Table 1
Participant Characteristics (n = 22).
| n | |
|---|---|
| Age (n = 20)a | |
| 20–29 years old | 1 |
| 30–39 years old | 9 |
| 40–49 years old | 6 |
| 50–59 years old | 1 |
| 60–69 years old | 3 |
| Gender | |
| male | 3 |
| female | 19 |
| Primary language spoken | |
| English | 21 |
| French | 1 |
| Highest level of education completed (n = 21)a | |
| four or more years of university | 15 |
| some university/college diploma | 3 |
| high school | 1 |
| some high school | 2 |
| Employment status | |
| full-time employment | 7 |
| part-time/casual/self-employed | 6 |
| currently not working | 9 |
| Gross family income (n = 20)a | |
| $19,999 or less | 3 |
| $20,000–39,999 | 2 |
| $40,000–59,999 | 3 |
| $60,000–$69,999 | 3 |
| $70,000 or more | 9 |
| Marital relationship status (n = 21)a | |
| married/common law | 14 |
| separated | 3 |
| widowed | 2 |
| single | 2 |
| Relationship to the child | |
| mother | 18 |
| father | 2 |
| grandparent | 1 |
| legal guardian | 1 |
| Reason for contacting NaviCare/SoinsNavib | |
| resources or services | 11 |
| care coordination | 5 |
| respite | 3 |
| funding | 2 |
| caregiver education and support | 9 |
[i] a Some participants did not provide complete demographic information.
b Participants often had more than one reason for contacting NaviCare/SoinsNavi.
Table 2
Characteristics of Child/Youth with CCN (N = 28)a.
| n | |
|---|---|
| Gender of child/youth with CCN (n = 28) | |
| male | 19 |
| female | 9 |
| Age of child/youth with CCN (n = 28) | |
| <2 years old | 2 |
| 2–5 years old | 9 |
| 6–11 years old | 10 |
| 12–17 years old | 5 |
| >17 years old | 2 |
| Condition(s) of child/youth with CCN (n = 44)b | |
| neurological | 18 |
| mental health | 12 |
| genetic abnormality | 5 |
| gastrointestinal | 1 |
| cardiac | 3 |
| autoimmune | 2 |
| renal | 2 |
| no diagnosis | 1 |
[i] a Four caregivers used NaviCare/SoinsNavi for more than 1 child with CCNs.
b All reported conditions were counted.
Figure 1
Main themes and sub-themes.