Abstract
Summary: This workshop will encourage reflection on the importance of co-producing integrated care policies and programmes with citizen leaders, i.e. those with lived experience of health and social care who take on the role of strategic influencers by choice or default. It will use the stories of citizen leaders from across the world gathered through narrative research to encourage participants to share their own experiences of the value of co-production and how such leadership can be encouraged in practice. Participants will leave the workshop with a greater understanding of the enablers and barriers and a collective sense of the potential value of such leadership. People with lived experience have been involved throughout the research and will present at the workshop.
Background: For integrated care to reflect the interests and aspirations of people and their communities it is vital that ‘citizen leaders’ with lived experience of health and social care are able to influence strategic visions and their implementation. In reality though, such leadership is rarely encouraged in practice.
Aims:
To enable participants to engage with the stories of citizen leaders of integrated care from across the world and compare with their own experiences
To facilitate shared reflection on the value of co-production with citizen leaders and why this value is not realised in practice
To identify what would help to embed citizen leadership more consistently within the development and oversight of integrated care policy and programme
Audience: We would hope for an audience which reflects the diversity of stakeholders who are involved in developing integrated care policies and programmes – i.e. people with lived experience, practice leaders, programme directors, researchers, and policy makers.
Facilitators: Overall coordination and facilitation of workshop by Robin Miller & Viktoria Stein – this will include guiding participants through the purpose and process, introducing speakers, encouraging contribution, and chairing discussions. Small group discussions will be run in person and on line by the wider research team, including Anne Wojtak, Margarita Peonides, Caroline Jackson and Wilma Wandervlegel.
Format: This workshop is based on the emerging findings of a global research project to learn from the stories of people with lived experience of health and social care services who have sought to positively influence the planning and delivery of health and social care services. It will begin with a short overview of the research and present emerging themes from the stories of citizen leaders from around the world.
The research team will then facilitate in-person and on-line discussion groups to gain participants’ response to the emerging findings. These will be shared and then brought together for a collective response and discussion.
Learnings:
The opportunity, value, and impact of citizen engagement
Addressing barriers in co-design
Citizen leadership as integral to transformational change.