Abstract
The frAAgiLe project, funded by the European Commission, is currently running its final trials and extended co-creation sessions with final users, and interesting feedback related to Topic number 1 Personalised and Person-centred Health and Care and Pillar 7: Digital solutions, is already being collected and analysed. This project is being carried out by an international consortium of 9 partners from 6 European countries led by the SME Ideable under the objective of monitoring and mitigating the effects of frailty in elder users from home through a smart digital platform.
The whole project is focused on being useful, effective, personalised and usable for elder users, which means that the testing sites are in close coordination with technical partners to ensure that the platform constantly adapts to the needs of users. This way, testing sites have already been implementing extensive testing with more than 40 users and participants in control groups. The testing includes the utilization of pre-defined and homogenised evaluation tools, including EQ-5D-5L Euro Quality of life, Attention Based Engagement, PlayTesting Questionnaire, Tree Testing and Edmonton. The testers have also gone through a previously defined inclusion-exclusion criteria which considers mental health, age, gender, motor disabilities, and other conditions.
The analysed feedback has been divided, just like the platform, in two sections: monitoring and mitigation. Within the first section, users focused on translation issues, with 75% of the feedback coming from testing sites including some references to this topic. Users also requested for more usable tests, the 3 clinical partners sent suggestions for changes in the tests that allow them to be carried out from home. As for the games, within the second part, given that these are the most interactive part of the platform, they sparked many suggestions for improvement amongst users. This even led to the creation of 4 new games and 3 spin-offs apart from the already existing 3, which have been totally created, from the beginning, with the active participation of final users.
All these activities go in line with the Topic 1: Personalised and person-centred health and care, as they ensure that care is person-centred and treats patients as individuals and as equal partners in their own care and support by including final users in every stage of the project, from the creation of the games and platform to their testing and implementation. The platform also includes assets for personalisation, which means that users and patients can choose several aspects of frAAgiLe in the 3 main fields: monitoring tools, games and videos and use them in the way that best suits them.
The Seventh Pillar: Digital solutions, E-health records Risk stratification Telehealth and telecare / mHealth is core for frAAgiLe. The platform has been thought of as a software tool that can be used by everyone from home with a tablet in an environment as safe, enjoyable, risk-free and accessible as possible.