References
- Sung H, Ferlay J, Siegel RL, Laversanne M, Soerjomataram I, Jemal A, et al. Global cancer statistics 2020: GLOBOCAN estimates of incidence and mortality worldwide for 36 cancers in 185 countries. CA: a cancer journal for clinicians. 2021; 71(3): 209–49. DOI: 10.3322/caac.21660
- Kreftregisteret i Norge. Nøkkeltall om kreft [Keynumbers on cancer] Oslo Kreftregisteret; 2020 [Available from:
https://www.kreftregisteret.no/Temasider/om-kreft/ . [in Norwegian] - Helse- og omsorgsdepartementet [Norwegian Ministery of Health and Care Services].
Samhandlingsreformen – Rett behandling – på rett sted – til rett tid [The Coordination Reform — proper treatment – at the right place and right time] . Oslo; 2009. Report No.: St.meld.nr. 47 (2008–2009). Available from:https://www.regjeringen.no/contentassets/d4f0e16ad32e4bbd8d8ab5c21445a5dc/en-gb/pdfs/stm200820090047000en_pdfs.pdf . [in Norwegian] - Helse- og omsorgsdepartementet [Norwegian Ministry of Health and Care Services].
Sammen – mot kreft [Together – against cancer] . Oslo; 2013 Report No.: Nasjonal kreftstrategi (2013–2017). Available from:https://www.regjeringen.no/en/dokumenter/together--against-cancer/id728818/ . [in Norwegian] - Helse- og omsorgsdepartementet.
Leve med kreft [Live with cancer]: Nasjonal kreftstrategi [National cancer strategy] (2018–2022) . Oslo; 2017. Available from:https://www.regjeringen.no/contentassets/266bf1eec38940888a589ec86d79da20/regjeringens_kreftstrategi_180418.pdf . [in Norwegian] - Wagner EH, Bowles EJA, Greene SM, Tuzzio L, Wiese CJ, Kirlin B, et al. The quality of cancer patient experience: perspectives of patients, family members, providers and experts. BMJ Quality & Safety. 2010; 19(6): 484–9. DOI: 10.1136/qshc.2010.042374
- Patel MI, Periyakoil VS, Blayney DW, Moore D, Nevedal A, Asch S, et al. Redesigning cancer care delivery: views from patients and caregivers. J Oncol Pract. 2017; 13(4): 291–302. DOI: 10.1200/JOP.2016.017327
- Gorin SS, Haggstrom D, Han PK, Fairfield KM, Krebs P, Clauser SB. Cancer care coordination: a systematic review and meta-analysis of over 30 years of empirical studies. Ann Behav Med. 2017; 51(4): 532–46. DOI: 10.1007/s12160-017-9876-2
- de Witt A, Matthews V, Bailie R, Garvey G, Valery PC, Adams J, et al. Communication, Collaboration and Care Coordination: The Three-Point Guide to Cancer Care Provision for Aboriginal and Torres Strait Islander Australians. International Journal of Integrated Care. 2020; 20(2): 10. DOI: 10.5334/ijic.5456
- Fjose M, Eilertsen G, Kirkevold M, Grov EK. “Non-palliative care”–a qualitative study of older cancer patients’ and their family members’ experiences with the health care system. BMC Health Serv Res. 2018; 18(1): 745. DOI: 10.1186/s12913-018-3548-1
- Helsedirektoratet [The Norwegian Health Directorate].
Pakkeforløp på kreftområdet [Pathways on cancer] . Oslo 2015 Available from:https://www.helsedirektoratet.no/pakkeforlop/generell-informasjon-for-alle-pakkeforlopene-for-kreft/pakkeforlop-pa-kreftomradet . [in Norwegian] - Helsedirektoratet [The Norwegian Health Directorate].
Pårørendeveileder [Relatives’ supervisor – Supervisor of relatives in the health and care service] . Oslo 2018. Available from:https://www.helsedirektoratet.no/veiledere/parorendeveileder . [in Norwegian] - Singer SJ, Burgers J, Friedberg M, Rosenthal MB, Leape L, Schneider E. Defining and measuring integrated patient care: promoting the next frontier in health care delivery. Med Care Res Rev. 2011; 68(1): 112–27. DOI: 10.1177/1077558710371485
- Derrett S, Gunter KE, Samaranayaka A, Singer SJ, Nocon RS, Quinn MT, et al. Development and testing of the provider and staff perceptions of integrated care (PSPIC) survey. Med Care Res Rev. 2019; 76(6): 807–29. DOI: 10.1177/1077558717745936
- Armitage GD, Suter E, Oelke ND, Adair CE. Health systems integration: state of the evidence. International Journal of Integrated Care. 2009; 9: 82. DOI: 10.5334/ijic.316
- Cortis L, Ward P, McKinnon R, Koczwara B. Integrated care in cancer: what is it, how is it used and where are the gaps? A textual narrative literature synthesis. European Journal of Cancer Care. 2017; 26(4): 12689. DOI: 10.1111/ecc.12689
- Foglino S, Bravi F, Carretta E, Fantini MP, Dobrow MJ, Brown AD. The relationship between integrated care and cancer patient experience: A scoping review of the evidence. Health Policy. 2016; 120(1): 55–63. DOI: 10.1016/j.healthpol.2015.12.004
- Greenfield G, Ignatowicz AM, Belsi A, Pappas Y, Car J, Majeed A, et al. Wake up, wake up! It’s me! It’s my life! patient narratives on person-centeredness in the integrated care context: a qualitative study. BMC Health Serv Res. 2014; 14(1): 619. DOI: 10.1186/s12913-014-0619-9
- Swartz K, Collins LG. Caregiver care. Am Fam Physician. 2019; 99(11): 699–706.
- Buchman S, Evans JM, Mackinnon M, Gradin S, Wright FC. Bridging silos: Delivering integrated care to patients with cancer in Ontario, Canada. Psycho-Oncology. 2018; 27(12): 2673–6. DOI: 10.1002/pon.4858
- Kvale S, Brinkmann S, Anderssen TM, Rygge J.
Det kvalitative forskningsintervju [The qualitative research interview] . Oslo Gyldendal akademisk; 2009. [in Norwegian] - Saunes IS, Karanikolos M, Sagan A, Organization WH. Norway: Health system review. Health Systems and Policy Analysis. 2020; 22(1).
- Malterud K.
Kvalitative forskningsmetoder for medisin og helsefag: en innføring [Qualitative research methods for medicine and health sciences: an introduction] . Oslo Universitetsforlaget; 2017. [in Norwegian] - Norsk Sykepleierforbund.
Yrkesetiske retningslinjer for sykepleiere: ICNs etiske regler [Professional guidelines for nurses . The ICN code of ethics] Oslo Norsk sykepleierforbund; 2011. Available from:https://www.nsf.no/sykepleiefaget/yrkesetiske-retningslinjer . [in Norwegian] - Hvinden B, Bang K, Fjørtoft K, Holand I, Johnsen R, Kolstad I, et al.
Forskningsetiske retningslinjer for samfunnsvitenskap, humaniora, juss og teologi [Guidelines for Research Ethics in the Social Sciences, Humanities, Law and Theology] Oslo Forskningsetiske komiteer; 2016 [4. utgave]. Available from:https://www.forskningsetikk.no/retningslinjer/hum-sam/forskningsetiske-retningslinjer-for-samfunnsvitenskap-humaniora-juss-og-teologi/ . [in Norwegian] - Malterud K. Systematic text condensation: a strategy for qualitative analysis. Scandinavian Journal of Public Health. 2012; 40(8): 795–805. DOI: 10.1177/1403494812465030
- Iversen HH, Bjertnæs ØA.
Pakkeforløp for kreft. Resultater fra spørreskjemaundersøkelser i befolkningen og blant pasienter [Cancer patient pathways: Results from surveys among the general population and patients] Oslo Folkehelseinstituttet – Avdeling for kvalitet og pasientsikkerhet, Kunnskapssenteret i Folkehelseinstituttet; 2016. Available from:https://fhi.brage.unit.no/fhi-xmlui/bitstream/handle/11250/2486269/K_PasOpp_2016_Pakkeforl%C3%B8p+for+kreft.pdf?sequence=2 . [in Norwegian] - Solbjør M, Sand K, Ervik B, Melby L.
Patient experiences of waiting times in standardised cancer patient pathways in Norway – a qualitative interview study . London. 2021; 1. DOI: 10.1186/s12913-021-06679-8 - Delbanco T, Gerteis M, Aronson M, Park L. A patient-centered view of the clinician-patient relationship. UpToDate; 2012.
- Umihara J, Nishikitani M, Kubota K. Rapport between cancer patients and their physicians is critical for patient satisfaction with treatment decisions. Journal of Nippon Medical School. 2016; 83(6): 235–47. DOI: 10.1272/jnms.83.235
- Lindblom S, Ytterberg C, Elf M, Flink M. Perceptive Dialogue for Linking Stakeholders and Units During Care Transitions–A Qualitative Study of People with Stroke, Significant Others and Healthcare Professionals in Sweden. International Journal of Integrated Care. 2020; 20(1). DOI: 10.5334/ijic.4689
- Ringdal M, Chaboyer W, Ulin K, Bucknall T, Oxelmark L. Patient preferences for participation in patient care and safety activities in hospitals. BMC Nurs. 2017; 16(1): 1–8. DOI: 10.1186/s12912-017-0266-7
- Kehl KL, Landrum MB, Arora NK, Ganz PA, Van Ryn M, Mack JW, et al. Association of actual and preferred decision roles with patient-reported quality of care: shared decision making in cancer care. JAMA oncology. 2015; 1(1): 50–8. DOI: 10.1001/jamaoncol.2014.112
- Laidsaar-Powell R, Butow P, Bu S, Fisher A, Juraskova I. Attitudes and experiences of family involvement in cancer consultations: a qualitative exploration of patient and family member perspectives. Support Care Cancer. 2016; 24(10): 4131–40. DOI: 10.1007/s00520-016-3237-8
- Speice J, Harkness J, Laneri H, Frankel R, Roter D, Kornblith A, et al. Involving family members in cancer care: focus group considerations of patients and oncological providers. Psycho-Oncology: Journal of the Psychological, Social and Behavioral Dimensions of Cancer. 2000; 9(2): 101–12. DOI: 10.1002/(SICI)1099-1611(200003/04)9:2<;101::AID-PON435>3.0.CO;2-D
- Riddervold H, Høy E, Varre P. Samtaler om sykdom og behandling [Conversations about disease and treatment]. Sykepleien. 2008; 13(08): 90. [in Norwegian]. DOI: 10.4220/sykepleiens.2008.0018
- Havik OE. En generell modell for psykologiske reaksjoner ved somatisk sykdom: Hvordan kan vi best forstå og ivareta pasienters psykologiske behov? [A general model for psychological reactions in somatic disease. How can we understand and care for the patients’ psychological needs?]. Nord Psykol. 1989; 41(3): 161–76. DOI: 10.1080/00291463.1989.10636970
- Gritti P. The family meetings in oncology: some practical guidelines. Front Psychol. 2015; 5: 1552. DOI: 10.3389/fpsyg.2014.01552
- Berry LL, Dalwadi SM, Jacobson JO. Supporting the supporters: what family caregivers need to care for a loved one with cancer. J Oncol Pract. 2017; 13(1): 35–41. DOI: 10.1200/JOP.2016.017913
- Saunders B, Sim J, Kingstone T, Baker S, Waterfield J, Bartlam B, et al. Saturation in qualitative research: exploring its conceptualization and operationalization. Quality & quantity. 2018; 52(4): 1893–907. DOI: 10.1007/s11135-017-0574-8
- Hennink MM, Kaiser BN, Marconi VC. Code saturation versus meaning saturation: how many interviews are enough? Qualitative Health Research. 2017; 27(4): 591–608. DOI: 10.1177/1049732316665344