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Growing Up with Haemophilia: Quality of Life and School Functioning of a Group of Mexican Adolescents Cover

Growing Up with Haemophilia: Quality of Life and School Functioning of a Group of Mexican Adolescents

Open Access
|Mar 2025

Figures & Tables

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Figure 1

The Resources/Challenges Model (Hendry & Kloep, 2002).

Table 1

Family Composition and Patient’s Caregiver.

TYPE OF FAMILYFREQUENCYPERCENTAGE
Extended1424.60
Single-parent11.80
Nuclear4070.20
Three generations23.50
CAREGIVERFREQUENCYPERCENTAGE
Grandmother11.80
Sister11.80
Mother5087.50
Father35.40
Aunt23.60
Table 2

Perceived Social Support.

AVERAGESTANDARD DEVIATION
Support from family9.54391.01893
Support from friends7.68422.51537
Support from haematologist9.33331.49204
Table 3

Percentage of Evaluation of the PedsQL Scales.

SCALESCLASSIFICATION%
Physical healthHigh risk0
At risk14.0
No risk86.0
Psychosocial healthHigh risk0
At risk47.4
No risk52.6
Emotional healthHigh risk0
At risk45.6
No risk54.4
Social relationsHigh risk3.5
At risk22.8
No risk73.7
Academic functioningHigh risk14.0
At risk50.9
No risk35.1
Total HRQoLHigh risk0
At risk27.3
No risk72.7
DOI: https://doi.org/10.5334/cie.148 | Journal eISSN: 2631-9179
Language: English
Submitted on: Jul 16, 2024
|
Accepted on: Dec 25, 2024
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Published on: Mar 21, 2025
Published by: Ubiquity Press
In partnership with: Paradigm Publishing Services
Publication frequency: 1 issue per year

© 2025 Maricela Osorio-Guzmán, Carlos Prado-Romero, Santa Parrello, published by Ubiquity Press
This work is licensed under the Creative Commons Attribution 4.0 License.