Abstract
Background: Complex needs of citizens are characterized by support questions in different but interconnected domains of daily life, such as social participation, psychosocial health, meaning to life and physical condition. Personized care focuses on those different interacting components that respond to the needs in these different domains. This personalized approach contrasts with the current services of separate care organizations that mainly focus on providing care in one life domain. Dynamic networks with both formal and multiple informal caregivers seem more suitable to provide personized care.
Approach: Patients, communities and formal caregivers, managers, administrators, supervisors, funders and master students are actively involved in the practice projects.
- At micro-level, with all stakeholders we co-created and collaborated with clients, informal carers and various professionals in dynamic networking.
- At meso-level, with all stakeholders we organized and managed dynamic networks.
- At macro-level, we still search how accountability and financing of dynamic network care can be structured.
Results:
- At micro-level, we found that especially informal care givers can be motivated to cooperate when they are challenged about their talents.
- At meso-level, we found that participants often take generic roles in the dynamic networks, such as the ‘organizer’, the ‘direct supporter’ and the ‘indirect supporter’.
- At macro-level we found that the network is held responsible as a whole by accountability bodies (government, insurers, etc.) for accountability for the care provided. However, the individual members (certainly the informal care providers) cannot be held responsible for the whole. Existing approaches of accountability appear to be unsustainable and should be shift to a more societal approach.
Implications: First insights for setting up dynamic and fluid organizational forms for providing person centred care on micro-level, meso-level and macro-level.
We work on:
- identifying more requirements for organising dynamic care networks;
- identifying accountability features for dynamic network care;
- on gaining insight in how policy can be made at local, regional, national and European level for facilitating dynamic micro network care.