Key challenges for patient registries – A report from the 1st workshop of the EHC Think Tank Workstream on Registries
Bok, Amanda, Noone, Declan, Skouw-Rasmussen, Naja, Tank, Ehc Think
Monitoring to improve quality of life in women with bleeding disorders
Noone, Declan, d’Oiron, Roseline
The Second European Conference on Women and Bleeding Disorders, Basel, Switzerland, 10–12 May 2022
Skouw-Rasmussen, Naja, Grimberg, Evelyn, Noone, Declan
New challenges for an expanding generation of older persons with haemophilia
O’Hara, Jamie, Noone, Declan, Kritikou, Persefoni, Myren, Karl-Johan, Chaplin, Steve, Hart, Daniel P
Key challenges for hub and spoke models of care – A report from the 1st workshop of the EHC Think Tank on Hub and Spoke Treatment Models
Bok, Amanda, Noone, Declan, Skouw-Rasmussen, Naja
Hepatitis C and bleeding disorders in Europe
Savini, Laura, Kaczmarek, Radoslaw, Noone, Declan, Giangrande, Paul, Dusheiko, Geoffrey, O’Mahony, Brian
The journey of gene therapy in haemophilia – putting the patient at the centre of the hub and spoke model
Noone, Declan, Astermark, Jan, O'Mahony, Brian, Peyvandi, Flora, Khair, Kate, Pembroke, Luke, Jenner, Kathryn
Patient agency: key questions and challenges – A report from the 1st workshop of the EHC Think Tank Workstream on Patient Agency
Bok, Amanda, Noone, Declan, Skouw-Rasmussen, Naja
Short- and longer-term goals for change – A report from the 2nd workshops of the EHC Think Tank Workstreams on Registries, the Hub and Spoke Model and Patient Agency
Bok, Amanda, Noone, Declan, Skouw-Rasmussen, Naja