Abstract
Background: This presentation is about engaging patients and caregivers in the implementation and evaluation of integrated healthcare interventions. Specifically, we will focus on the co-creation of program theories of change to guide the implementation and evaluation process. The use of theories of change ensures “work as imagined” is as close as possible to “work as done,” thereby setting the program and people involved up for success. It also provides an opportunity to understand how a program works and what makes it successful. While recent work in the field of integrated care has introduced and used the theory of change approach in evaluating care interventions, our focus is on a participatory process that helps people understand why their program should have an impact the way they intended by relying not only on evidence but also lived experiences.
Audience: This presentation is for anyone interested in implementation and evaluation capacity-building specifically focused on collaborative, participatory approaches and engaging patients, families, and caregivers. The methods used will be broadly applicable to multiple sectors and roles. We invite PFAC representatives, in particular, to join.
Approach: Our focus on program theories of change provides an essential tool for integrating both theoretical frameworks and the insights of patients and caregivers into integrated care intervention design and evaluation. However, we recognize that existing theories can be complex and less accessible. Our team—a patient, an academic, and an embedded scientist—has been developing a practical, user-friendly, inclusive process for creating theories of change. Participants will have the opportunity to engage in collaborative activities that enhance their understanding and application of these concepts. By expanding their evaluative toolbox, participants will be better equipped to implement effective, evidence-based interventions that reflect the lived experiences of those they serve.