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Information Needs and Data Harmonization—Two Sides of the Same Coin? Cover

Information Needs and Data Harmonization—Two Sides of the Same Coin?

Open Access
|Oct 2025

Figures & Tables

Table 1

Themes and examples of quotes they describe.

THEMEINTERVIEW QUOTE
Some FIP Problems Are not Unique‘[It’s…] not the context they’re from […] I think about what’s appealing or possible [… and] the incentives of the profession are set up to do […whatever is] quick. It’s easy [to use just whatever data…] you can get your hands on, but I think that affects more fields […]. I think it’s the doom loop we might have in terms of […incentives for the…] profession.’
Many Types and Sources of Data Exist‘I’ve mostly been focusing on the secondary data analysis. Some of the data sets I’ve used […] are Add Health, the National Longitudinal Study of Adolescent to Adult Health… [the] National Survey of Child and Adolescent Wellbeing… But then, sometimes I just like… I need a statistic for a grant application or a statistic for a paper.’
Creatively Combining Data Can Cause Problems‘A lot of the public health people who are coming in to look at gun violence don’t have the social science background… and they are missing some pretty key control variables or things that criminologists have known for decades… or they use data from criminology that they are not familiar with, and there are fatal flaws.’
Political Constraints Are Often Manageable‘In Colorado [… they have a] contractor who’s a data science person. They have all the linked data… whether or not you have SNAP, whether you got shot, whether you had criminal justice involvement… Colorado’s well-funded, super motivated.’
Not All Researchers Want to Share Their Data‘I submitted a FOIA request three years ago asking for something I know they have and that [is…] on their website. There are other public health researchers that have this data… [but…] they won’t share it with you unless they are a co-author.’
Data Harmonization is Contentious‘[They are…] deciding which measures they will harmonize, for the six study teams… There are some unique constructs… I don’t think they can mandate, because for the harmonizing process, it’s like all the six projects, study teams, have to decide that they want to use it and then adopt […each measure].’
The Necessity of Grants‘If we get the funding, we’re going to collect the clinical data, which we’ve harmonized… I don’t even know if that’s going to be hard because we haven’t started to do that, because we haven’t even applied for that part of the grant yet.’
Commonalities: The Needed Research Environment‘I’ll say the three points, and ideally, in the future, the data. Number one is more current data. Second is more restricted data. Even the health department’s data is two years behind. The third one is the data linkage. We have all the data pieces, but […] we can’t link together to see a comprehensive picture.’
Table 2

Data resources by category.

CATEGORYDATA SOURCE
Health DataBehavioral Risk Factor Surveillance System (BRFSS)
CDC Center for Injury Prevention
CDC WISQARS (Web-based Injury Statistics Query and Reporting System)
CDC WONDER
Michigan emergency department data (bought the data)
National Readmissions Database
National Trauma Database
TQIP (Trauma Quality Improvement Program)
UMC Trauma Center Data
Crime DataCJARS (Criminal Justice Administrative Records System)
Domestic Violence Surveillance (DSVS)
FBI Supplementary Homicide Reports
Gun Violence Archive
ICPSR Firearm Data Repository
NACJD (National Archive of Criminal Justice Data)
National Crime Victimization Survey (NCVS)
NIBRS (National Incident-Based Reporting System)
National Violent Deaths Reporting System
Police department data
Rapid Employment and Development Initiative (READI) Chicago
School Crime Supplement (SOC)
UCR (Uniform Crime Reporting Program)
Social and Demographic DataAmerican Community Survey
Add Health (National Longitudinal Study of Adolescent to Adult Health)
Childhood Opportunity Index
FACTS National Survey
FYI Study, Panel survey data
National Firearm Attitudes and Behaviors Study
NSCAW, National Survey of Child and Adolescent Wellbeing
Social Vulnerability Index
Youth Risk Behavior Surveillance System
Educational DataDepartment of Education’s data
Michigan Child Welfare System
Custom DataCreated own dataset
Court documents
Electronic Medical Records (from their hospital system to track admissions of gunshot injuries)
Local shelters, next of kin interviews
Police files, medical examiner data
Toxicology reports
News and Media DataAP News
Google
Newspapers
USA Today
Language: English
Page range: 30 - 30
Submitted on: May 27, 2025
Accepted on: Oct 20, 2025
Published on: Oct 31, 2025
Published by: Ubiquity Press
In partnership with: Paradigm Publishing Services
Publication frequency: 1 issue per year

© 2025 A. J. Million, Jenny Bossaller, Sanja Gidakovic, published by Ubiquity Press
This work is licensed under the Creative Commons Attribution 4.0 License.