Table 1
Associating Data Management and Sharing Plan Elements with Informatics Tools.
| DATA TYPE | DATA STANDARD | DATA PRESERVATION | DATA ACCESS AND SHARING | SERVICES AND TOOLS | OVERSIGHT OF DATA MANAGEMENT |
|---|---|---|---|---|---|
| TBI Patient clinical data, imaging data, bio-samples | FITBIR Common Data Elements, Data dictionaries | FITBIR repository, CSV files, DICOM images | Controlled access, DAC approvals needed, Meta-studies | BRICS service modules – GUID, ProFoRMS, FITBIR Repository, Query tool | DOD, CIT, and NINDS https://fitbir.nih.gov/ |
| PD Patient clinical data, imaging data, bio-samples, genomics data (VCF) | PDBP Common Data Elements, Data Dictionaries | PDBP repository, CSV files, DICOM images | Controlled access, DAC approvals needed, Meta-studies | BRICS service modules – GUID, ProFoRMS, PDBP repository, Query tool | CIT and NINDS https://pdbp.ninds.nih.gov/ |
| Eye disease clinical data, genomics data (processed) | NEI Common Data Elements, Data Dictionaries, LOINC data standards | NEI repository, CSV files, | Controlled access, DAC approvals needed, Meta-studies | BRICS service modules- GUID, ProFoRMS, NEI repository, Query tool | NEI and CIT https://eyegene.nih.gov |