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Huntington’s Disease Community Perspectives on Desired Characteristics of Disease Modifying Therapies Cover

Huntington’s Disease Community Perspectives on Desired Characteristics of Disease Modifying Therapies

Open Access
|Jan 2021

Figures & Tables

Table

Participant Characteristics (n = 14). SD = Standard deviation; HD = Huntington’s disease.

CHARACTERISTICN (%) OR MEAN (STANDARD DEVIATION)
Gender
Female8 (57%)
Male6 (43%)
Age, Mean (SD)48.6 (15.9)
Ethnicity
Non-Hispanic White14 (100%)
Education
More than Bachelor’s degree2 (14%)
Bachelor’s degree4 (29%)
Less than Bachelor’s degree8 (57%)
HD Status (All that Apply)1
At risk3 (21%)
Caregiver4 (29%)
Gene-negative1 (7%)
Gene-positive (e.g. pre-manifest)3 (21%)
Manifest HD4 (29%)

[i] 1 Numbers sum to 15 as 1 individual was both a caregiver and at-risk.

DOI: https://doi.org/10.5334/tohm.584 | Journal eISSN: 2160-8288
Language: English
Submitted on: Oct 30, 2020
Accepted on: Dec 15, 2020
Published on: Jan 20, 2021
Published by: Ubiquity Press
In partnership with: Paradigm Publishing Services
Publication frequency: 1 issue per year

© 2021 Michele C. Gornick, Kerry A. Ryan, Praveen Dayalu, Noelle E. Carlozzi, Roger L. Albin, Darin B. Zahuranec, published by Ubiquity Press
This work is licensed under the Creative Commons Attribution 4.0 License.