Have a personal or library account? Click to login
DataSHIELD – New Directions and Dimensions Cover

References

  1. Avraam D Wilson R C davraam/DS_Graphics_Development: Prototyped ds.scatterPlot Zenodo 2017 10.5281/zenodo.321893
  2. Berg L P Vance J M Industry use of virtual reality in product design and manufacturing: a survey Virtual Reality 2016 10.1007/s10055-016-0293-9
  3. Boulton G Rawlins M Vallance P Walport M Science as a public enterprise: the case for open data The Lancet 2011 377 1633 1635 10.1016/S0140-6736(11)60647-8
  4. British Library Living Knowledge: The British Library 2015–2023 2015 Available at: https://www.bl.uk/projects/living-knowledge-the-british-library-2015-2023 [Last accessed 31st October 2016]
  5. Brown J Holmes J Syat B Lane K Lazarus R Platt R Proof-of-Principle Evaluation of a Distributed Research Network (No. 26), Effective Health Care Research Report 2010a Rockville, MD Agency for Healthcare Research and Quality Available at: https://effectivehealthcare.ahrq.gov/search-for-guides-reviews-and-reports/?pageaction=displayproduct&productid=464 [Last accessed 27th January 2017]
  6. Brown J Syat B Lane K Platt R Blueprint for a Distributed Research Network To Conduct Population Studies and Safety Surveillance (No. 27), Effective Health Care Research Report 2010b Rockville, MD Agency for Healthcare Research and Quality Available at: https://effectivehealthcare.ahrq.gov/search-for-guides-reviews-and-reports/?pageaction=displayproduct&productid=465 [Last accessed 27th January 2017]
  7. Budin-Ljøsne I Burton P Isaeva J Gaye A Turner A Murtagh M J Wallace S Ferretti V Harris J R DataSHIELD: An Ethically Robust Solution to Multiple-Site Individual-Level Data Analysis Public Health Genomics 2014 18 87 96 10.1159/000368959
  8. Burton P R Murtagh M J Boyd A Williams J B Dove E S Wallace S E Tassé A-M Little J Chisholm R L Gaye A Hveem K Brookes A J Goodwin P Fistein J Bobrow M Knoppers B M Data Safe Havens in health research and healthcare Bioinformatics 2015 31 3241 3248 10.1093/bioinformatics/btv279
  9. Butters O OllyButters/flatten-bl-xml v1.0 [Dataset] Zenodo 2016 10.5281/zenodo.163847
  10. Butters O W Issa S brisskit-uol/i2b2-opal v1.1 [Dataset] Zenodo 2016 10.5281/zenodo.163849
  11. Butters O W Issa S Lusted J Newbury M Parsloe R Holden N Free R C Beck T Wilson R C Burton P R Tedds J A The Biomedical Research Infrastructure Software as a Service Kit (BRISSKit): technical description [version 1; referees: 2 approved with reservations] F1000Research 2016 5 1905 10.12688/f1000research.8736.1
  12. Cai Y Zijlema W L Doiron D Blangiardo M Burton P R Fortier I Gaye A Gulliver J de Hoogh K Hveem K Mbatchou S Morley D W Stolk R P Elliott P Hansell A L Hodgson S Ambient air pollution, traffic noise and adult asthma prevalence: a BioSHaRE approach European Respiratory Journal 2016 10.1183/13993003.02127-2015 ERJ-02127-2015
  13. Carter K W Francis R W Bresnahan M Gissler M Grønborg T K Gross R Gunnes N Hammond G Hornig M Hultman C M Huttunen J Langridge A Leonard H Newman S Parner E T Petersson G Reichenberg A Sandin S Schendel D E Schalkwyk L Sourander A Steadman C Stoltenberg C Suominen A Surén P Susser E Sylvester Vethanayagam A Yusof Z ViPAR: a software platform for the Virtual Pooling and Analysis of Research Data International Journal of Epidemiology 2016 45 408 416 10.1093/ije/dyv193
  14. Coffey D Malbraaten N Le T Borazjani I Sotiropoulos F Keefe D F Slice WIM: a multi-surface, multi-touch interface for overview + detail exploration of volume datasets in virtual reality I3D ‘11 Symposium on Interactive 3D Graphics and Games February 18–20, 2011 2011 San Francisco, CA 191 198 10.1145/1944745.1944777
  15. Dehghan A Kovacevic A Karystianis G Keane J A Nenadic G Combining knowledge- and data-driven methods for de-identification of clinical narratives Journal of Biomedical Informatics 2015 58 S53 S59 10.1016/j.jbi.2015.06.029
  16. Doiron D Burton P Marcon Y Gaye A Wolffenbuttel B H R Perola M Stolk R P Foco L Minelli C Waldenberger M Holle R Kvaloy K Hillege H L Tassé A-M Ferretti V Fortier I Data harmonization and federated analysis of population-based studies: the BioSHaRE project Emerging Themes in Epidemiology 2013 10 12 10.1186/1742-7622-10-12
  17. Donalek C Djorgovski S G Cioc A Wang A Zhang J Lawler E Yeh S Mahabal A Graham M Drake A Davidoff S Norris J S Longo G Immersive and collaborative data visualization using virtual reality platforms 2014 IEEE International Conference on Big Data 27 – 30 October, 2014 2014 Washington DC 609 614 10.1109/BigData.2014.7004282
  18. Elliot M Mackey E O’Hara K Tudor C The Anonymisation Decision-Making Framework. UKAN 2016 Available at: http://ukanon.net/ukan-resources/ukan-decision-making-framework/ [Last accessed 31st October 2016]
  19. Feinerer I Hornik K Meyer D Text Mining Infrastructure in R Journal of Statistical Software 2008 25 10.18637/jss.v025.i05
  20. Ford D V Jones K H Verplancke J-P Lyons R A John G Brown G Brooks C J Thompson S Bodger O Couch T Leake K The SAIL Databank: building a national architecture for e-health research and evaluation BMC Health Services Research 2009 9 10.1186/1472-6963-9-157
  21. Fortier I Raina P Van den Heuvel E R Griffith L E Craig C Saliba M Doiron D Stolk R P Knoppers B M Ferretti V Granda P Burton P Maelstrom Research guidelines for rigorous retrospective data harmonization International Journal of Epidemiology 2016 10.1093/ije/dyw075 dyw075
  22. Gaye A Marcon Y Isaeva J LaFlamme P Turner A Jones E M Minion J Boyd A W Newby C J Nuotio M-L Wilson R Butters O Murtagh B Demir I Doiron D Giepmans L Wallace S E Budin-Ljøsne I Oliver Schmidt C Boffetta P Boniol M Bota M Carter K W deKlerk N Dibben C Francis R W Hiekkalinna T Hveem K Kvaloy K Millar S Perry I J Peters A Phillips C M Popham F Raab G Reischl E Sheehan N Waldenberger M Perola M van den Heuvel E Macleod J Knoppers B M Stolk R P Fortier I Harris J R Woffenbuttel B H Murtagh M J Ferretti V Burton P R DataSHIELD: taking the analysis to the data, not the data to the analysis International Journal of Epidemiology 2014 43 1929 1944 10.1093/ije/dyu188
  23. Howard M C A meta-analysis and systematic literature review of virtual reality rehabilitation programs Computers in Human Behavior 2017 70 317 327 10.1016/j.chb.2017.01.013
  24. Hundepool A Domingo-Ferrer J Franconi L Giessing S Nordholt E S Spicer K de Wolf P-R Statistical Disclosure Control 2012 Chichester, UK John Wiley & Sons, Ltd 10.1002/9781118348239
  25. Iruthayarajah J McIntyre A Cotoi A Macaluso S Teasell R The use of virtual reality for balance among individuals with chronic stroke: a systematic review and meta-analysis Topics in Stroke Rehabilitation 2017 24 68 79 10.1080/10749357.2016.1192361
  26. Jones E M Sheehan N A Gaye A Laflamme P Burton P Combined analysis of correlated data when data cannot be pooled: Combined analysis of correlated data Stat 2013 2 72 85 10.1002/sta4.19
  27. Jones E M Sheehan N A Masca N Wallace S E Murtagh M J Burton P R DataSHIELD – shared individual-level analysis without sharing the data: a biostatistical perspective Norsk Epidemiologi 2012 21 10.5324/nje.v21i2.1499
  28. Jones K H Ford D V Ellwood-Thompson S Lyons R A The UK Secure eResearch Platform for public health research: a case study The Lancet 2016 388 S62 10.1016/S0140-6736(16)32298-X
  29. Jones K H Ford D V Jones C Dsilva R Thompson S Brooks C J Heaven M L Thayer D S McNerney C L Lyons R A A case study of the Secure Anonymous Information Linkage (SAIL) Gateway: A privacy-protecting remote access system for health-related research and evaluation Journal of Biomedical Informatics 2014 50 196 204 10.1016/j.jbi.2014.01.003
  30. Kamel Boulos M N Lu Z Guerrero P Jennett C Steed A From urban planning and emergency training to Pokémon Go: applications of virtual reality GIS (VRGIS) and augmented reality GIS (ARGIS) in personal, public and environmental health International Journal of Health Geographies 2017 16 10.1186/s12942-017-0081-0
  31. Karr A F Reiter J P Using Statistics to Protect Privacy Privacy Big Data, and the Public Good: Frameworks for Engagement 2014 New York Cambridge University Press 10.1017/CBO9781107590205.017
  32. Kratz J Strasser C Data publication consensus and controversies [version 3; referees: 3 approved] F1000Research 2014 10.12688/f1000research.3979.3
  33. Lappalainen I Almeida-King J Kumanduri V Senf A Spalding J D ur-Rehman S Saunders G Kandasamy J Caccamo M Leinonen R Vaughan B Laurent T Rowland F Marin-Garcia P Barker J Jokinen P Torres A C de Argila J R Llobet O M Medina I Puy M S Alberich M de la Torre S Navarro A Paschall J Flicek P The European Genome-phenome Archive of human data consented for biomedical research Nature Genetics 2015 47 692 695 10.1038/ng.3312
  34. Lindsay Lady C B E Bertha’s Earl. A novel 1891 London R. Bentley and Son Digitsed copy available at: http://access.bl.uk/item/viewer/ark:/81055/vdc_0000000511E6 [Last accessed 28th February 2017]
  35. Lyons R A Jones K H John G Brooks C J Verplancke J-P Ford D V Brown G Leake K The SAIL databank: linking multiple health and social care datasets BMC Medical Informatics and Decision Making 2009 9 10.1186/1472-6947-9-3
  36. McGready R Kang J Watts I Tyrosvoutis M E G Torchinsky M B Htut A M Tun N W Keereecharoen L Wangsing C Hanboonkunupakarn B Nosten F H Audit of antenatal screening for syphilis and HIV in migrant and refugee women on the Thai-Myanmar border: a descriptive study [version 2; referees: 2 approved] F1000Research 2015 10.12688/f1000research.4190.2
  37. Meystre S M Friedlin F J South B R Shen S Samore M H Automatic de-identification of textual documents in the electronic health record: a review of recent research BMC Medical Research Methodology 2010 10 10.1186/1471-2288-10-70
  38. Miwa M Thompson P McNaught J Kell D B Ananiadou S Extracting semantically enriched events from biomedical literature BMC Bioinformatics 2012 13 108 10.1186/1471-2105-13-108
  39. Murtagh M J Demir I Jenkings K N Wallace S E Murtagh B Boniol M Bota M Laflamme P Boffetta P Ferretti V Burton P R Securing the Data Economy: Translating Privacy and Enacting Security in the Development of DataSHIELD Public Health Genomics 2012 15 243 253 10.1159/000336673
  40. Murtagh M J Turner A Minion J T Fay M Burton P R International Data Sharing in Practice: New Technologies Meet Old Governance Biopreservation and Biobanking 2016 14 231 240 10.1089/bio.2016.0002
  41. Narasimhan B Rubin D L Gross S M Bendersky M Lavori P W Software for Distributed Computation on Medical Databases: A Demonstration Project ArXiv e-prints 2017 arXiv: 1412.6890v2 [stat.CO], Available at: https://arxiv.org/abs/1412.6890v2 [Last accessed 18th February 2017]
  42. Ohno-Machado L Bafna V Boxwala A A Chapman B E Chapman W W Chaudhuri K Day M E Farcas C Heintzman N D Jiang X Kim H Kim J Matheny M E Resnic F S Vinterbo S A the iDASH team iDASH: integrating data for analysis, anonymization, and sharing Journal of the American Medical Informatics Association 2012 19 196 201 10.1136/amiajnl-2011-000538
  43. Olshannikova E Ometov A Koucheryavy Y Olsson T Visualizing Big Data with augmented and virtual reality: challenges and research agenda Journal of Big Data 2015 2 10.1186/s40537-015-0031-2
  44. Paynter R Bañez L L Berliner E Erinoff E Lege-Matsuura J Potter S Uhl S EPC Methods: An Exploration of the Use of Text-Mining Software in Systematic Reviews 2016 Rockville (MD) AHRQ Methods for Effective Health Care. Agency for Healthcare Research and Quality (US) PMID: 27195359. Available from https://www.ncbi.nlm.nih.gov/books/NBK362044/ [Last accessed 21st February 2017]
  45. Platt R Carnahan R The U.S. Food and Drug Administration’s Mini-Sentinel Program Pharmacoepidemiology and Drug Safety 2012 21 1 303 10.1002/pds.3230
  46. Power C Elliot J Cohort profile: 1958 British birth cohort (National Child Development Study) International Journal of Epidemiology 2005 35 34 41 10.1093/ije/dyi183
  47. Rak R Rowley A Black W Ananiadou S Argo: an integrative, interactive, text mining-based workbench supporting curation Database 2012 10.1093/database/bas010
  48. R Core Team R: A language and environment for statistical computing [Internet] 2015 Vienna, Austria R Foundation for Statistical Computing Available at: http://www.r-project.org. [Last accessed 27th October 2016.]
  49. Ross J S Krumholz H M Ushering in a New Era of Open Science Through Data Sharing: The Wall Must Come Down JAMA 2013 309 1355 10.1001/jama.2013.1299
  50. Sastry L Boyd D R S Virtual environments for engineering applications Virtual Reality 1998 3 235 244 10.1007/BF01408704
  51. Schendel D E Bresnahan M Carter K W Francis R W Gissler M Gronborg T K Gross R Gunnes N Hornig M Hultman C M Langridge A Lauritsen M B Leonard H Parner E T Reichenberg A Sandin S Sourander A Stoltenberg C Suominen A Surén P Susser E The International Collaboration for Autism Registry Epidemiology (iCARE): Multinational Registry-Based Investigations of Autism Risk Factors and Trends Journal of Autism and Developmental Disorders 2013 43 2650 2663 10.1007/s10803-013-1815-x
  52. Seth A Vance J M Oliver J H Virtual reality for assembly methods prototyping: a review Virtual Reality 2011 15 5 20 10.1007/s10055-009-0153-y
  53. SHIP SHIP: A Blueprint for Health Records Research in Scotland 2012 Available at: http://www.scotship.ac.uk/sites/default/files/Reports/SHIP_BLUEPRINT_DOCUMENT_final_100712.pdf [Last accessed 27th February 2017]
  54. Shlomo N Gkoulalas-Divanis A Loukides G Statistical Disclosure Limitation for Health Data: A Statistical Agency Perspective Medical Data Privacy Handbook 2015 Cham Springer International Publishing 201 230 10.1007/978-3-319-23633-9_9
  55. Sudlow C Gallacher J Allen N Beral V Burton P Danesh J Downey P Elliott P Green J Landray M Liu B Matthews P Ong G Pell J Silman A Young A Sprosen T Peakman T Collins R UK Biobank: An Open Access Resource for Identifying the Causes of a Wide Range of Complex Diseases of Middle and Old Age PLOS Medicine 2015 12 e1001779 10.1371/journal.pmed.1001779
  56. Suissa S Henry D Caetano P Dormuth C R Ernst P Hemmelgarn B Lelorier J Levy A Martens P J Paterson J M Platt R W Sketris I Teare G Canadian Network for Observational Drug Effect Studies (CNODES) CNODES: the Canadian Network for Observational Drug Effect Studies Open Med 2012 6 e134 140 PM ID: 23687528
  57. Sweeney L k-anonymity: a model for protecting privacy International Journal of Uncertainty, Fuzziness and Knowledge-Based Systems 2002 10 557 570 10.1142/S0218488502001648
  58. Wallace S E Gaye A Shoush O Burton P R Protecting Personal Data in Epidemiological Research: DataSHIELD and UK Law Public Health Genomics 2014 17 149 157 10.1159/000360255
  59. Wilson R C Burton P R JISC Research Data Spring Project 3.8 (AMASED) Figshare 2015a 10.6084/m9.figshare.1319503.v4
  60. Wilson R C Burton P R AMASED Second Phase (Jisc Data Spring Sandpit 2) Figshare 2015b 10.6084/m9.figshare.1480941.v6
  61. Wolfson M Wallace S E Masca N Rowe G Sheehan N A Ferretti V LaFlamme P Tobin M D Macleod J Little J Fortier I Knoppers B M Burton P R DataSHIELD: resolving a conflict in contemporary bioscience—performing a pooled analysis of individual-level data without sharing the data International Journal of Epidemiology 2010 39 1372 1382 10.6084/10.1093/ije/dyq111
  62. Wu X Kumar V Quinlan J R Ghosh J Yang Q Motoda H McLachlan G J Ng A Liu B Yu P S Zhou Z-H Steinbach M Hand D J Steinberg D Top 10 algorithms in data mining Knowledge and Information Systems 2008 14 1 37 10.1007/s10115-007-0114-2
  63. Yuan M Chen L Yu P S Mei H Privacy preserving graph publication in a distributed environment World Wide Web 2015 18 1481 1517 10.1007/s11280-014-0290-4
  64. Zhou J Cao Z Dong X Lin X PPDM: A Privacy-Preserving Protocol for Cloud-Assisted e-Healthcare Systems IEEE Journal of Selected Topics in Signal Processing 2015 9 1332 1344 10.1109/JSTSP.2015.2427113
  65. Zijlema W Cai Y Doiron D Mbatchou S Fortier I Gulliver J de Hoogh K Morley D Hodgson S Elliott P Key T Kongsgard H Hveem K Gaye A Burton P Hansell A Stolk R Rosmalen J Road traffic noise, blood pressure and heart rate: Pooled analyses of harmonized data from 88,336 participants Environmental Research 2016 151 804 813 10.1016/j.envres.2016.09.014
Language: English
Submitted on: Oct 31, 2016
|
Accepted on: Apr 5, 2017
|
Published on: Apr 19, 2017
Published by: Ubiquity Press
In partnership with: Paradigm Publishing Services
Publication frequency: 1 issue per year

© 2017 Rebecca C. Wilson, Oliver W. Butters, Demetris Avraam, James Baker, Jonathan A. Tedds, Andrew Turner, Madeleine Murtagh, Paul R. Burton, published by Ubiquity Press
This work is licensed under the Creative Commons Attribution 4.0 License.