Hearing the lived experience of young women with a rare genetic disorder 22q11.2DS regarding integrated care
Lorna Kerin, Fiona McNicholas, Aine Lawlor
Developing integrated care in the context of rare chromosomal conditions: 22q11 Deletion Syndrome; A parent/clinician collaboration.
Anne Lawlor, Lorna Kerin, David Orr, Ronan Leahy, Fiona Crotty, Suzanne Kelleher, Sally Ann Lynch, Laura Duggan, Eleanor Molloy, Edel Altman, Aisling O'Dwyer, Christina Cotter, Alana Ward, Fiona Mc Nicholas
Learning from a 7 year long Public Patient Involvement (PPI) journey with the rare disease patient organisation 22q Ireland
Lorna Kerin, Elisha Minihan, Fiona Crotty, Anne Lawlor, Emma Brady, Fiona McNicholas