References
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https://www.eurordis.org/carepaper . - 2EURORDIS. 2017. Juggling care and daily life: The balancing act of the rare disease community. Accessed February 2, 2021, from
http://download2.eurordis.org.s3.amazonaws.com/rbv/2017_05_09_Social%20survey%20leaflet%20final.pdf . - 3EURORDIS. 2020. How has COVID-19 impacted people with rare diseases? Accessed February 2, 2021, from
https://download2.eurordis.org/rbv/covid19survey/covid_infographics_final.pdf . - 4EURORDIS. 2020. Rare Disease Patients’ Experience of COVID-19. Accessed February 2, 2021, from
http://download2.eurordis.org/rbv/covid19survey/COVID19_EN.pdf . - 5EURORDIS. 2020. EURORDIS open letter to policy makers: Recommendations to protect people living with a rare disease during the COVID-19 pandemic. Accessed February 2, 2021, from
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