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What palliative patients and their carers need at home and what a primary health care team can offer – first pilot study in Slovenia Cover

What palliative patients and their carers need at home and what a primary health care team can offer – first pilot study in Slovenia

By:  and    
Open Access
|Jan 2023

Figures & Tables

Table 1

Characteristics of palliative patients and palliative care.

N (%)Survival (days) mean±SDpDied at home N (%)p
GenderMale61 (57%)65±1190.882330.484
Female46 (43%)68±10928
Age (years)45–5411 (10%)45±630.77140.296
55–6418 (17%)55±12411
65–7432 (30%)76±14216
75–8431 (29%)59±8520
85–9014 (13%)91±13010
Leading conditionCancer101 (94%)63±1110.467570.623
Non-cancer6 (6%)117±1644
Enrolment byFamily doctor48 (45%)76±1100.00910.267
OOH/ES36 (34%)53±11332
Community nurse20 (19%)72±13717
Hospital team3 (3%)21±1111

[i] OOH – out-of-hours care; ES – emergency service; SD – survival days

Table 2

Enrolled patients in years and their site of death.

YearNo of patients enrolledDied at homeDid not die at home
201530 (0%)3 (100%)
2016179 (53%)8 (47%)
2017128 (67%)4 (33%)
2018139 (69%)4 (31%)
20192314 (61%)9 (39%)
20201612 (75%)4 (25%)
20212318 (78%)5 (22%)
Table 3

Categories of palliative needs.

Category
Pain
Dyspnoea, heavy breathing, cough
Loss of appetite, dysphagia, cachexia
Nausea, vomiting
Constipation, ileus, diarrhoea
Confusion, hallucinations, delirium, restlessness
Anxiety, depression
Dying
Medical procedures
Psychological support to patients
Psychological support to carers
Socio-economic status
Spiritual support
Figure 1

Cumulative patient enrolment and their site of death by year (bars) and enrolment by different primary care services (lines).

Figure 2

Survival of palliative patients in time.

Figure 3

Needs addressed by primary-level palliative team.

DOI: https://doi.org/10.2478/sjph-2023-0007 | Journal eISSN: 1854-2476 | Journal ISSN: 0351-0026
Language: English, Slovenian
Page range: 48 - 54
Submitted on: Sep 3, 2022
Accepted on: Nov 21, 2022
Published on: Jan 3, 2023
Published by: National Institute of Public Health, Slovenia
In partnership with: Paradigm Publishing Services

© 2023 Vesna Homar, Urša Pogačar, published by National Institute of Public Health, Slovenia
This work is licensed under the Creative Commons Attribution-NonCommercial-NoDerivatives 3.0 License.