References
- Adams, S. C., Herman, J., Lega, I. C., Mitchell, L., Hodgson, D., Edelstein, K., Travis, L. B., Sabiston, C. M., Thavendiranathan, P., & Gupta, A. A. (2020). Young Adult Cancer Survivorship: Recommendations for Patient Follow-up, Exercise Therapy, and Research. JNCI Cancer Spectrum, 5(1). 10.1093/jncics/pkaa099
- Brand, S., Wolfe, J., & Samsel, C. (2017). The Impact of Cancer and its Treatment on the Growth and Development of the Pediatric Patient. Curr Pediatr Rev, 13(1), 24–33. 10.2174/1573396313666161116094916
- Bruce, B. S., Newcombe, J., & Chapman, A. (2012). School Liaison Program for Children With Brain Tumors. Journal of pediatric oncology nursing, 29(1), 45–54. 10.1177/1043454211432296
- Canadian Cancer Society. (2024). Cognitive Problems. Retrieved January 25 from
https://cancer.ca/en/treatments/side-effects/cognitive-problems - Capurso, M., & Dennis, J. L. (2017). Key Educational Factors in the education of students with a medical condition. Support for learning, 32(2), 158–179. 10.1111/1467-9604.12156
- Carey, L., Legg, M., Cannon, A., Lance, E., Thornton, C. P., Ruble, K., & Jacobson, L. (2023). Supporting Mutual Understanding of Special Education Other Health Impairment Eligibility.
- CEC. (2023). Special Education Canada. Council for Exceptional Children. Retrieved Jan 25 from
https://ontario.exceptionalchildren.org/special-education-canada - Cheung, L. L. T., Wakefield, C. E., Ellis, S. J., Mandalis, A., Frow, E., & Cohn, R. J. (2014). Neuropsychology reports for childhood brain tumor survivors: Implementation of recommendations at home and school. Pediatric blood & cancer, 61(6), 1080–1087. 10.1002/pbc.24940
- CHS. (2023). The Rights of Children and Young People with Health Conditions to School Age Education and Healthcare in School: Position Statement.
https://www.childrenshealthscotland.org/wp-content/uploads/2023/01/230119-The-Rights-of-CYP-with-health-conditions-to-school-age-education-and-healthcare-in-school.pdf - Community Law. (2021). Education: Access and Learning Support for Disabled and Deaf Students.
- Department for Education, D. o. H. a. S. C. (2015). SEND Code of Practice. UK Government.
- Department of Education. (2015). Special educational needs and disability code of practice: 0 to 25 years. United Kingdom Retrieved from
https://assets.publishing.service.gov.uk/media/5a7dcb85ed915d2ac884d995/SEND_Code_of_Practice_January_2015.pdf - Department of Health. (2015). Supporting Pupils at School with Medical Conditions. United Kingdom: UK Government Retrieved from
https://assets.publishing.service.gov.uk/media/5ce6a72e40f0b620a103bd53/supporting-pupils-at-school-with-medical-conditions.pdf - Devine, K. A., Christen, S., Mulder, R. L., Brown, M. C., Ingerski, L. M., Mader, L., Potter, E. J., Sleurs, C., Viola, A. S., Waern, S., Constine, L. S., Hudson, M. M., Kremer, L. C. M., Skinner, R., Michel, G., Gilleland Marchak, J., Schulte, F. S. M., Int Guidelines Harmonization Grp, P., International Guidelines Harmonization Group Psychological Late Effects, G., & for the International Guidelines Harmonization Group Psychological Late Effects, G. (2022). Recommendations for the surveillance of education and employment outcomes in survivors of childhood, adolescent, and young adult cancer: A report from the International Late Effects of Childhood Cancer Guideline Harmonization Group. Cancer, 128(13), 2405–2419. 10.1002/cncr.34215
- Dickson, E. (2022). Barriers to inclusion embedded in the Disability Discrimination Act 1992 (Cth). The Australian journal of education, 66(3), 265–280. 10.1177/00049441221127708
- Dombrowski, S. C. (2020).
Other Health Impaired . Psychoeducational Assessment and Report Writing (pp. 413–431). Springer, Cham. 10.1007/978-3-030-44641-3_16 - Donnan, B. M., Webster, T., Wakefield, C. E., Dalla-Pozza, L., Alvaro, F., Lavoipierre, J., & Marshall, G. M. (2015). What About School? Educational Challenges for Children and Adolescents With Cancer. The Australian educational and developmental psychologist, 32(1), 23–40. 10.1017/edp.2015.9
- Erdmann, F., Frederiksen, L. E., Bonaventure, A., Mader, L., Hasle, H., Robison, L. L., & Winther, J. F. (2021). Childhood cancer: Survival, treatment modalities, late effects and improvements over time. Cancer epidemiology, 71(Pt B), 101733–101733. 10.1016/j.canep.2020.101733
- GBD. (2019). Global Burden of Disease.
- Government of Australia. (1992). Disability Discrimination Act.
- Government of Australia. (2014). Disability Standards for Education. Australia Retrieved from
https://www.education.gov.au/disability-standards-education-2005/resources/fact-sheet-2-disability-standards-education-2005 - Government of Canada. (1981). Charter of Rights and Freedoms.
- Government of Canada. (2023). Special Education in Ontario Kindergarten to Grade 12 Policy and Resource Guide. Canada: Government of Canada Retrieved from
https://www.ontario.ca/document/special-education-ontario-policy-and-resource-guide-kindergarten-grade-12 - Government of Ireland. (2000). Equal Status Act. Retrieved from
https://www.irishstatutebook.ie/eli/2000/act/8/enacted/en/html - Government of Ireland. (2004). Education of Persons with Special Educational Needs (EPSEN) Act. Retrieved from
https://www.irishstatutebook.ie/eli/2004/act/30/enacted/en/html - Government of Northern Ireland. (1998). Code of practice on the identification and assessment of special educational needs. Northern Ireland Retrieved from
https://www.education-ni.gov.uk/sites/default/files/publications/de/the-code-of-practice.pdf - Government of Northern Ireland. (2005). The Special Educational Needs and Disability Northern Ireland) Order (SENDO). Retrieved from
https://www.legislation.gov.uk/nisi/2005/1117/contents - Government of Northern Ireland. (2016). Special Educational Needs and Disability Act (Northern Ireland). Retrieved from
https://www.legislation.gov.uk/nia/2016/8/contents - Government of Ontario. (1990). Education Act.
- Government of Scotland. (2016). Education (Scotland) Act. Retrieved from
https://www.legislation.gov.uk/asp/2016/8/contents/enacted - Government of Scotland. (2017a). Additional Support for Learning: Statutory Guidance. Retrieved from
https://www.gov.scot/publications/supporting-childrens-learning-statutory-guidance-education-additional-support-learning-scotland/ - Government of Scotland. (2017b). Supporting children and young people with healthcare needs in schools Guidance for NHS boards, education authorities and schools. Retrieved from
https://www.gov.scot/binaries/content/documents/govscot/publications/advice-and-guidance/2017/12/supporting-children-young-people-healthcare-needs-schools/documents/00529511-pdf/00529511-pdf/govscot%3Adocument/00529511.pdf - Government of Wales. (2017). Supporting learners with healthcare needs.
- Government of Wales. (2021a). Additional Learning Needs and Education Tribunal (Wales) Act. Retrieved from
https://www.gov.wales/additional-learning-needs-and-education-tribunal-wales-act - Government of Wales. (2021b). The Additional Needs of Learning Codes for Wales. Retrieved from
https://www.gov.wales/additional-learning-needs-code - HSE. (2023). National Model of Care (MoC) for Psycho-Oncology Services for Children, Adolescents and Young Adults (CAYA) with Cancer and their families in Ireland. Retrieved from
https://www.hse.ie/eng/services/list/5/cancer/profinfo/psycho-oncology-programme/caya-psycho-oncology-model-of-care.pdf - Jacobson, L. A., Paré-Blagoev, E. J., & Ruble, K. (2020). Barriers to Schooling in Survivorship: The Role of Neuropsychological Assessment. JCO Oncol Pract, 16(12), e1516–e1523. 10.1200/op.20.00549
- Kearney, A. (2016). The right to education: What is happening for disabled students in New Zealand? DIsability Studies Quarerly, 36. 10.18061/dsq.v36i1.4278
- LDAO. (2003). A Parent’s Guide to Special Education in Ontario. Learning Disabilities Association of Ontario.
https://www.ldao.ca/wp-content/uploads/A-Parents-Guide-to-Special-Education.pdf - Li, L., Wang, L., Duan, Y., Xiao, P., Zhou, Y., Luo, X., Liu, X., Xie, J., & Cheng, A. S. K. (2023). Intelligent physical activity versus modified behavioral activation in adolescent and young adult cancer patients with psychological distress: A randomized, controlled pilot trial. Cancer medicine (Malden, MA), 12(2), 1935–1948. 10.1002/cam4.5030
- Lum, A., Wakefield, C. E., Donnan, B., Burns, M. A., Fardell, J. E., Jaffe, A., Kasparian, N. A., Kennedy, S. E., Leach, S. T., Lemberg, D. A., & Marshall, G. M. (2019). School Students With Chronic Illness Have Unmet Academic, Social, and Emotional School Needs. School psychology, 34(6), 627–636. 10.1037/spq0000311
- Marchak, J. G., Christen, S., Mulder, R. L., Baust, K., Blom, J. M. C., Brinkman, T. M., Elens, I., Harju, E., Kadan-Lottick, N. S., Khor, J. W. T., Lemiere, J., Recklitis, C. J., Wakefield, C. E., Wiener, L., Constine, L. S., Hudson, M. M., Kremer, L. C. M., Skinner, R., Vetsch, J., … Ida, K. (2022). Recommendations for the surveillance of mental health problems in childhood, adolescent, and young adult cancer survivors: a report from the International Late Effects of Childhood Cancer Guideline Harmonization Group. The lancet oncology, 23(4), e184–e196. 10.1016/S1470-2045(21)00750-6
- Martinez-Santos, A. E., Fernandez-De-La-Iglesia, J. d. C., Sheaf, G., & Coyne, I. (2021). A systematic review of the educational experiences and needs of children with cancer returning to school. Journal of advanced nursing, 77(7), 2971–2994. 10.1111/jan.14784
- McLoone, J. K., Wakefield, C. E., & Cohn, R. J. (2013). Childhood cancer survivors’ school (re)entry: Australian parents’ perceptions. European Journal of Cancer Care, 22(4), 484–492. 10.1111/ecc.12054
- NCCD. (2022). Definitions of disability and the NCCD categories: What is disability as defined by the Disability Discrimination Act of 1992? Australia: Education Services Australia Retrieved from
https://www.nccd.edu.au/wider-support-materials/definitions-disability-and-nccd-categories - NCCP. (2021). Framework for the Care and Support of Adolescents and Young Adults (AYA) with Cancer in Ireland 2021–2026. Government of Ireland
- NCCP. (2022a). Child, Adolescent and Young Adult (CAYA) Cancer Annual Report. Ireland: Department of Health Retrieved from
https://www.hse.ie/eng/services/publications/caya-annual-report-2022.pdf - NCCP. (2022b). NCCP Child, Adolescent and Young Adult (CAYA) Cancer Annual Report. Government of Ireland.
- NCSE. (2004). An Inclusive Education for an Inclusive Society. Retrieved from
https://ncse.ie/wp-content/uploads/2024/05/An_Inclusive_Education_for_an_Inclusive_Society_NCSE_Policy_Advice_Paper_7.pdf - Northern Ireland Orders in Council. (1996). The Education (Northern Ireland) Order. Retrieved from
https://www.legislation.gov.uk/nisi/1996/274/contents/made - Pini, S., Gardner, P., & Hugh-Jones, S. (2016). How teenagers continue school after a diagnosis of cancer: experiences of young people and recommendations for practice. Future oncology (London, England), 12(24), 2785–2800. 10.2217/fon-2016-0074
- Plage, S., Kuskoff, E., Hoang, N.-P., & Povey, J. (2022). Educational participation of primary school children with cancer from a Life Course perspective: A critical review of the literature. International journal of educational research, 114,
101990 . 10.1016/j.ijer.2022.101990 - Ruble, K., Carey, L. B., Paré-Blagoev, J. E., Thornton, C. P., Northrup, R. A., Northman, L., Hayashi, R. J., Paltin, I., Foster, R., Greenzang, K., Hobbie, W. L., & Jacobson, L. A. (2023). Communicating neurocognitive impacts of childhood cancer: Engaging stakeholders to identify research priorities. Patient education and counseling, 116, 107935–107935. 10.1016/j.pec.2023.107935
- Shi, Q., Zheng, J., & Liu, K. (2022). Supervised Exercise Interventions in Childhood Cancer Survivors: A Systematic Review and Meta-Analysis of Randomized Controlled Trials. Children (Basel), 9(6). 10.3390/children9060824
- Sokal, L., & Katz, J. (2020). Inclusive and Special Education in Canada and the United States. In Oxford Research Encyclopedia of Education. 10.1093/acrefore/9780190264093.013.1023
- Thornton, C. P., Henegan, S., Carey, L. B., Milla, K., Cork, K., Cooper, S. L., Jacobson, L. A., Ruble, K., & Paré-Blagoev, E. J. (2022). Addressing Schooling in Children With Cancer—It’s Everybody’s Job, So It’s Nobody’s Job: An Explanatory Mixed-Methods Evaluation. Journal of pediatric hematology/oncology nursing, 39(4), 221–230. 10.1177/27527530211073295
- UK Government. (2001). The Special Educational Needs and Disability (SEND) Act. Retrieved from
https://www.legislation.gov.uk/uksi/2001/2217/contents/made - UK Government. (2010). The Equality Act. Retrieved from
https://www.legislation.gov.uk/ukpga/2010/15/contents - UK Government. (2014a). The Child and Families (CAFA) Act. Retrieved from
https://www.legislation.gov.uk/ukpga/2014/6/contents/enacted - UK Government. (2014b). The Special Educational Needs and Disability (SEND) Regulations. Retrieved from
https://www.legislation.gov.uk/uksi/2014/1530/contents/made - United States Congress. (2004). Individuals with Disabilities Education Act (IDEA).
- U.S. Department of Education. (2004). Individuals with Disabilities Education Act. Retrieved from
https://www.ed.gov/laws-and-policy/individuals-disabilities/idea - WHO. (2021). Childhood Cancer. World Health Organization.
https://www.who.int/news-room/fact-sheets/detail/cancer-in-children
