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Builder, Expert, Disruptor, Leader: The Many Roles of People with Lived Experience Cover

Builder, Expert, Disruptor, Leader: The Many Roles of People with Lived Experience

Open Access
|Aug 2023

Abstract

People with lived experience of health and social care, including family carers, should be at the heart of integrated care policy and practice. One of the challenges to achieving such co-production is insufficient clarity and limited understanding of the different roles that people with lived experience are asked or choose to undertake. Following research and workshops, four roles have been identified – community builder, improvement expert, disruptor/advocate, and citizen leader. Recognising the distinct contribution and demands of these roles will enable appropriate support and development for people with lived experience and the professionals and managers with whom they collaborate.

DOI: https://doi.org/10.5334/ijic.7696 | Journal eISSN: 1568-4156
Language: English
Submitted on: Jun 30, 2023
Accepted on: Aug 9, 2023
Published on: Aug 23, 2023
Published by: Ubiquity Press
In partnership with: Paradigm Publishing Services
Publication frequency: 4 issues per year

© 2023 Robin Miller, Nieves Ehrenberg, Caroline Jackson, Heather Penwarden, Viktoria Stein, Wilma van der Vlegel-Brouwer, Anne Wojtak, published by Ubiquity Press
This work is licensed under the Creative Commons Attribution 4.0 License.