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Learning from a 7 year long Public Patient Involvement (PPI) journey with the rare disease patient organisation 22q Ireland Cover

Learning from a 7 year long Public Patient Involvement (PPI) journey with the rare disease patient organisation 22q Ireland

Open Access
|Apr 2025

Authors

Lorna Kerin

lorna.kerin@ul.ie

Love Knowledge Consultancy, Castletroy, Limerick, Ireland

Elisha Minihan

lorna.kerin@ul.ie

HSE Psychology, Dublin

Fiona Crotty

lorna.kerin@ul.ie

HSE Psychiatry, Dublin, Ireland

Anne Lawlor

lorna.kerin@ul.ie

22q Ireland, Dublin, Ireland

Emma Brady

lorna.kerin@ul.ie

22q Ireland, Dublin, Ireland

Fiona McNicholas

lorna.kerin@ul.ie

Children's Health Ireland (CHI) at Crumlin, Dublin, Ireland/St John of God's Dublin, Ireland
DOI: https://doi.org/10.5334/ijic.9495 | Journal eISSN: 1568-4156
Language: English
Published on: Apr 9, 2025
Published by: Ubiquity Press
In partnership with: Paradigm Publishing Services
Publication frequency: 4 issues per year

© 2025 Lorna Kerin, Elisha Minihan, Fiona Crotty, Anne Lawlor, Emma Brady, Fiona McNicholas, published by Ubiquity Press
This work is licensed under the Creative Commons Attribution 4.0 License.