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Sense of School Belonging and Paediatric Illness: A Scoping Review Cover

Sense of School Belonging and Paediatric Illness: A Scoping Review

Open Access
|Oct 2021

Figures & Tables

cie-2-1-32-g1.png
Figure 1

PRISMA Diagram.

Note: Adapted from Moher et al., 2009.

Table 1

Articles Included in the Systematic Review and Descriptions.

ARTICLEJOURNALCOUNTRYMETHODDISEASESAMPLE DESCRIPTION
Branch-Smith, C., Shaw, T., Lin, A., Runions, K., Payne, D., Nguyen, R., Hugo, H., Balding, L., & Cross, D. (2018). Bullying and mental health amongst Australian children and young people with cystic fibrosis. American Journal of Orthopsychiatry, 88(4), 402–412. Scopus. https://doi.org/10.1037/ort0000289.American Journal of OrthopsychiatryAustraliaQuestionnaires
Online focus group
Cystic fibrosisN = 26 patients (aged 10–16)
57.7% females, 42.3% males
Ellis, S. J., Drew, D., Wakefield, C. E., Saikal, S. L., Punch, D., & Cohn, R. J. (2013). Results of a nurse-led intervention: connecting pediatric cancer patients from the hospital to the school using videoconferencing technologies. Journal of Pediatric Oncology Nursing, 30(6), 333–341.Journal of Pediatric Oncology NursingAustraliaSemi-structured interviewsNon-specified cancerN = 3 patients (aged 8–13)
66.7% females, 33.3% males
Hopkins, L., Wadley, G., Vetere, F., Fong, M., & Green, J. (2014). Utilising technology to connect the hospital and the classroom: Maintaining connections using tablet computers and a ‘Presence’ app. Australian Journal of Education, 58(3), 278–296. Education Source.Australian Journal of EducationAustraliaQuestionnaires
App/web analysis
Semi-structured interviews
Metabolic disease (N = 2), cancer (N = 5), cystic fibrosis (N = 2)N = 9 patients (aged 7–12)
55.6% females, 44.4% males
Lombaert, E., Veevaete, P., Schuurman, D., Hauttekeete, L., & Valcke, M. (2006). A special tool for special children: Creating an ICT tool to fulfil the educational and social needs of long-term or chronic sick children. Current Developments in Technology-Assisted Education, 2, 1075–1080.Current Developments in Technology-Assisted EducationBelgiumSemi-structured interviewsNot specifiedN = 7 patients (aged 8–12)
Unspecified gender
Maor, D., & Mitchem, K. (2020). Hospitalized Adolescents’ Use of Mobile Technologies for Learning, Communication, and Well-Being. Journal of Adolescent Research, 35(2), 225–247. https://doi.org/10.1177/0743558417753953Journal of Adolescent ResearchAustraliaIn-depth interviewsNon-specified diseaseN = 18 patients (aged 12–18)
Unspecified gender
Vetere, F., Green, J., Nisselle, A., Dang, X. T., Zazryn, T., & Deng, P. P. (2012). Inclusion during school absence: Using ambient technology to create a classroom presence for hospitalised children. Telecommunications Journal of Australia, 62. Retrieved from http://doi.org/10.7790/tja.v62i5.353Telecommunications Journal of AustraliaAustraliaApp/web analysis
Systematic observation
Focus group
Semi-structured interviews
Non-specified diseaseN = 4 patients (aged 9–10)
75% females, 25% males
Weibel, M., Nielsen, M. K. F., Topperzer, M. K., Hammer, N. M., Møller, S. W., Schmiegelow, K., & Bækgaard Larsen, H. (2020). Back to school with telepresence robot technology: A qualitative pilot study about how telepresence robots help school-aged children and adolescents with cancer to remain socially and academically connected with their school classes during treatment. Nursing Open. https://doi.org/10.1002/nop2.471Nursing OpenDenmarkParticipated observation
Focus group
Semi-structured interviews
CancerN = 3 (school age, not clearly specified)
Weiss, P. L. T., Whiteley, C. P., Treviranus, J., & Fels, D. I. (2001). PEBBLES: A personal technology for meeting educational, social and emotional needs of hospitalised children. Personal and Ubiquitous Computing, 5(3), 157–168.Personal and Ubiquitous ComputingCanadaApp/web analysisChronic kidney diseaseN = 1 (case study)
Zhu, C., & Van Winkel, L. (2015). Using an ICT tool as a solution for the educational and social needs of long-term sick adolescents. Technology, Pedagogy and Education, 24, 231–245. doi:10.1080/1475939X.2013.856339Technology, Pedagogy and EducationBelgiumQuestionnaires
Semi-structured interviews
Non-specified disease reported for 56 students participating in quantitative research; 8 children participating in qualitative research with: fibromyalgia (N = 1), vascular problems (N = 1), Hodgkin lymphoma (N = 1), transplant (N = 1), depressive symptoms (N = 1), autoimmune disease (N = 1), other non-specified pathologies (N = 2)N = 56 patients participating in the quantitative part of the study (aged 12–19)
N = 8 participants of the qualitative part (aged 12–19)
64% females, 36% males
Zhu, C., & Van Winkel, L. (2016). A virtual learning environment for the continuation of education and its relationship with the mental well-being of chronically ill adolescents. Educational Psychology, 36(8), 1429–1442.Educational PsychologyBelgiumQuestionnaires
In-depth interview
Non-specified diseaseN = 28 (aged 10–18)68% males, 64% females
Table 2

Keywords Used for Indexing.

ARTICLEARTICLE KEYWORDS
Branch-Smith et al., 2018Adolescents; bullying; children; chronic condition; cystic fibrosis
Ellis et al., 2013Psychology; pediatric oncology; social networking; intervention studies; education
Hopkins et al., 2014Chronic illness; primary school students; student engagement; information and communication technology in education; tablet computers; attendance
Lombaert et al., 2006Special educational needs; computer-assisted learning
Maor & Mitchem, 2020Hospitalized adolescents; mobile technologies; learning; communication; well-being
Vetere et al., 2012Schools; child; chronic illness
Weibel et al., 2020Cancer; childhood illness; education; school nursing; technology
Weiss et al., 2001Hospitalised children; personal technology; telepresence; video-conferencing
Zhu & Van Winkel, 2015ICT tool; educational needs; social needs; long-term sick adolescents
Zhu & Van Winkel, 2016Virtual learning environment; educational needs; social needs; mental well-being; chronically sick adolescents
cie-2-1-32-g2.png
Figure 2

Children With a Medical Condition and SoSB: Correlated Dimensions, Emotions, and Cognitions.

Table 3

Description of the Projects in the Articles.

ARTICLE
Ellis et al. (2013)Connectivity Project
The Connectivity Project was conducted at the Sydney Children’s Hospital (Australia); it had a variable duration and structure. Sometimes, the children participated for a few days, at other times for a few months if the pathology forced them to stay in the hospital for long periods. The connection sessions lasted approximately one hour. The programme allowed children with a medical condition to connect with school or with their homes. The aim of the programme was to improve the connections between the children’s various contexts (hospital, home, school).
Hopkins et al. (2014)Presence App
This app enables patients, family members, and classmates to connect with each other. It allows taking, archiving, and sharing photographs; it is also possible to send symbolic “messages” using colour as a vehicle. This means that the participants (e.g., the child with a medical condition) can decide to “colour” the app orange or blue, and all those connected would see the interface change colour. The purpose is to foster the sense of “presence” of the child admitted to the class where the device is inserted. Through the app, the child can see which lessons his or her classmates are following at school. The Presence app was inspired by the Ambient Orb proposed in other studies (see Vetere et al., 2012). Unlike the Ambient Orb, however, the Presence app is bidirectional: It not only allows the child to communicate with the class, but also allows the class to communicate with the child.
Vetere et al. (2012)Ambient Orb
The technological connection environment consists of a sort of “sphere” with a human-like face and a LED inside that allows the sphere to change colour. The sphere, which was inserted in each class of the pupil with a medical condition, does not allow a great deal of interaction (photos, audio, video). Each sphere had a wireless connection to a nearby laptop. The child in the hospital could use a computer to check the colour of the sphere placed in the classroom in order to signal his or her presence to classmates and teachers. This was the only function of the tool.
Weibel et al. (2020)AV1, No-Isolation
AV1, built by No-Isolation, is a robot connected to an app that can be accessed by phone; the device was designed to connect children with cancer with their class.
Weiss et al. (2001)P.E.B.B.L.E.S
PEBBLES (Providing Education By Bringing Learning Environments to Students) is a video-conferencing device designed to connect pupils with a medical condition to their regular school. Part of the PEBBLES system was set up in the classroom and part in the child’s ward; in the classroom, the device was supported by a robot so that it could be moved easily if the classmates moved (e.g., from one classroom to another one). PEBBLES allows children to share images and audio by video-conferencing, so that they can follow the lessons. In the study, PEBBLES was used three times a week during the morning with one child. Both the pupil in the hospital and the class started lessons in sync at 9.00 a.m.; the child was accompanied by the hospital teacher for the whole period that PEBBLES was used.
Zhu & Van Winkel (2015)BEDNET
The participants used remote connection tools for three months up to three years, in the case of long-term hospitalized children. A device made available by Bednet VSW was used; the device made it possible to connect the hospitalized pupil to the school. It was a bidirectional device with synchronous audio/video in order to allow the connection in “presence” mode between the pupil with medical condition and the classroom. It consisted of various components: a webcam, a blackboard, a sound button (to report something to the class), a drive (to post photos, images, documents), a document scanner and a class agenda (a sort of electronic register). This tool allowed pupils with chronic health issues to follow the lesson, raise their hands, answer questions, ask the teacher for attention, take pictures on the blackboard, etc., in sync with what the class was doing.
Zhu & Van Winkel (2016)Virtual Learning Environment
A virtual learning environment (VLE) was created allowing synchronous communication between the pupil with a medical condition and the other members of the class. The VLE offered various functions: a virtual whiteboard, a virtual library, buttons to request attention, a webcam, a scanner, and the ability to send documents and share photos.
DOI: https://doi.org/10.5334/cie.32 | Journal eISSN: 2631-9179
Language: English
Submitted on: Dec 28, 2020
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Accepted on: Jun 28, 2021
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Published on: Oct 15, 2021
Published by: Ubiquity Press
In partnership with: Paradigm Publishing Services
Publication frequency: 1 issue per year

© 2021 Lucrezia Tomberli, Enrica Ciucci, published by Ubiquity Press
This work is licensed under the Creative Commons Attribution 4.0 License.