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What palliative patients and their carers need at home and what a primary health care team can offer – first pilot study in Slovenia Cover

What palliative patients and their carers need at home and what a primary health care team can offer – first pilot study in Slovenia

By: Vesna Homar and  Urša Pogačar  
Open Access
|Jan 2023

Figures & Tables

Figure 1

Cumulative patient enrolment and their site of death by year (bars) and enrolment by different primary care services (lines).
Cumulative patient enrolment and their site of death by year (bars) and enrolment by different primary care services (lines).

Figure 2

Survival of palliative patients in time.
Survival of palliative patients in time.

Figure 3

Needs addressed by primary-level palliative team.
Needs addressed by primary-level palliative team.

Characteristics of palliative patients and palliative care_

N (%)Survival (days) mean±SDpDied at home N (%)p
GenderMale61 (57%)65±1190.882330.484
Female46 (43%)68±10928
Age (years)45–5411 (10%)45±630.77140.296
55–6418 (17%)55±12411
65–7432 (30%)76±14216
75–8431 (29%)59±8520
85–9014 (13%)91±13010
Leading conditionCancer101 (94%)63±1110.467570.623
Non-cancer6 (6%)117±1644
Enrolment byFamily doctor48 (45%)76±1100.00910.267
OOH/ES36 (34%)53±11332
Community nurse20 (19%)72±13717
Hospital team3 (3%)21±1111

Categories of palliative needs_

Category
Pain
Dyspnoea, heavy breathing, cough
Loss of appetite, dysphagia, cachexia
Nausea, vomiting
Constipation, ileus, diarrhoea
Confusion, hallucinations, delirium, restlessness
Anxiety, depression
Dying
Medical procedures
Psychological support to patients
Psychological support to carers
Socio-economic status
Spiritual support

Enrolled patients in years and their site of death_

YearNo of patients enrolledDied at homeDid not die at home
201530 (0%)3 (100%)
2016179 (53%)8 (47%)
2017128 (67%)4 (33%)
2018139 (69%)4 (31%)
20192314 (61%)9 (39%)
20201612 (75%)4 (25%)
20212318 (78%)5 (22%)
DOI: https://doi.org/10.2478/sjph-2023-0007 | Journal eISSN: 1854-2476 | Journal ISSN: 0351-0026
Language: English
Page range: 48 - 54
Submitted on: Sep 3, 2022
|
Accepted on: Nov 21, 2022
|
Published on: Jan 3, 2023
In partnership with: Paradigm Publishing Services
Publication frequency: 4 issues per year

© 2023 Vesna Homar, Urša Pogačar, published by National Institute of Public Health, Slovenia
This work is licensed under the Creative Commons Attribution-NonCommercial-NoDerivatives 3.0 License.