37.4%) | 7 (26.9%) | 9 (40.9%) | 16 (33.3%) |
| - severe | 2 (4.7%) | 2 (4.2%) | 4 (4.4%) | 1 (3.8%) | / | 1 (2.1%) |
| Hearing impairment | 4 (9.3%) | 3 (6.3%) | 7 (7.7%) | 1 (3.8%) | 1 (4.5%) | 2 (4.2%) |
| - severe | 2 (4.7%) | 1 (2.1%) | 3 (3.3%) | 1 (3.8%) | 1 (4.5%) | 2 (4.2%) |
| Reporting pain | 7 (16.3%) | 14 (29.2%) | 21 (23.1%) | 2 (7.7%) | 5 (22.7%) | 7 (14.6%) |
| Disrupted sleep | 8 (18.6%) | 12 (25.0%) | 20 (22.0%) | 2 (7.7%) | 1 (4.5%) | 3 (6.3%) |
| Gastrostomy | 1 (2.3%) | / | 1 (1.1%) | / | / | / |
| Reduced bone density | 4 (9.3%) | 5 (10.4%) | 9 (10.0%) | / | / | / |
DISABKIDS final scores (transformed to a scale of 1-100) by different modules, items and demographic properties_
| SELF - REPORTS | ALL | CHILDREN | ADOLESCENTS | MALES | FEMALES | ||||||
|---|---|---|---|---|---|---|---|---|---|---|---|
| valid items | score | valid items | score | valid items | score | valid items | score | valid items | score | ||
| DCGM-37-S | |||||||||||
| Independence | 48 | 70.4, SD 20.1 | 26 | 75.6, SD 15.7 | 22 | 64.2, SD 23.1 | 23 | 69.4, SD 22.8 | 25 | 71.3, SD 17.6 | |
| Physical | 48 | 74.6, SD 18.9 | 26 | 80.3, SD 11.9 | 22 | 68.0, SD 23.5 | 23 | 74.5, SD 21.2 | 25 | 76.9, SD 12.9 | |
| Emotion | 48 | 85.3, SD 17.7 | 26 | 91.1, SD 9.8 | 22 | 78.6, SD 22.4 | 23 | 85.2, SD 20.5 | 25 | 71.5, SD 34.9 | |
| Exclusion | 48 | 80.2, SD 17.0 | 26 | 84.9, SD 10.5 | 22 | 74.6, SD 21.3 | 23 | 78.3, SD 17.7 | 25 | 69.5, SD 16.2 | |
| Inclusion | 48 | 65.7, SD 19.5 | 26 | 70.4, SD 16.9 | 22 | 60.2, SD 21.3 | 23 | 61.6, SD 22.2 | 25 | 82.0, SD 16.5 | |
| Medication | 14 | 78.6, SD 26.8 | 7 | 83.2, SD 12.4 | 7 | 74.0, SD 36.9 | 9 | 82.5, SD 22.6 | 5 | 85.4, SD 15.3 | |
| General | 48 | 75.6, SD 16.0 | 26 | 80.8, SD 10.0 | 22 | 69.4, SD 19.5 | 23 | 74.2, SD 19.0 | 25 | 74.8, SD 17.2 | |
| DCSM-CPM-S | |||||||||||
| Impact | 44 | 76.1, SD 15.0 | 23 | 79.3, SD 10.4 | 21 | 72.6, SD 18.4 | 20 | 74.5, SD 18.3 | 24 | 77.5, SD 11.8 | |
| Communication | 44 | 92.3, SD 20.6 | 23 | 98.9, SD 3.6 | 21 | 85.1, SD 28.1 | 20 | 90.0, SD 25.2 | 24 | 94.3, SD 16.1 | |
| Total | 44 | 78.8, SD 14.7 | 23 | 82.6, SD 8.7 | 21 | 74.7, SD 18.7 | 20 | 77.1, SD 18.7 | 24 | 80.3, SD 10.6 | |
Implemented interventions and socio-economic data of 91 participants_
| All participants - proxy reports | Self-reported participants | |||||
|---|---|---|---|---|---|---|
| Children | Adolesc. | All | Children | Adolesc. | All | |
| Interventions: | 3.9 per person (min 1, max 11) | / | / | / | ||
| Neurodevelopmental th. | 91 (100%) | / | / | / | ||
| - age at onset | 65 (71% ) < 6 months, | / | / | / | ||
| 77 (85%) <12 months | / | / | / | |||
| Physiotherapy | 69 (75.8%) | / | / | / | ||
| Occupational therapy | 48 (52.7%) | / | / | / | ||
| Speech-language therapy | 31 (43.1%) | / | / | / | ||
| Special pedagogy | 25 (27.5%) | / | / | / | ||
| Hypo therapy | 20 (21.9%) | / | / | / | ||
| Hydrotherapy | 17 (18.7%) | / | / | / | ||
| Psychological therapy | 11 (12.1%) | / | / | / | ||
| Social pedagogy | 9 (9.8%) | / | / | / | ||
| Complementary methods | 7 (7.7%) | / | / | / | ||
| Orthopedic therapy | 3 (3.3%) | / | / | / | ||
| Typhlopedagogy | 2 (2.2%) | / | / | / | ||
| Surdopedagogy | 2 (2.2%) | / | / | / | ||