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Photovoice with Individuals with Intellectual and/or Developmental Disabilities: Lessons Learned from Inclusive Research Efforts Cover

Photovoice with Individuals with Intellectual and/or Developmental Disabilities: Lessons Learned from Inclusive Research Efforts

Open Access
|Apr 2020

Figures & Tables

Table 1

Inclusive Research Criteria.

Walmsley & Johnson’s (2003) CriterionCase Study 1Case Study 2
1. The research problem must be one that is owned by people with disabilities.While community members did not develop the research question, they stated a value for the question and identified a shared understanding of the research topic.While community members did not develop the research question, they valued examining the people, places and things that were salient factors of their everyday lives.
2. The research should further the interests of disabled people; non-disabled researchers should be on the side of people with disabilities.
  • Learning about this community’s perspective on health and wellness may lead to approaches that may decrease disparities.

  • Researchers served as allies in the project and accepted the community’s decision to not share findings/photos.

  • Evaluating the efficacy of an intervention to improve community-participation and social capital of people with disabilities is aligned with this community’s need for efficacious interventions.

  • Researchers served as allies to people with disabilities throughout their research participation.

3. The research should be collaborative in that people with disabilities should be involved in the process of doing the research.Both projects developed accessible methods to ensure community members were able to actively engage in all stages of the research process. The use of photography helped community members take control of the research process, as they were able to independently select content for data collection and dissemination.
4. People with disabilities should be able to exert some control over process and outcomes.People with IDD selected what to photograph, where to meet, and how to share findings.People with IDD selected what to photograph, and how to share findings.
5. The research question, processes and reports must be accessible to people with disabilities.
  • The Photovoice and consent procedures were accessible.

  • People with IDD selected how to share photos within the group.

  • The Photovoice and consent procedures were accessible.

  • People with IDD selected the approach for dissemination and led dissemination efforts.

DOI: https://doi.org/10.33596/coll.45 | Journal eISSN: 2638-4396
Language: English
Page range: 8 - 8
Published on: Apr 15, 2020
Published by: University of Miami Libraries
In partnership with: Paradigm Publishing Services

© 2020 Heather J. Williamson, Lieke van Heumen, Ariel E. Schwartz, published by University of Miami Libraries
This work is licensed under the Creative Commons Attribution 4.0 License.