Quality and Reliability Analysis of Essential Tremor Disease Information on Social Media: The Study of YouTube

Figures & Tables

DISCERN items and scoring.

QUESTION NUMBER	QUESTIONS	SCORING
1	Are the aims clear?	1	2	3	4	5
2	Does it achieve its aims?	1	2	3	4	5
3	Is it relevant?	1	2	3	4	5
4	Is it clear what sources of information were used to compile the publication?	1	2	3	4	5
5	Is it clear when the information used or reported in the publication was produced?	1	2	3	4	5
6	Is it balanced and unbiased?	1	2	3	4	5
7	Does it provide details of additional sources of support and information?	1	2	3	4	5
8	Does it refer to areas of uncertainty?	1	2	3	4	5
9	Does it describe how each treatment works?	1	2	3	4	5
10	Does it describe the benefits of each treatment?	1	2	3	4	5
11	Does it describe the risks of each treatment?	1	2	3	4	5
12	Does it describe what would happen if no treatment is used?	1	2	3	4	5
13	Does it describe how the treatment choices affect overall quality of life?	1	2	3	4	5
14	Is it clear that there may be more than one possible treatment choice?	1	2	3	4	5
15	Does it provide support for shared decision-making?	1	2	3	4	5
16	Based on the answers to all of the above questions, rate the overall quality of the publication as a source of information about treatment choices.	1	2	3	4	5

Statistically significant relationships and selected qualitative video content.

	GROUP COUNT		MEAN DISCERN	STD	P	MEAN GQS	STD	P
Clear information	Yes No	39 44	49.30 35.43	2.21 1.56	<0.001	3.82 2.25	0.17 0.14	<0.001
Symptoms	Yes No	63 20	43.63 36.65	1.80 2.50	0.045	3.23 2.20	0.15 0.26	0.001
Diagnosis	Yes No	62 21	44.82 33.47	1.80 1.91	0.001	3.33 1.95	0.15 0.17	<0.001
Treatment	Yes No	52 31	48.01 31.77	1.83 1.38	<0.001	3.40 2.29	0.16 0.20	<0.001
Treatment response	Yes No	48 34	48.31 33.41	1.94 1.55	<0.001	3.39 2.44	0.17 0.21	0.001
Etiology	Yes No	16 67	56 38.59	3.43 1.43	<0.001	4.43 2.64	0.22 0.13	<0.001
Epidemiology	Yes No	11 72	57.72 39.54	4.25 1.44	<0.001	4.27 2.79	0.33 0.14	0.001
Prognosis	Yes No	9 74	52.11 40.71	5.59 1.52	0.050	3.88 2.87	0.42 0.14	0.033
Diagram	Yes No	9 74	60.44 39.70	4.27 1.43	<0.001	4.44 2.81	0.24 0.14	<0.001
Radiological image	Yes No	14 69	56.21 39.05	3.73 1.45	<0.001	4.35 2.71	0.22 0.14	<0.001
Animation	Yes No	5 78	50.80 41.38	7.90 1.53	0.213	4.00 2.92	0.54 0.14	0.076
Doctor presenter	Yes No	60 23	46.36 30.43	1.69 1.73	<0.001	3.43 1.82	0.14 0.18	<0.001

[i] Mann-Whitney U test.

Correlation analysis.

	VPI	LIKE RATIO	TOTAL VIEWS	VIEW RATE	TOTAL COMMENTS	MEAN GQS
Mean DISCERN	–0.235*	–0.239*	–0.217*	–0.217*	–0.260*	0.907**
Mean GQS	–0.139	–0.239*	–0.121	–0.123	–0.194	1.000

[i] Spearman’s rho.

* Statistically significant at p < 0.05.

** Statistically significant at p < 0.01.

The Top eight Most Popular Essential Tremor Videos.

TITLE	UPLOADER	DISCERN	GQS	VPI	YOU TUBE LINK	DATE
Essential Tremor: Pediatric Onset	International Essential Tremor Foundation	68	5	4.91	https://www.youtube.com/watch?v=IU6Rhi6PUjA	10 May 2021
Diagnosis & Treatment Options for Essential Tremor	International Essential Tremor Foundation	72	5	49.28	https://www.youtube.com/watch?v=CJ8oZfme9wo	4 Aug 2020
TREMORS, Types, Causes, Treatment	Medi-Lectures	63	5	14.09	https://www.youtube.com/watch?v=o4QB6PNPTZo	29 Aug 2021
Latest Treatments For Essential Tremor and Parkinson’s Disease Webinar	Providence	70	5	3.46	https://www.youtube.com/watch?v=AcKdsxwxrEs	24 Mar 2021
Deep Brain Stimulation for Essential Tremor and Vocal Tremor	Stanford Health Care	63	5	3.78	https://www.youtube.com/watch?v=AV-2dNJczmI	1 Jun 2015
Treating Essential Tremor Today: From Propranolol to Piezoelectrics	Seattle Science Foundation	72	5	8.46	https://www.youtube.com/watch?v=zfOLHcWkc-I	1 Mar 2018
Essential Tremor and Thalamotomy	NEJM Group	68	5	2.96	https://www.youtube.com/watch?v=TOnoDGfq_kQ&t=1s	25 Aug 2016