The JARDIN Hackathon to Seek Solutions to Overcome Technical Barriers in Health Data Exchange: From the Point of Care to European Registry Networks
By: César Bernabé, Daphne Wijnbergen, Alberto Cámara, Karolis Cremers, Margarida Magalhães, Daniela Vicentini Albring, Sergi Aguiló-Castillo, Kalia Orphanou, Stella Tamana, Maria Xenophontos, Laura Menotti, Mirco Cazzaro, Ornella Irrera, Joëlle Thonnard, Sander van Boom, Iris C. M. Pelsma, Annika Jacobsen, Andrew Gibson, Veronica Popa, Mark Wilkinson and Marco Roos
Authors
Biosemantics Group, Human Genetics Department, Leiden University Medical Center, Leiden, NL; University of Illinois Urbana-Champaign, Urbana-Champaign, IL
Biosemantics Group, Human Genetics Department, Leiden University Medical Center, Leiden
alberto.camara.ballesteros@erdera.org
Escuela Técnica Superior de Ingeniería Agronómica, Alimentaria y de Biosistemas, Centro de Biotecnología y Genómica de Plantas (CBGP) UPM – INIA/CSIC, Universidad Politécnica de Madrid (UPM) – Instituto Nacional de Investigación y Tecnología Agraria y Alimentaria (INIA)/Consejo Superior de Investigaciones Científicas (CSIC), Madrid, ES 28223
Biosemantics Group, Human Genetics Department, Leiden University Medical Center, Leiden
Daniela.VicentiniAlbring@radboudumc.nl
Bioinformatics Group, Department of Medical Biosciences, Radboud University Medical Center, Nijmegen
Sergi.AguiloCastillo@radboudumc.nl
Bioinformatics Group, Department of Medical Biosciences, Radboud University Medical Center, Nijmegen
Molecular Genetics Thalassaemia Department, The Cyprus Institute of Neurology & Genetics, Nicosia
Molecular Genetics Thalassaemia Department, The Cyprus Institute of Neurology & Genetics, Nicosia
Molecular Genetics Thalassaemia Department, The Cyprus Institute of Neurology & Genetics, Nicosia
Department of Information Engineering, University of Padova, Padova
Department of Information Engineering, University of Padova, Padova
Department of Information Engineering, University of Padova, Padova
Biosemantics Group, Human Genetics Department, Leiden University Medical Center, Leiden; 4MedBox Nederland B.V., Leiden
Biosemantics Group, Human Genetics Department, Leiden University Medical Center, Leiden; Department of Medicine, Division of Endocrinology, and Center for Endocrine Tumors Leiden, Leiden University Medical Center, Leiden; Rare Disease Office, Department of Quality and Patient Safety, Rare Disease, Leiden University Medical Center, Leiden
Biosemantics Group, Human Genetics Department, Leiden University Medical Center, Leiden
Biosemantics Group, Human Genetics Department, Leiden University Medical Center, Leiden
Escuela Técnica Superior de Ingeniería Agronómica, Alimentaria y de Biosistemas, Centro de Biotecnología y Genómica de Plantas (CBGP) UPM – INIA/CSIC, Universidad Politécnica de Madrid (UPM) – Instituto Nacional de Investigación y Tecnología Agraria y Alimentaria (INIA)/Consejo Superior de Investigaciones Científicas (CSIC), Madrid, ES 28223
Biosemantics Group, Human Genetics Department, Leiden University Medical Center, Leiden
DOI: https://doi.org/10.5334/dsj-2026-029 | Journal eISSN: 1683-1470
Language: English
Page range: 29 - 29
Submitted on: Nov 21, 2025
Accepted on: Jun 9, 2026
Published on: Aug 12, 2026
Published by: Ubiquity Press
In partnership with: Paradigm Publishing Services
© 2026 César Bernabé, Daphne Wijnbergen, Alberto Cámara, Karolis Cremers, Margarida Magalhães, Daniela Vicentini Albring, Sergi Aguiló-Castillo, Kalia Orphanou, Stella Tamana, Maria Xenophontos, Laura Menotti, Mirco Cazzaro, Ornella Irrera, Joëlle Thonnard, Sander van Boom, Iris C. M. Pelsma, Annika Jacobsen, Andrew Gibson, Veronica Popa, Mark Wilkinson, Marco Roos, published by Ubiquity Press
This work is licensed under the Creative Commons Attribution 4.0 License.