Abstract
This video is about a group of nurses that started to film and edit videos about procedures with which other colleagues were not familiar with to address the need of performing them on COVID patient, that were mostly in need of ventilation.
This experience was so successful that they decided to replicate it, in favour of caregivers and families, videos about procedures and “how-to-do” episodes on technical issues.
In this particular video we tell the story of the Italian ALS Association: with COVID all the help they could provide families of ALS patients and patients themselves, was stopped from the impossibility of go to the hospital/reach them home.
Videos of “how-to-do” were distributed by the Association to families and a four- day course was organised (when out of emergency time) for them, to spread the word of this new way of coping with the difficulties that the illness can create.
This is a new alliance that turned distance and isolation due to an emergency into new ways of collaborating: a video made by patients to other patients and by the nurse that take care of them is something people can watch over and over again, operating in a safe way.