References
- Aledort, L., Bullinger, M., Von Mackensen, S., Wasserman, J., Young, N. L., & Globe, D. (2012). Why should we care about quality of life in persons with haemophilia? Haemophilia, 18(3), e154–e157. DOI: 10.1111/j.1365-2516.2012.02771.x
- Altschul, I. (2012). Linking socioeconomic status to the academic achievement of Mexican American youth through parent involvement in education. Journal of the Society for Social Work & Research, 3(1), 13–30. DOI: 10.5243/jsswr.2012.2
- ARACY. (2015). Full report: School connection for seriously sick kids: Who are they, how do we know what works, and whose job is it? Retrieved from
https://msmissingschool.blob.core.windows.net/assets/pages/Missing+School+Report+FULL+version+published.pdf - Australian Institute of Health and Welfare (AIHW). (2005). Selected chronic diseases among Australian’s children. Bulletin no. 29. Canberra, Australia: Author.
- Barnett, T. (2018, May 14–18). What does the evidence tell us about an effective model of education support for children with chronic health conditions? Paper presented at the HOPE XI Congress, Poznan, Poland.
- Barnett, T., Giallo, R., Kelaher, M., Goldfeld, S., & Quach, J. (2018). Predictors of learning outcomes for children with and without chronic illness: An Australian longitudinal study. Child: Care, Health and Development, 44(6), 832–840. DOI: 10.1111/cch.12597
- Biesta, G. (2007). Why ‘what works’ won’t work. Evidence-based practice and the democratic deficit of educational research. Educational Theory, 57(1), 1–22. DOI: 10.1111/j.1741-5446.2006.00241.x
- Bond, M. (2019). Queensland hospital education: New ways moving forward. Paper presented at the RMHC H.E.L.P. Conference, Brisbane, Australia.
- Bronfenbrenner, U. (1995).
Developmental ecology through space and time: A future perspective . In P. Moen, G. H. Elder,Jr. , K. Lüscher, P. Moen, G. H. Elder,Jr. & K. Lüscher (Eds.), Examining lives in context: Perspectives on the ecology of human development (pp. 619–647). Washington, DC, US: American Psychological Association. - Capurso, M., & Dennis, J. L. (2017). Key educational factors in the education of students with a medical condition. Support for Learning, 32(2), 158. DOI: 10.1111/1467-9604.12156
- Chalmers, I. (2005). If evidence-informed policy works in practice, does it matter if it doesn’t work in theory? Evidence & Policy: A Journal of Research, Debate and Practice, 1(2), 227–242. DOI: 10.1332/1744264053730806
- Chan, A.-W., Tetzlaff, J. M., Altman, D., Dickersin, K., & Moher, D. (2013). SPIRIT: New guidance for content of clinical trial protocols. The Lancet, 381(9861), 91–92. DOI: 10.1016/S0140-6736(12)62160-6
- Daraganova, G. (2012). Is it OK to be away? School attendance in the primary school years. Longitudinal Study of Australian Children Annual Statistical Report. Retrieved from
https://growingupinaustralia.gov.au/sites/default/files/asr2012.pdf - Dempsey, A. (2019). Pediatric health conditions in schools: A clinician’s guide for working with children, families, and educators [Published online]. Oxford, UK: Oxford University Press. DOI: 10.1093/med-psych/9780190687281.001.0001
- Farias Queiroz, D. M., Costa Amorim, M. H., Zandonade, E., & Monteiro de Barros Miotto, M. H. (2015). Quality of life of children and adolescents with cancer: revision of studies literature that used the pediatric Quality of life inventory™ [Calidad de vida de los niños y adolescentes con cáncer: revisión de literatura de estudios que utilizaron el pediatric Quality of life inventory™]. Invest Educ Enferm, 33(2), 343. DOI: 10.17533/udea.iee.v33n2a17
- Gray, J. A. M. (2001). Evidence-based health care. London, UK: Churchill Livingstone.
- Hancock, K., Shepherd, C., Lawrence, D., & Zubrick, S. (2013). Student attendance and educational outcomes: Every day counts. Retrieved from
https://www.telethonkids.org.au/globalassets/media/documents/research-topics/student-attendance-and-educational-outcomes-2015.pdf - Haverman, L., Limperg, P. F., Young, N. L., Grootenhuis, M. A., & Klaassen, R. J. (2017). Paediatric health-related quality of life: What is it and why should we measure it? Arch Dis Child, 102(5), 393–400. DOI: 10.1136/archdischild-2015-310068
- Khoo, S., & Ainley, J. (2005). Attitudes, intentions and participation. LSAY Research Reports. Longitudinal surveys of Australian youth research report, n.41.
https://research.acer.edu.au/lsay_research/45 - Littell, J. H., & Shlonsky, A. (2010). Toward evidence-informed policy and practice in child welfare. Research on Social Work Practice, 20(6), 723–725. DOI: 10.1177/1049731509347886
- Lovibond, S. H., & Lovibond, P. F. (1995). Manual for the Depression Anxiety Stress Scale. Sydney, Australia: The Psychological Foundation of Australia. DOI: 10.1037/t39835-000
- Martinez, Y. J., & Ercikan, K. (2009). Chronic illnesses in Canadian children: What is the effect of illness on academic achievement, and anxiety and emotional disorders? Child: Care, Health & Development, 35(3), 391–401. DOI: 10.1111/j.1365-2214.2008.00916.x
- Maslow, G., Haydon, A., McRee, A.-L., & Halpern, C. (2012). Protective connections and educational attainment among young adults with childhood-onset chronic illness. Journal of School Health, 82(8), 364–370. DOI: 10.1111/j.1746-1561.2012.00710.x
- Montgomery, P., Mayo-Wilson, E., Hopewell, S., Macdonald, G., Moher, D., & Grant, S. (2013). Developing a reporting guideline for social and psychological intervention Trials. American Journal of Public Health, 103(10), 1741–1746. DOI: 10.2105/AJPH.2013.301447
- Muscara, F., McCarthy, M., Woolf, C., Hearps, S., Burke, K., & Anderson, V. (2015). Early psychological reactions in parents of children with a life threatening illness within a pediatric hospital setting. European Psychiatry, 30(5), 555–561. DOI: 10.1016/j.eurpsy.2014.12.008
- Nasuuna, E., Santoro, G., Kremer, P., & Silva, A. M. (2016). Examining the relationship between childhood health conditions and health service utilisation at school entry and subsequent academic performance in a large cohort of Australian children. Journal of Paediatrics and Child Health, 7, 750. DOI: 10.1111/jpc.13183
- Seymour, C. (2004). Access to education for children and young people with medical needs: a practitioner’s view. Child: Care, Health and Development, 30, 3. DOI: 10.1111/j.1365-2214.2004.00408.x
- Shaw, S. R., & McCabe, P. C. (2008). Hospital-to-school transition for children with chronic illness: Meeting the new challenges of an evolving health care system. Psychology in the Schools, 45(1), 74–87. DOI: 10.1002/pits.20280
- Shlonsky, A., & Gibbs, L. (2004). Will the Real Evidence-Based Practice Please Stand Up? Teaching the Process of Evidence-Based Practice to the Helping Professions, 4(2), 137–153. DOI: 10.1093/brief-treatment/mhh011
- Silva, N., Crespo, C., Carona, C., Bullinger, M., & Canavarro, M. C. (2015). Why the (dis)agreement? Family context and child-parent perspectives on health-related quality of life and psychological problems in paediatric asthma. Child: Care, Health & Development, 41(1), 112–121. DOI: 10.1111/cch.12147
- Thabane, L., Hopewell, S., Lancaster, G., Bond, C., Coleman, C., Campbell, M., & Eldridge, S. (2016). Methods and processes for development of a CONSORT extension for reporting pilot randomized controlled trials. Pilot and Feasibility Studies, 1. DOI: 10.1186/s40814-016-0065-z
- UNICEF. (2006). General comments of the committee on the rights of the child. Retrieved from Florence, Italy.
- Wright, F. V., & Majnemer, A. (2014). The Concept of a Toolbox of Outcome Measures for Children With Cerebral Palsy: Why, What, and How to Use? In (Vol. 29, pp. 1055–1065). DOI: 10.1177/0883073814533423
- Zubrick, S., Silburn, S., Gurrin, L., & Shepherd, C. (1997). Western Australian child health survey: education, health and competence. Australian Bureau of Statistics and TVW Telethon Institute for Child Health Research, [Perth].
