References
- Bejot Y, Bailly H, Durier J, Giroud M. Epidemiology of stroke in Europe and trends for the 21st century. Presse Med. 2016; 45(12 Pt 2): e391–e8. DOI: 10.1016/j.lpm.2016.10.003
- OECD EU.
Health at Glance: Europe 2020 – State of Health in the EU cycle . Paris: OECD Publishing; 2020. DOI: 10.1787/82129230-en - Wafa HA, Wolfe CDA, Emmett E, Roth GA, Johnson CO, Wang Y. Burden of Stroke in Europe: Thirty-Year Projections of Incidence, Prevalence, Deaths, and Disability-Adjusted Life Years. Stroke. 2020; 51(8): 2418–27. DOI: 10.1161/STROKEAHA.120.029606
- GBD 2019 Stroke Collaborators. Global, regional, and national burden of stroke and its risk factors, 1990–2019: a systematic analysis for the Global Burden of Disease Study 2019. Lancet Neurology. 2021; 20: 795–820. DOI: 10.1016/S1474-4422(21)00252-0
- McCurley JL, Funes CJ, Zale EL, Lin A, Jacobo M, Jacobs JM, et al. Preventing Chronic Emotional Distress in Stroke Survivors and Their Informal Caregivers. Neurocrit Care. 2019; 30(3): 581–9. DOI: 10.1007/s12028-018-0641-6
- Pindus DM, Mullis R, Lim L, Wellwood I, Rundell AV, Abd Aziz NA, et al. Stroke survivors’ and informal caregivers’ experiences of primary care and community healthcare services – A systematic review and meta-ethnography. PLoS One. 2018; 13(2):
e0192533 . DOI: 10.1371/journal.pone.0192533 - Zawawi NSM, Aziz NA, Fisher R, Ahmad K, Walker MF. The Unmet Needs of Stroke Survivors and Stroke Caregivers: A Systematic Narrative Review. J Stroke Cerebrovasc Dis. 2020; 29(8). DOI: 10.1016/j.jstrokecerebrovasdis.2020.104875
- Norrving B, Barrick J, Davalos A, Dichgans M, Cordonnier C, Guekht A, et al. Action Plan for Stroke in Europe 2018–2030. Eur Stroke J. 2018; 3(4): 309–36. DOI: 10.1177/2396987318808719
- Minkman MM, Schouten LMT, Huijsman R, Van Splunderen PT. Integrated care for patients with a stroke in the Netherlands: results and experiences from a national Breakthrough Collaborative Improvement project. Int J of Integr Care. 2005; 5(2). DOI: 10.5334/ijic.118
- Lachkhem Y, Rican S, Minvielle E. Understanding delays in acute stroke care: a systematic review of reviews. Eur J Public Health. 2018; 28(3): 426–33. DOI: 10.1093/eurpub/cky066
- Langhorne P, Ramachandra S, Stroke Unit Trialists’ Collaboration. Organised inpatient (stroke unit) care for stroke: network meta-analysis. Cochrane Database Syst Rev. 2020; 4:
CD000197 . DOI: 10.1002/14651858.CD000197.pub4 - Langhorne P, Baylan S, Early Supported Discharge T. Early supported discharge services for people with acute stroke. Cochrane Database Syst Rev. 2017; 7:
CD000443 . DOI: 10.1002/14651858.CD000443.pub4 - Tummers J, Schrijvers A, Visser-Meily J. A qualitative study of stakeholder views on the effects of provider payment on cooperation, quality of care and cost-containment in integrated stroke care. BMC Health Serv Res. 2013; 13(127): 10. DOI: 10.1186/1472-6963-13-127
- Vat LE, Middelkoop I, Buijck BI, Minkman MM. The Development of Integrated Stroke Care in the Netherlands a Benchmark Study. Int J Integr Care. 2016; 16(4):
12 . DOI: 10.5334/ijic.2444 - Porter ME, Teisberg EO.
Redefining health care: creating value-based competition on results . Boston: Harvard Business School Press; 2006. - Hou Y, Bushnell C, Duncan P, Kucharska-Newton A, Halladay J, Freburger J, et al. Hospital to Home Transition for Patients With Stroke Under Bundled Payments. Archives of Physical Medicine and Rehabilitation. 2021; 102: 1658–64. DOI: 10.1016/j.apmr.2021.03.010
- Teisberg EO, Wallace S, O’Hara S. Defining and Implementing Value-Based Health Care: A Strategic Framework. Acad Med. 2020; 95(5): 682–5. DOI: 10.1097/ACM.0000000000003122
- The Picker Institute. The Picker Principles of Person Centred Care. 2023. [Available from:
https://picker.org/who-we-are/the-picker-principles-of-person-centred-care/ ]. - Sagiv L, Roccas S, Cieciuch J, Schwartz SH. Personal values in human life. Nat Hum Behav. 2017; 1(9): 630–9. DOI: 10.1038/s41562-017-0185-3
- Wright J, Williams R, Wilkinson JR. Development and importance of health needs assessment. Education and debate. 1998; 316: 1310–3. DOI: 10.1136/bmj.316.7140.1310
- Meara A, Crossnohere NL, Bridges JFP. Methods for measuring patient preferences: an update and future directions. Curr Opin Rheumatol. 2019; 31(2): 125–31. DOI: 10.1097/BOR.0000000000000587
- Van Haitsma K, Abbott KM, Arbogast A, Bangerter LR, Heid AR, Behrens LL, et al. A Preference-Based Model of Care: An Integrative Theoretical Model of the Role of Preferences in Person-Centered Care. Gerontologist. 2020; 60(3): 376–84. DOI: 10.1093/geront/gnz075
- Bastemeijer CM, Voogt L, van Ewijk JP, Hazelzet JA. What do patient values and preferences mean? A taxonomy based on a systematic review of qualitative papers. Patient Educ Couns. 2017; 100(5): 871–81. DOI: 10.1016/j.pec.2016.12.019
- Schoot T, Proot I, Meulen RT, de Witte L. Recognition of client values as a basis for tailored care: the view of Dutch expert patients and family caregivers. Scand J Caring Sci. 2005; 19(2): 169–76. DOI: 10.1111/j.1471-6712.2005.00327.x
- Connolly T, Mahoney E. Stroke survivors’ experiences transitioning from hospital to home. J Clin Nurs. 2018; 27(21–22): 3979–87. DOI: 10.1111/jocn.14563
- Forster A, Brown L, Smith J, House A, Knapp P, Wright JJ, et al. Information provision for stroke patients and their caregivers. Cochrane Database Syst Rev. 2012; 11:
CD001919 . DOI: 10.1002/14651858.CD001919.pub3 - Lindblom S, Ytterberg C, Elf M, Flink M. Perceptive Dialogue for Linking Stakeholders and Units During Care Transitions – A Qualitative Study of People with Stroke, Significant Others and Healthcare Professionals in Sweden. Int J Integr Care. 2020; 20(1):
11 . DOI: 10.5334/ijic.4689 - Turner GM, McMullan C, Atkins L, Foy R, Mant J, Calvert M. TIA and minor stroke: a qualitative study of long-term impact and experiences of follow-up care. BMC Fam Pract. 2019; 20(1):
176 . DOI: 10.1186/s12875-019-1057-x - Thomas DR. A General Inductive Approach for Analyzing Qualitative Evaluation Data. Am J Eval. 2006; 27(2):
10 . DOI: 10.1177/1098214005283748 - The PLoS Medicine Editors. Qualitative research: understanding patients’ needs and experiences. PLoS Med. 2007; 4(8):
e258 . DOI: 10.1371/journal.pmed.0040258 - Sofaer S. Qualitative Research Methods. Int J for Qual Health Care. 2002; 14(4):
8 . DOI: 10.1093/intqhc/14.4.329 - Bally ELS, van Grieken A, Ye L, Ferrando M, Fernández-Salido M, Dix R, et al. ‘Value-based methodology for person-centred, integrated care supported by Information and Communication Technologies’ (ValueCare) for older people in Europe: study protocol for a pre-post controlled trial. BMC Geriatr. 2022; 22(680). DOI: 10.1186/s12877-022-03333-8
- Braun V, Clarke V. Using thematic analysis in psychology. Qual Res Psychol. 2006; 3(2): 77–101. DOI: 10.1191/1478088706qp063oa
- UNESCO. International Standard Classification of Education (ISCED). 2011. [Available from:
https://uis.unesco.org/en/topic/international-standard-classification-education-isced .] - Bastemeijer CM, van Ewijk JP, Hazelzet JA, Voogt LP. Patient values in physiotherapy practice, a qualitative study. Physiother Res Int. 2020; 26(1):
e1877 . DOI: 10.1002/pri.1877 - Martin-Sanz B, Salazar-de-la-Guerra RM, Cuenca-Zaldivar JN, Aguila-Maturana AM, Garcia-Bravo C, Salcedo-Perez-Juana M, et al. Understanding the Professional Care Experience of Patients with Stroke: A Qualitative Study Using In-Depth Interviews. Int J Integr Care. 2022; 22(4):
2 . DOI: 10.5334/ijic.6526 - van Dulmen S. The value of tailored communication for person-centred outcomes. J Eval Clin Pract. 2011; 17(2): 381–3. DOI: 10.1111/j.1365-2753.2010.01586.x
- Ali NK. Are we training residents to communicate with low health literacy patients? J Community Hosp Intern Med Perspect. 2012; 2(4). DOI: 10.3402/jchimp.v2i4.19238
- Speros CI. More than word: promoting health literacy in older adults. Online J Issues Nurs. 2009; 14(3). DOI: 10.3912/OJIN.Vol14No03Man05
- McKevitt C, Fudge N, Redfern J, Sheldenkar A, Crichton S, Rudd AR, et al. Self-reported long-term needs after stroke. Stroke. 2011; 42(5): 1398–403. DOI: 10.1161/STROKEAHA.110.598839
- McLeod J, McMurray J, Walker J, Heckman G, Stolee P. Care transitions for older patients with musculoskeletal disorders: continuity from the providers’ perspective. Int J Integr Care. 2011; 11(e014). DOI: 10.5334/ijic.555
- Greyson D, O’Brien H, Shoveller J. Information world mapping: A participatory arts-based elicitation method for information behavior interviews. Library and Information Science Research. 2017; 39: 149–57. DOI: 10.1016/j.lisr.2017.03.003
- Armstrong MJ. Shared decision-making in stroke: an evolving approach to improved patient care. Stroke Vasc Neurol. 2017; 2(2): 84–7. DOI: 10.1136/svn-2017-000081
- Kang YN, Shen HN, Lin CY, Elwyn G, Huang SC, Wu TF, et al. Does a Mobile app improve patients’ knowledge of stroke risk factors and health-related quality of life in patients with stroke? A randomized controlled trial. BMC Med Inform Decis Mak. 2019; 19(1):
282 . DOI: 10.1186/s12911-019-1000-z - Bains M, Warriner D, Behrendt K. Primary and secondary care integration in delivery of value-based health-care systems. Br J Hosp Med. 2018; 79(6): 312–5. DOI: 10.12968/hmed.2018.79.6.312
- Deutschbein J, Grittner U, Schneider A, Schenk L. Community care coordination for stroke survivors: results of a complex intervention study. BMC Health Serv Res. 2020; 20(1):
1143 . DOI: 10.1186/s12913-020-05993-x
