References
- 1World Health Organization.
Prevention of Cardiovascular Disease: Guidelines for assessment and management of cardiovascular risk . Geneva, Switzerland: WHO Press, World Health Organization; 2007. - 2Walli-Attaei M, Joseph P, Rosengren A, et al. Variations between women and men in risk factors, treatments, cardiovascular disease incidence, and death in 27 high-income, middle-income, and low-income countries (PURE): A prospective cohort study. Lancet. 2020; 396: 97–109. DOI: 10.1016/S0140-6736(20)30543-2
- 3Abbafati C, Machado DB, Cislaghi B, et al. Global burden of 369 diseases and injuries in 204 countries and territories, 1990–2019: A systematic analysis for the Global Burden of Disease Study 2019. Lancet. 2020; 396: 1204–1222. DOI: 10.1016/S0140-6736(20)30925-9
- 4Grace SL, Turk-Adawi KI, Contractor A, et al. Cardiac rehabilitation delivery model for low-resource settings. Heart. 2016; 102: 1449–1455. DOI: 10.1136/heartjnl-2015-309209
- 5Anderson L, Oldridge N, Thompson DR, et al. Exercise-Based Cardiac Rehabilitation for Coronary Heart Disease: Cochrane Systematic Review and Meta-Analysis. J Am Coll Cardiol. 2016; 67: 1–12. DOI: 10.1016/j.jacc.2015.10.044
- 6Tarride JE, Lim M, DesMeules M, et al. A review of the cost of cardiovascular disease. Can J Cardiol. 2009; 25:
e195 . DOI: 10.1016/S0828-282X(09)70098-4 - 7Mamataz T, Uddin J, Ibn Alam S, et al. Effects of cardiac rehabilitation in low and middle-income countries: A systematic review and meta-analysis of randomized controlled trials. Prog Cardiovasc Dis. (ePub) 13 July 2021. DOI: 10.1016/j.pcad.2021.07.004
- 8Institute of Medicine (US) Committee on Quality of of Health Care in America.
Crossing the Quality Chasm: A New Health System for the 21st Century . Washington, DC: National Academies Press (US); 2001. - 9Virani SS, Maddox TM, Chan PS, et al. Provider type and quality of outpatient cardiovascular disease care insights from the NCDR PINNACLE registry. J Am Coll Cardiol. 2015; 66: 1803–1812. DOI: 10.1016/j.jacc.2015.08.017
- 10Moghei M, Turk-Adawi K, Isaranuwatchai W, et al. Cardiac rehabilitation costs. Int J Cardiol. 2017; 244: 322–328. DOI: 10.1016/j.ijcard.2017.06.030
- 11Moghei M, Pesah E, Turk-Adawi K, et al. Funding sources and costs to deliver cardiac rehabilitation around the globe: Drivers and barriers. Int J Cardiol. 2019; 276: 278–286. DOI: 10.1016/j.ijcard.2018.10.089
- 12Gliklich RE, Leavy MB, Dreyer NA. Registries for Evaluating Patient Outcomes: A User’s Guide.Forth Edition. 2020; AHRQ:
http://www.ncbi.nlm.nih.gov/pubmed/33001604 (accessed 18 March 2021). DOI: 10.23970/AHRQEPCREGISTRIES4 - 13Hoque DME, Kumari V, Hoque M, et al. Impact of clinical registries on quality of patient care and clinical outcomes: A systematic review. PLoS One. 2017; 12:
e0183667 . DOI: 10.1371/journal.pone.0183667 - 14Australian Commission on Safety and Quality in Health Care.
Economic evaluation of clinical quality registries: Five Australian case studies . Sydney; 2016.www.safetyandquality.gov.au . (accessed 18 March 2021). - 15Fonarow GC, Heywood JT, Heidenreich PA, Lopatin M, Yancy CW. Temporal trends in clinical characteristics, treatments, and outcomes for heart failure hospitalizations, 2002 to 2004: Findings from Acute Decompensated Heart Failure National Registry (ADHERE). Am Heart J. 2007; 153: 1021–1028. DOI: 10.1016/j.ahj.2007.03.012
- 16Fonarow GC, Albert NM, Curtis AB, et al. Improving Evidence-Based Care for Heart Failure in Outpatient Cardiology Practices: Primary Results of the Registry to Improve the Use of Evidence-Based Heart Failure Therapies in the Outpatient Setting (IMPROVE HF). Circulation. 2010; 122: 585–596. DOI: 10.1161/CIRCULATIONAHA.109.934471
- 17Fonarow GC, Yancy CW, Albert NM, et al. Improving the use of evidence-based heart failure therapies in the outpatient setting: The IMPROVE HF performance improvement registry. Am Heart J. 2007; 154: 12–38. DOI: 10.1016/j.ahj.2007.03.030
- 18Fonarow GC, Abraham WT, Albert NM, et al. Influence of a performance-improvement initiative on quality of care for patients hospitalized with heart failure: Results of the organized program to initiate lifesaving treatment in hospitalized patients with heart failure (OPTIMIZE-HF). Arch Intern Med. 2007; 167: 1493–1502. DOI: 10.1001/archinte.167.14.1493
- 19Heidenreich PA, Lewis WR, LaBresh KA, Schwamm LH, Fonarow GC. Hospital performance recognition with the Get With The Guidelines Program and mortality for acute myocardial infarction and heart failure. Am Heart J. 2009; 158: 546–553. DOI: 10.1016/j.ahj.2009.07.031
- 20Nakano A, Johnsen SP, Frederiksen BL, et al. Trends in quality of care among patients with incident heart failure in Denmark 2003–2010: A nationwide cohort study. BMC Health Serv Res. 2013; 13: 391. DOI: 10.1186/1472-6963-13-391
- 21Shalev V, Chodick G, Goren I, et al. The use of an automated patient registry to manage and monitor cardiovascular conditions and related outcomes in a large health organization. Int J Cardiol. 2011; 152: 345–349. DOI: 10.1016/j.ijcard.2010.08.002
- 22Poppas A, Masoudi FA. NCDR: Advancing Patient Care, Outcomes, and Value Through Innovation and Knowledge. J Am Coll Cardiol. 2021; 77: 224–226. DOI: 10.1016/j.jacc.2020.12.001
- 23Poffley A, Thomas E, Grace SL, et al. A systematic review of cardiac rehabilitation registries. Eur J Prev Cardiol. 2017; 24: 1596–1609. DOI: 10.1177/2047487317724576
- 24Van Zyl C, Badenhorst M, Hanekom S, Heine M. Unravelling ‘low-resource settings’: A systematic scoping review with qualitative content analysis. BMJ Glob Heal. 2021; 6: 1–14. DOI: 10.1136/bmjgh-2021-005190
- 25Mahood Q, Van Eerd D, Irvin E. Searching for grey literature for systematic reviews: Challenges and benefits. Res Synth Methods. 2014; 5: 221–234. DOI: 10.1002/jrsm.1106
- 26Kirkham JJ, Davis K, Altman DG, et al. Core Outcome Set-STAndards for Development: The COS-STAD recommendations. PLOS Med. 2017; 14:
e1002447 . DOI: 10.1371/journal.pmed.1002447 - 27Anderson HV, Weintraub WS, Radford MJ, et al. Standardized cardiovascular data for clinical research, registries, and patient care: A report from the data standards workgroup of the national cardiovascular research infrastructure project. J Am Coll Cardiol. 2013; 61: 1835–1846. DOI: 10.1016/j.jacc.2012.12.047
- 28Dodd S, Clarke M, Becker L, et al. A taxonomy has been developed for outcomes in medical research to help improve knowledge discovery. J Clin Epidemiol. 2018; 96: 84–92. DOI: 10.1016/j.jclinepi.2017.12.020
- 29Canavan M, Smyth A, Robinson SM, et al. Attitudes to outcomes measured in clinical trials of cardiovascular prevention. QJM. 2016; 109: 391–397. DOI: 10.1093/qjmed/hcv132
- 30Chow RD, Wankhedkar KP, Mete M. Patients’ preferences for selection of endpoints in cardiovascular clinical trials. J Community Hosp Intern Med Perspect. 2014; 4:
22643 . DOI: 10.3402/jchimp.v4.22643 - 31Zoch-Lesniak B, Dobberke J, Schlitt A, et al. Performance Measures for Short-Term Cardiac Rehabilitation in Patients of Working Age: Results of the Prospective Observational Multicenter Registry OutCaRe. Arch Rehabil Res Clin Transl. 2020; 2:
100043 . DOI: 10.1016/j.arrct.2020.100043 - 32Moghei M, Oh P, Chessex C, Grace SL. Cardiac Rehabilitation Quality Improvement: A Narrative Review. J Cardiopulm Rehabil Prev. 2019; 39: 226–234. DOI: 10.1097/HCR.0000000000000396
- 33Mehra VM, Gaalema DE, Pakosh M, Grace SL. Systematic review of cardiac rehabilitation guidelines: Quality and scope. Eur J Prev Cardiol. 2020; 27: 912–928. DOI: 10.1177/2047487319878958
- 34Rauch A, Negrini S, Cieza A. Toward Strengthening Rehabilitation in Health Systems: Methods Used to Develop a WHO Package of Rehabilitation Interventions. Arch Phys Med Rehabil. 2019; 100: 2205–2211. DOI: 10.1016/j.apmr.2019.06.002
- 35Keeney S, Hasson F, McKenna HP. A critical review of the Delphi technique as a research methodology for nursing. Int J Nurs Stud. 2001; 38: 195–200. DOI: 10.1016/S0020-7489(00)00044-4
- 36Tu JV, Abrahamyan L, Donovan LR, Boom N. Best practices for developing cardiovascular quality indicators. Can J Cardiol. 2013; 29: 1516–1519. DOI: 10.1016/j.cjca.2013.05.012
- 37Harris PA, Taylor R, Minor BL, et al. The REDCap consortium: Building an international community of software platform partners. J Biomed Inform. 2019; 95: 1–10. DOI: 10.1016/j.jbi.2019.103208
- 38Prinsen CA, Vohra S, Rose MR, et al. Guideline for selecting outcome measurement instruments for outcomes included in a Core Outcome Set; 2016.
https://cosmin.nl/wp-content/uploads/COSMIN-guideline-selecting-outcome-measurement-COS.pdf . (accessed 16 April 2021). DOI: 10.1186/s13063-016-1555-2 - 39Australian Commission on Safety and Quality in Health Care.
Prioritised list of clinical domains for clinical quality registry development – Final report . Sydney; 2016.www.safetyandquality.gov.au . (accessed 18 March 2021). - 40Australian Commission on Safety and Quality in Health Care.
Logical Design Australian Clinical Quality Registries . Sydney; 2012.www.safetyandquality.gov.au . (accessed 18 March 2021). - 41Australian Commission on Safety and Quality in Health Care.
Framework for Australian clinical quality registries . Sydney; 2014.https://www.safetyandquality.gov.au/sites/default/files/migrated/Framework-for-Australian-Clinical-Quality-Registries.pdf . (accessed 18 March 2021). - 42Jette N, Johnston M, Pringsheim T, Korngut L. The case for neurological registry best practice guidelines in Canada. Can J Neurol Sci. 2013; 40: S1–78. DOI: 10.1017/S031716710001711X
- 43Mandavia R, Knight A, Carter AW, et al. What are the requirements for developing a successful national registry of auditory implants? A qualitative study. BMJ Open. 2018; 8:
e021720 . DOI: 10.1136/bmjopen-2018-021720 - 44Gitt AK, Bueno H, Danchin N, et al. The role of cardiac registries in evidence-based medicine. Eur Heart J. 2010; 31: 525–529. DOI: 10.1093/eurheartj/ehp596
- 45Grace SL, Poirier P, Norris CM, et al. Pan-Canadian development of cardiac rehabilitation and secondary prevention Quality Indicators. Can J Cardiol. 2014; 30: 945–948. DOI: 10.1016/j.cjca.2014.04.003
- 46Zhang L, Gallagher R, Lowres N, et al. Using the ‘Think Aloud’ Technique to Explore Quality of Life Issues During Standard Quality-of-Life Questionnaires in Patients With Atrial Fibrillation. Hear Lung Circ. 2017; 26: 150–156. DOI: 10.1016/j.hlc.2016.05.121
- 47Charters E. The Use of Think-aloud Methods in Qualitative Research An Introduction to Think-aloud Methods. Brock Educ J. 2003; 12: 1–15. DOI: 10.26522/brocked.v12i2.38
- 48Fonteyn ME, Kuipers B, Grobe SJ. A Description of Think Aloud Method and Protocol Analysis. Qual Health Res. 1993; 3: 430–441. DOI: 10.1177/104973239300300403
- 49Pesah E, Supervia M, Turk-Adawi K, Grace SL. A review of cardiac rehabilitation delivery around the world. Prog Cardiovasc Dis. 2017; 60: 267–280. DOI: 10.1016/j.pcad.2017.08.007
- 50Curtis LH, Greiner MA, Hammill BG, et al. Representativeness of a national heart failure quality-of-care registry:Comparison of OPTIMIZE-HF and Non-OPTIMIZE-HF medicare patients. Circ Cardiovasc Qual Outcomes. 2009; 2: 377–384. DOI: 10.1161/CIRCOUTCOMES.108.822692
- 51Reeves MJ, Fonarow GC, Smith EE, et al. Representativeness of the get with the guidelines-stroke registry: Comparison of patient and hospital characteristics among medicare beneficiaries hospitalized with ischemic stroke. Stroke. 2012; 43: 44–49. DOI: 10.1161/STROKEAHA.111.626978
- 52Ruano-Ravina A, Pena-Gil C, Abu-Assi E, et al. Participation and adherence to cardiac rehabilitation programs. A systematic review. Int J Cardiol. 2016; 223: 436–443. DOI: 10.1016/j.ijcard.2016.08.120
- 53Egholm CL, Helmark C, Doherty P, et al. ‘Struggling with practices’ – A qualitative study of factors influencing the implementation of clinical quality registries for cardiac rehabilitation in England and Denmark. BMC Health Serv Res. 2019; 19: 102. DOI: 10.1186/s12913-019-3940-5
- 54Helmark C, Egholm CL, Kousgaard MB, Zwisler A-D, Doherty P. Nurses’ perceptions of feedback from cardiac rehabilitation registries: A qualitative study across the UK and Denmark. Br J Card Nurs. 2019; 14: 1–13. DOI: 10.12968/bjca.2018.0029
