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Patient and Health Care Professional Perspectives: A Case Study of the Lung Cancer Integrated Care Pathway Cover

Patient and Health Care Professional Perspectives: A Case Study of the Lung Cancer Integrated Care Pathway

Open Access
|Oct 2018

Figures & Tables

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Figure 1

Flow chart ICP.

Table 1

Demographic characteristics from OPTION and CPSET questionnaire.

CharacteristicPatients n = 77Health care Professionals n = 38p-value
Gender, n (%)0.017
       Male30 (39.5)24 (63.2)
       Female46 (60.5)14 (36.8)
       Valid cases n (%)76 (98.7)38 (100.0)
Age, mean ± SD (min–max)
       Male67 ± 8 (50–79)52 ± 10 (29–65)<0.001
       Female67 ± 10 (38–83)47 ± 10 (27–63)<0.001
       Valid cases n (%)76 (98.7)36 (94.7)
Table 2

Patient characteristics from OPTION questionnaire.

CharacteristicPatients n = 77
Marital status, n (%)
       Single11 (14.7)
       Married or cohabiting52 (69.3)
       Divorced3 (4.0)
       Widowed9 (12.0)
       Valid cases75 (97.4)
Education, n (%)
       No qualification0 (0)
       Elementary school20 (26.7)
       Middle school35 (46.7)
       High school19 (25.3)
       Degree1 (1.3)
       Postgraduate0 (0)
       Valid cases75 (97.4)
Time from diagnosis, n (%)
       Less than 1 year40 (52.6)
       1–2 years22 (28.9)
       3–4 years9 (11.8)
       More than 5 years5 (6.7)
       Valid cases76 (98.7)
Care coordinator, n (%)
       Yes41 (55.4)
       No33 (44.6)
       Valid cases74 (96.1)
Mode of ICP entry, n (%)
       Screening6 (8.0)
       Illness31 (41.3)
       Private testing22 (29.3)
       Other16 (21.4)
       Valid cases75 (97.4)
Table 3

Frequency distribution items OPTION and CPSET.

WORST SCORES (in descending order)BEST SCORES (in descending order)
OPTION questionnaire 1–2 points on Likert scale%CPSET questionnaire 1–4 points on Likert scale%OPTION questionnaire 4–5 points on Likert scale%CPSET questionnaire 7–10 points on Likert scale%
ITEM 9 – Information on social and personal changes26.0SE2 – Good cooperation exists between the hospital and primary care23.5ITEM 15 – Treated with respect by staff100PO1 – A patient focused vision exists within the organisation97.2
ITEM 4 – Cooperation between hospital staff and GP17.6SE3 – In complex care situations consultation takes place between the physician/surgeon and general practitioner23.5ITEM 18 – Satisfied with care received98.7COM4 – The patient is explicitly asked for his consent with regard to the proposed care94.4
ITEM 10 – Information on symptoms and lifestyle16.0PO6 – There is a clear vision of policy regarding care throughout the entire hospital14.3ITEM 13 – Trust in staff97.4PO3 – The care process coordinator has a patient focused vision94.3
ITEM 11 – Requests for information missing from medical records12.0SE1 – Primary care is considered by the hospital to be an equal partner11.4ITEM 1 – Easy to get an appointment96.1PO4 – Patient communication is considered to be important within the organisation94.1
ITEM 12 – Perceived familiarity of staff8.1PO5 – The organisational structure is patient focussed11.1ITEM 6 – Information on tests and examination95.9COR4 – Concrete agreements are made within the care process91.4
ITEM 8 – Information on treatment side effects and physical changes8.0COM1 – Within the care process time is explicitly provided to listen to the patient and his family11.1ITEM 5 – Explanation of care pathway steps94.7PO2 – Quality of care is the priority within the organisation88.9
ITEM 16 – Lack of identification of a personal care coordinator6.7OP2 – Whether the care provided is tailored to the patient’s needs is systematically monitored/followed-up8.6ITEM 3 – Cooperation among professionals94.6COR1 – Agreements are observed88.9
ITEM 17 – Sense of physical and emotional abandonment6.7COM2 – Time is explicitly scheduled within the care process for communications between healthcare professional and patient8.3ITEM 14 – Listening and emotional support received92.1COR2 – All team members are familiar with the various steps in the care process88.9
ITEM 19 – Involved in care-related decision-making5.2COR3 – There is an optimum timing of activities within the care process5.6ITEM 17 – Sense of physical and emotional abandonment88.0COR3 – There is an optimum timing of activities within the care process88.9
ITEM 7 – Information on treatments1.4COR5 – Team members consider themselves to be engaged in the organisation of the care process5.6ITEM 8 – Information on treatment side effects and physical changes86.7COR6 – Patients/family are provided with candid (frank; open; straightforward) information regarding their health88.9
ITEM 3 – Cooperation among professionals1.4COM3 – Within the care process there is provision for sufficient time to provide information5.6ITEM 12 – Perceived familiarity of staff86.5COR7 – Discharge is communicated in a timely manner to the patient and family so that they can take necessary measures88.9
ITEM 6 – Information on tests and examination1.4OP9 – The progress in the care process is continuously monitored/followed-up and adjusted5.6ITEM 7 – Information on treatments86.3OP1 – When (re)designing the care process quality indicators are formulated88.9
ITEM 5 – Explanation of care pathway steps1.3PO4 – Patient communication is considered to be important within the organisation2.9ITEM 16 – Lack of identification of a personal care coordinator85.3OP4 – The goals of the care process are described explicitly88.9
ITEM 1 – Easy to get an appointment1.3OP3 – Within the care process patient satisfaction is monitored/followed-up systematically2.8ITEM 19 – Involved in care-related decision-making84.4COR5 – Team members consider themselves to be engaged in the organisation of the care process83.3
OP5 – Within the care process monitoring/follow-up is performed to verify whether planned activities are actually performed2.8ITEM 11 – Requests for information missing from medical records78.7COM3 – Within the care process there is provision for sufficient time to provide information83.3
OP7 – Variances can be monitored within the care process2.8ITEM 10 – Information on symptoms and lifestyle72.0OP2 – Whether the care provided is tailored to the patient’s needs is systematically monitored/followed-up82.9
OP8 – Within the care process risks of complications are monitored/followed-up systematically2.8ITEM 4 – Cooperation between hospital staff and GP71.6PO5 – The organisational structure is patient focussed80.6
ITEM 9 – Information on social and personal changes64.4OP6 – Outcomes are systematically monitored/followed-up80.6
OP9 – The progress in the care process is continuously monitored/followed-up and adjusted80.6
OP5 – Within the care process monitoring/follow-up is performed to verify whether planned activities are actually performed75.0
OP8 – Within the care process risks of complications are monitored/followed-up systematically75.0
COM2 – Time is explicitly scheduled within the care process for communications between healthcare professional and patient72.2
OP7 – Variances can be monitored within the care process72.2
OP3 – Within the care process patient satisfaction is monitored/followed-up systematically63.9
PO6 – There is a clear vision of policy regarding care throughout the entire hospital60.0
COM1 – Within the care process time is explicitly provided to listen to the patient and his family58.3
SE1 – Primary care is considered by the hospital to be an equal partner57.1
SE2 – Good cooperation exists between the hospital and primary care44.1
SE3 – In complex care situations consultation takes place between the physician/surgeon and general practitioner35.3

[i] Four items (ITEM 13 – Trust in staff, ITEM 14 – Listening and emotional support received, ITEM 15 – Treated with respect by staff, ITEM 18 – Satisfied with care received) from OPTION questionnaire and twelve items (PO1 – A patient focused vision exists within the organisation, PO2 – Quality of care is the priority within the organisation, PO3 – The care process coordinator has a patient focused vision, COR1 – Agreements are observed, COR2 – All team members are familiar with the various steps in the care process, COR4 – Concrete agreements are made within the care process, COR6 – Patients/family are provided with candid (frank; open; straightforward) information regarding their health, COR7 – Discharge is communicated in a timely manner to the patient and family so that they can take necessary measures, COM4 – The patient is explicitly asked for his consent with regard to the proposed care, OP1 – When (re)designing the care process quality indicators are formulated, OP4 – The goals of the care process are described explicitly, OP6 – Outcomes are systematically monitored/followed-up) from CPSET questionnaire are not listed in Table 3 because they have zero response rates.

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Figure 2

High and low scores for OPTION and CPSET questionnaire.

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Figure 3

Lung cancer surgery volume.

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Figure 4

Lung cancer: 30-day mortality.

DOI: https://doi.org/10.5334/ijic.3972 | Journal eISSN: 1568-4156
Language: English
Submitted on: Feb 1, 2018
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Accepted on: Oct 17, 2018
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Published on: Oct 31, 2018
Published by: Ubiquity Press
In partnership with: Paradigm Publishing Services
Publication frequency: 4 issues per year

© 2018 Francesca Bravi, Eugenio Di Ruscio, Antonio Frassoldati, Giorgio Narciso Cavallesco, Giorgia Valpiani, Anna Ferrozzi, Ulrich Wienand, Tiziano Carradori, published by Ubiquity Press
This work is licensed under the Creative Commons Attribution 4.0 License.