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Family members of older persons with multi-morbidity and their experiences of case managers in Sweden: an interpretive phenomenological approach Cover

Family members of older persons with multi-morbidity and their experiences of case managers in Sweden: an interpretive phenomenological approach

Open Access
|Mar 2015

References

  1. 1 Eklund K Wilhelmson K Outcomes of coordinated and integrated interventions targeting frail elderly people: a systematic review of randomised controlled trials Health & Social Care in the Community 2009 17 5 447 58
  2. 2 Hallberg IR Kristensson J Preventive home care of frail older people: a review of recent case management studies Journal of Clinical Nursing 2004 13 6 112 20
  3. 3 Long MJ Case management model or case manager type? That is the question Health Care Manager (Frederick) 2002 20 4 53 65
  4. 4 Goodwin N Understanding integrated care: a complex process, a fundamental principle International Journal of Integrated Care [serial online] 2013 Mar 22 13 [cited 2014 Sept 9]. Available from: http://www.ijic.org. URN:NBN:NL:UI:10-1-114416.
  5. 5 Swedish National Institute of Public Health Anhöriga som ger omsorg till närstående – omfattning och konsekvenser Relatives who provide care to relatives-the extent and consequences 2012 Aug Stockholm Swedish National Institute of Public Health [cited 2014 Jan 15] [in Swedish]. Available from: http://www.socialstyrelsen.se/Lists/Artikelkatalog/Attachments/18811/2012-8-15.pdf
  6. 6 Genet N Boerma WG Kringos DS Bouman A Francke AL Fagerström C Home care in Europe: a systematic literature review BMC Health Services Research [serial online] 2011 Aug 30 11 [cited 2014 Jan 9]. Available from: http://www.biomedcentral.com/1472-6963/11/207
  7. 7 Szebehely M Informella hjälpgivare. Äldres levnadsförhållanden Informal caregivers. Older people's living conditions 2006 Oct Örebro Statistics Sweden [cited 2014 Jan 9] [in Swedish]. Available from: http://www.scb.se/statistik/_publikationer/LE0101_1980I05_BR_19_LE112SA0601.pdf
  8. 8 Swedish National Institute of Public Health Healthy Ageing – A Challenge for Europe 2007 Stockholm Swedish National Institute of Public Health [cited 2014 Jan 11]. Available from: http://ec.europa.eu/health/archive/ph_projects/2003/action1/docs/2003_1_26_frep_en.pdf
  9. 9 Boyd CM Darer J Boult C Fried LP Boult L Wu AW Clinical practice guidelines and quality of care for older patients with multiple comorbid diseases: implications for pay for performance Journal of the American Medical Association 2005 294 6 716 24
  10. 10 Marengoni A Winblad B Karp A Fratiglioni L Prevalence of chronic diseases and multimorbidity among the elderly population in Sweden American Journal of Public Health 2008 98 7 1198 200
  11. 11 Fortin M Soubhi H Hudon C Bayliss EA van den Akker M Multimorbidity's many challenges BMJ: British Medical Journal 2007 334 7602 1016 7
  12. 12 Summer-Meranius M Era delar är min helhet – en studie om att vara äldre och multisjuk You see parts but I am whole. A study of older persons experiences of multi-morbidity 2010 May Gothenburg Linnaeus University [cited 2014 Jan 2] [in Swedish]. Available from: http://www.diva-portal.org/smash/get/diva2:322457/FULLTEXT01.pdf
  13. 13 Golden AG Tewary S Dang S Roos BA Care management's challenges and opportunities to reduce the rapid rehospitalization of frail community-dwelling older adults The Gerontologist 2010 50 4 451 8
  14. 14 Alfaro N Lázaro P Gabriele G Garcia-Vicuña R Jover Sevilla J Perceptions, attitudes and experiences of family caregivers of patients with musculoskeletal diseases: a qualitative approach Reumatología Clinica 2013 9 6 334 9
  15. 15 Harding R Epiphaniou E Hamilton D Bridger S Robinson V George R What are the perceived needs and challenges of informal caregivers in home cancer palliative care? Qualitative data to construct a feasible psycho-educational intervention Supportive Care in Cancer 2012 20 9 1975 82
  16. 16 Vaingankar JA Subramaniam M Picco L Eng GK Shafie S Sambasivam R Perceived unmet needs of informal caregivers of people with dementia in Singapore International Psychogeriatrics 2013 25 10 1605 19
  17. 17 Andersson M Ekwall AK Hallberg IR Edberg AK The experience of being next of kin to an older person in the last phase of life Palliative & Supportive Care 2010 8 1 17 26
  18. 18 Schulz R Sherwood PR Physical and mental health effects of family caregiving The American Journal of Nursing 2008 108 9 23 7
  19. 19 Yates ME Tennstedt S Chang BH Contributors to and mediators of psychological well-being for informal caregivers The Journals of Gerontology Series B: Psychological Sciences and Social Sciences 1999 54 1 12 22
  20. 20 The Social Services Act Socialtjänstens stöd till personer som vårdar eller stödjer närstående The social services act for support of people providing care or support to a relative Amendment to statute 2001 453 Ch 5 §10 Stockholm
  21. 21 Swedish National Audit Office Stödet till anhöriga omsorgsgivare Support to family caregivers 2014 Apr Stockholm Swedish National Audit Office [cited 2014 Dec 11]. [in Swedish]. Available from: http://www.riksrevisionen.se/PageFiles/20005/RiR_2014_9_Anh%C3%B6rigst%C3%B6d_Anpassning.pdf
  22. 22 Lopez-Hartmann M Wens J Verhoeven V Remmen R The effect of caregiver support interventions for informal caregivers of community-dwelling frail elderly: a systematic review International Journal of Integrated Care [serial online] 2012 Aug 10 12 [cited 2013 Sep 12]. Available from: http://www.ijic.org. URN:NBN:NL:UI:10-1-113108
  23. 23 Case Management Society of America Standards of practice for case management 2010 3rd revised ed Little Rock Case Management Society of America
  24. 24 Coleman EA Parry C Chalmers S Min S-J The care transitions intervention: results of a randomized controlled trial Archives of Internal Medicine 2006 166 17 1822 8
  25. 25 Zawadski RT Eng C Case management in capitated long-term care Health Care Financing Review 1988 Spec No.75-81
  26. 26 Roland M Lewis R Steventon A Abel G Adams J Bardsley M Case management for at-risk elderly patients in the English integrated care pilots: observational study of staff and patient experience and secondary care utilisation International Journal of Integrated Care [serial online] 2012 Jul 24 12 [cited 2013 Sep 28]. Available from: http://www.ijic.org. URN:NBN:NL:UI:10-1-113731
  27. 27 Gustafsson M Kristensson J Holst G Willman A Bohman D Case managers for older persons with multi-morbidity and their everyday work – a focused ethnography BMC Health Services Research [serial online] 2013 Nov 27 13 [cited 2014 Jan 5]. Available from: http://www.biomedcentral.com/1472-6963/13/496
  28. 28 Benner P Interpretive phenomenology: embodiment, caring, and ethics in health and illness 1994 Thousand Oaks SAGE Publications
  29. 29 Annells M Hermeneutic phenomenology: philosophical perspectives and current use in nursing research Journal of Advanced Nursing 1996 23 4 705 13
  30. 30 Coyne IT Sampling in qualitative research. Purposeful and theoretical sampling; merging or clear boundaries? Journal of Advanced Nursing 1997 26 3 623 30
  31. 31 National Board of Health and Welfare Äldre – vård och omsorg år 2002 Care and support for older people 2002 2003 Apr Stockholm National Board of Health and Welfare [cited 2014 Jan 7] [in Swedish]. Available from: http://www.socialstyrelsen.se/Lists/Artikelkatalog/Attachments/10838/2003-44-3_2003443.pdf
  32. 32 National Board of Health and Welfare Vård i livets slutskede – Socialstyrelsens bedömning av utvecklingen i landsting och kommuner End of life care: The National Board of Health and Welfares assessment of the development in county council and municipal 2006 Dec Stockholm National Board of Health and Welfare [cited 2014 Jan 2]. [in Swedish]. Available from: http://www.socialstyrelsen.se/Lists/Artikelkatalog/Attachments/9430/2006-103-8_20061038.pdf
  33. 33 Whiting L Semi-structured interviews: guidance for novice researchers Nursing Standard 2008 22 23 35 40
  34. 34 WMA Declaration of Helsinki Ethical principles for medical research involving human subjects [webpage on the internet]. [cited 2014 Mar 1]. Available from: http://www.wma.net/en/30publications/10policies/b3/index.html
  35. 35 Goodwin N Reviewing the evidence on case management: lessons for successful implementation International Journal of Integrated Care [serial online] 2011 Dec 20 11 [cited 2014 Mar 9]. Available from: http://www.ijic.org. URN:NBN:NL:UI:10-1-101754
  36. 36 Oeseburg B Wynia K Middel B Reijneveld SA Effects of case management for frail older people or those with chronic illness: a systematic review Nursing Research 2009 58 3 201 10
  37. 37 Silva AL Teixeira HJ Teixeira MJC Freitas S The needs of informal caregivers of elderly people living at home: an integrative review Scandinavian Journal of Caring Sciences 2013 27 4 792 803
  38. 38 Rand S Malley J Carers’ quality of life and experiences of adult social care support in England Health & Social Care in the Community 2013 22 4 375 85
  39. 39 Kane RL Finding the right level of posthospital care: ‘we didn't realize there was any other option for him’ Journal of the American Medical Association 2011 305 3 284 93
  40. 40 Bee PE Barnes P Luker KA A systematic review of informal caregivers’ needs in providing home-based end-of-life care to people with cancer Journal of Clinical Nursing 2009 18 10 1379 93
  41. 41 Robben S van Kempen J Heinen M Zuidema S Olde Rikkert M Schers H Preferences for receiving information among frail older adults and their informal caregivers: a qualitative study Family Practice 2012 29 6 742 7
  42. 42 Lüdecke D Mnich E Kofahl C The impact of sociodemographic factors on the utilisation of support services for family caregivers of elderly dependents-results from the German sample of the EUROFAMCARE study Psycho-social Medicine [serial online] 2012 Oct 25 9 [cited 2014 Mar 11]. Available from: http://www.egms.de/static/en/journals/psm/2012-9/psm000084.shtml
  43. 43 Lincoln YS Guba EG Naturalistic inquiry 1985 Beverly Hills Sage Publications
DOI: https://doi.org/10.5334/ijic.1538 | Journal eISSN: 1568-4156
Language: English
Submitted on: Mar 20, 2014
Accepted on: Mar 9, 2015
Published on: Mar 31, 2015
Published by: Igitur publishing
In partnership with: Paradigm Publishing Services
Publication frequency: 4 issues per year

© 2015 Markus Hjelm, Ann-Charlotte Holmgren, Ania Willman, Doris Marianne Bohman, Göran Holst, published by Igitur publishing
This work is licensed under the Creative Commons Attribution 4.0 License.