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Proceedings of the Eleventh International Meeting on Neuroacanthocytosis Syndromes Cover

Proceedings of the Eleventh International Meeting on Neuroacanthocytosis Syndromes

By: Lars Kaestner  
Open Access
|Nov 2023

Abstract

The 11th International Meeting on Neuroacanthocytosis Syndromes was held on September 15th–17th, 2023 at the University Hospital Campus in Homburg/Saar, Germany. The meeting followed the previous ten international symposia, the last of which was held online due to restrictions due to COVID19, in March 2021. The setting of the meeting encouraged interactions, exchange of ideas, and networking opportunities among the participants from around the globe, including basic and clinical scientists, clinicians, and especially patients, their relatives and caregivers. A total of about 20 oral communications were presented in five scientific sessions accompanied by a keynote lecture, a “Poster-Blitz” session, the “Glenn Irvine Prize” lecture and a panel discussion about “Patient registries, international cooperation & future perspectives”.

In summary, attendees discussed recent advances and set the basis for the next steps, action points, and future studies in close collaboration with the patient associations, which were actively involved in the whole process.

DOI: https://doi.org/10.5334/tohm.826 | Journal eISSN: 2160-8288
Language: English
Submitted on: Oct 13, 2023
Accepted on: Oct 19, 2023
Published on: Nov 3, 2023
Published by: Ubiquity Press
In partnership with: Paradigm Publishing Services
Publication frequency: 1 issue per year

© 2023 Lars Kaestner, published by Ubiquity Press
This work is licensed under the Creative Commons Attribution 4.0 License.