References
- 1Bélanger, F and Crossler, RE. 2011. Privacy in the digital age: A review of information privacy research in information systems. MIS Quarterly 35(4): 1017–1041. DOI: 10.2307/41409971
- 2CEN. 2018. European Committee for Standardization. Retrieved April 17, 2018 from
https://www.cen.eu/Pages/default.aspx . - 3Cooper, D and Schindler, P. 2013. Business research methods, 12th Edition, McGraw Hill.
- 4Else, H. 2016. Half of academics confused about open data. Times Higher Education. Retrieved April 24, 2018
from https://www.timeshighereducation.com/news/half-academics-confused-about-open-data#?survey-answer . - 5Fecher, B, Friesike, S and Hebing, M. 2015. What Drives Academic Data Sharing? PLoS ONE 10(2):
e0118053 . DOI: 10.1371/journal.pone.0118053 - 6Grabus, S and Greenberg, J. 2018. Resources for understanding the data sharing landscape: Rights, licensing, and related initatives. Poster presented at the Research Data Alliance 11th Plenary Meeting. Berlin, Germany.
- 7Granville, K. 2018. Facebook and Cambridge Analytica: What You Need to Know as Fallout Widens. The New York Times. Retrieved June 12, 2018 from
https://www.nytimes.com/2018/03/19/technology/facebook-cambridge-analytica-explained.html . - 8Harding, A, Harper, B, Stone, D, O’Neill, C, Berger, P, Harris, S and Donatuto, J. 2012. Conducting research with tribal communities: Sovereignty, ethics, and data-sharing issues. Environmental Health Perspectives 120(1): 6–10. DOI: 10.1289/ehp.1103904
- 9ISO. 2018. International Organization for Standardization: When the world agrees. Retrieved April 20, 2018
from https://www.iso.org/home.html . - 10Janssen, M, Charalabidis, Y and Zuiderwijk, A. 2012. Benefits, Adoption Barriers and Myths of Open Data and Open Government. Information Systems Management 29(4): 258–268. DOI: 10.1080/10580530.2012.716740
- 11Jarnevich, CS, Graham, JJ, Newman, GJ, Crall, AW and Stohlgren, TJ. 2007. Balancing data sharing requirements for analyses with data sensitivity. Biological Invasions, 9(5): 597–599. DOI: 10.1007/s10530-006-9042-4
- 12Krippendorff, K. 2012. Content analysis: An introduction to its methodology (3rd ed.). Thousand Oaks, CA: Sage Publications.
- 13Liu, X, Li, X-B, Motiwalla, L, Li, W, Zheng, H and Franklin, PD. 2016. Preserving Patient Privacy When Sharing Same-Disease Data. Journal of Data and Information Quality 7(4): 1–14. DOI: 10.1145/2956554
- 14National Research Council. 1997.
Bits of power: Issues in global access to scientific data . Washington, DC: The National Academies Press. DOI: 10.17226/5504 - 15National Science and Technology Council (U.S.), Committee on Science, & National Science and Technology Council (U.S.) and Interagency Working Group on Digital Data. 2009. Harnessing the power of digital data for science and society: Report of the interagency working group on digital data to the committee on science of the national science and technology council. Washington, D.C.: Interagency Working Group on Digital Data.
- 16Oxenham, S. 2016. Legal confusion threatens to slow data science. Nature. Retrieved April 24, 2018 from
https://www.nature.com/news/legal-confusion-threatens-to-slow-data-science-1.20359 . DOI: 10.1038/536016a - 17Parrish, JL,
Jr. 2010. PAPA knows best: Principles for the ethical sharing of information on social networking sites. Ethics and Information Technology 12(2): 187–193. DOI: 10.1007/s10676-010-9219-5 - 18Rockhold, F, Nisen, P and Freeman, A. 2016. Data sharing at a crossroads. The New England Journal of Medicine 375(12): 1115–1117. DOI: 10.1056/NEJMp1608086
- 19Star, SL and Griesemer, JR. 1989. Institutional Ecology, ‘Translations’ and Boundary Objects: Amateurs and Professionals in Berkeley’s Museum of Vertebrate Zoology, 1907–39. Social Studies of Science 19(3): 387–420. DOI: 10.1177/030631289019003001
- 20Swarup, V, Seligman, L and Rosenthal, A. 2006. Specifying data sharing agreements. Proceedings – Seventh IEEE International Workshop on Policies for Distributed Systems and Networks, Policy 2006, 157–160. DOI: 10.1109/POLICY.2006.34
- 21Tenopir, C, Allard, S, Douglass, K, Aydinoglu, AU, Wu, L, Read, E, Frame, M, et al. 2011. Data sharing by scientists: Practices and perceptions. PLoS ONE 6(6): 1–22. DOI: 10.1371/journal.pone.0021101