Have a personal or library account? Click to login
Coping with child’s disease by children and their parents (guardians) – a systematic review of the literature Cover

Coping with child’s disease by children and their parents (guardians) – a systematic review of the literature

By: Jadwiga Bąk and  Danuta Zarzycka  
Open Access
|Jun 2022

References

  1. 1. Lazarus RS, Folkman S. Stress, appraisal, and coping. New York: Springer publishing company; 1984, p.141-178.
  2. 2. Almeida AC, Pereira MG. Psychometric properties of the Portuguese version of the coping health inventory for parents (CHIP) of adolescents with chronic illness. J. Pediatr. Nurs. 2016; 31(5): 528-536.10.1016/j.pedn.2016.04.009
  3. 3. Berrocoso S, Amayra I, Lázaro E, et al. Coping with Wolf-Hirschhorn syndrome: quality of life and psychosocial features of family carers. Orphanet. J. Rare Dis. 2020; 15(1): 1-14.10.1186/s13023-020-01476-8
  4. 4. Brown A, Crowe L, Boneh A, et al. Parent Coping and the Behavioural and Social Outcomes of Children Diagnosed with Inherited Metabolic Disorders. JIMD Rep. 2017; 31: 29-36.10.1007/8904_2016_544538863827008193
  5. 5. Bose M, Mahadevan M, Schules DR, et al. Emotional experience in parents of children with Zellweger spectrum disorders: A qualitative study. Mol. Genet. Metab. Rep. 2019; 19: 100459.10.1016/j.ymgmr.2019.100459
  6. 6. Bikmazer A, Orengul AC, Buyukdeniz A, et al. Coping and psychopathology in children with malignancy and bronchiectasis. Pediatr. Pulmonol. 2020; 55(1): 214-220.10.1002/ppul.2453431816196
  7. 7. Cheng A, Manfredi R, Badolato G, et al. Adolescent Coping Strategies in the Emergency Department. Pediatr. Emerg. Care. 2019; 35(8): 548-551.10.1097/PEC.0000000000001384
  8. 8. Bell M, Biesecker BB, Bodurtha J, et al. Uncertainty, hope, and coping efficacy among mothers of children with Duchenne/Becker muscular dystrophy. Clin. Genet. 2019; 95(6): 677-683.
  9. 9. Page MJ, McKenzie JE, Bossuyt PM, et al. The PRISMA 2020 statement: An updated guideline for reporting systematic reviews. J. Clin. Epidemiol. 2021; 134: 178-189.10.1016/j.jclinepi.2021.02.003
  10. 10. Critical Appraisal Skills Programme (2020). CASP (Randomised Controlled Trial) Checklist. [online] Available at: https://casp-uk.net/. Accessed: 08.08.2021.
  11. 11. Mauritz PJ, Bolling M, Duipmans JC, et al. The relationship between quality of life and coping strategies of children with EB and their parents. Orphanet. J. Rare Dis. 2021; 16(1): 53.10.1186/s13023-021-01702-x
  12. 12. Hoseinzadeh F, Radfar M, Moghaddamtabrizi F, et al. Eff ect of Resilience-based Group Therapy Intervention on Coping in Mothers of Children with Cancer: A Randomized Clinical Trial. Iran J. Nurs. Midwifery Res. 2019; 24(4): 291-295.10.4103/ijnmr.IJNMR_174_18
  13. 13. Ziółkowska N, Bargiel-Matusiewicz K, Gruszczyńska E. Emotional State of Parents of Children Diagnosed with Cancer: Examining Religious and Meaning-Focused Coping. Religions. 2020; 11(3): 132.10.3390/rel11030132
  14. 14. Zaidman-Zait A. The contribution of maternal executive functions and active coping to dyadic aff ective dynamics: Children with autism spectrum disorder and their mothers. Autism. 2020; 24(3): 645-657.10.1177/136236131985465331647318
  15. 15. Wen CC, Chu SY. Parenting stress and depressive symptoms in the family caregivers of children with genetic or rare diseases: The mediation eff ects of coping strategies and self-esteem. Tzu-Chi Medical Journal. 2019; 32(2):181-185.10.4103/tcmj.tcmj_35_19
  16. 16. Tesei A, Nobile M, Colombo P, et al. Mental health and coping strategies in families of children and young adults with muscular dystrophies. J. Neurol. 2020; 267(7): 2054-2069.10.1007/s00415-020-09792-632222927
  17. 17. Padeniya RN, Thushari G, Nissanka DH, et al. Maternal coping strategies in response to child’s oncological diseases in Sri Lanka. Acta Oncol. 2020; 59(7): 866-871.10.1080/0284186X.2020.175069532286131
  18. 18. Meleady J, Nearchou F, Bramham J, et al. Family adaptation among parents of children on the autism spectrum without a comorbid intellectual disability: A test of the Double ABCX model. Research in Autism Spectrum Disorders. 2020; 78: 101637.10.1016/j.rasd.2020.101637
  19. 19. Manokara V, Medvedev ON, Lee BO. Parental Illness Representation of Intellectual Disability and Parental Emotional Distress and Coping. Adv. Neurodev. Disord. 2020; 4(3): 284-294.10.1007/s41252-020-00165-8
  20. 20. López J, Velasco C, Noriega C. The role of acceptance in parents whose child suff ers from cancer. Eur. J. Cancer Care. 2021; 30(4): e13406.10.1111/ecc.1340633481311
  21. 21. Ghorbani F, Iranmanesh S, Razban F, et al. Parental coping with childhood cancer and its relationship with self-construal: A survey in southeast Iran. Health Sci. Rep. 2020; 3(3): e185.10.1002/hsr2.185743617032832705
  22. 22. de Man MACP, Segers EW, Schappin R, et al. Parental experiences of their infant’s hospital admission undergoing cardiac surgery: A systematic review. Acta Paediatr. 2021; 110(6): 1730-1740.10.1111/apa.15694824810433251633
  23. 23. Clever K, Schepper F, Maier S, et al. Individual and Dyadic Coping and Fear of Progression in Mothers and Fathers of Children with Hematologic Cancer. Fam. Process. 2020; 59(3): 1225-1242.10.1111/famp.12480
  24. 24. Çalışkan Z, Evgin D, Caner N, et al. Determination of burnout, life satisfaction, and stress coping styles of parents with disabled children. Perspect. Psychiatr. Care. 2021; 57(3): 1505-1514.10.1111/ppc.12746
  25. 25. Shokri M, Tarjoman A, Borji M, et al. Investigating psychological problems in caregiver of pediatrics with cancer: A systematic review. J. Child Adolesc. Psychiatr. Nurs. 2020; 33(4): 229-238.10.1111/jcap.12269
  26. 26. Verberne LM, Kars MC, Schouten-van Meeteren AYN, et al. Parental experiences and coping strategies when caring for a child receiving paediatric palliative care: a qualitative study. Eur. J. Pediatr. 2019; 178(7): 1075-1085.10.1007/s00431-019-03393-w
  27. 27. Van Schoors M, Loeys T, Goubert L, et al. Couples dealing with pediatric blood cancer: a study on the role of dyadic coping. Front Psychol. 2019; 10: 402.10.3389/fpsyg.2019.00402640088130873091
  28. 28. Mazhari F, Rayyani M, Iranmanesh S, et al. Power of Religious Beliefs and Coping with Cancer: Opinions of Iranian Parents. J. Relig. Health. 2021; 60(4): 2878-2891.
  29. 29. Manicacci M, Bouteyre E, Despax J, et al. Involvement of Emotional Intelligence in Resilience and Coping in Mothers of Autistic Children. J. Autism. Dev. Disord. 2019; 49(11): 4646-4657.10.1007/s10803-019-04177-931463630
  30. 30. Lyu QY, Zhang MF, Bu XQ, et al. A Qualitative Study Exploring Coping Strategies in Chinese Families During Children’s Hospitalization for Cancer Treatment. J. Pediatr. Nurs. 2019; 48: e27-e34.10.1016/j.pedn.2019.05.02231253520
  31. 31. Lumsden MR, Smith DM, Wittkowski A. Coping in parents of children with congenital heart disease: A systematic review and meta-synthesis. J. Child. Fam. Stud. 2019; 28(7): 1736-1753.10.1007/s10826-019-01406-8
  32. 32. Jepsen SL, Haahr A, Eg M, et al. Coping with the unfamiliar: How do children cope with hospitalization in relation to acute and/or critical illness? A qualitative metasynthesis. J. Child. Health Care. 2019; 23(4): 534-550.10.1177/1367493518804097
  33. 33. D’Angelo CM, Mrug S, Grossoehme D, et al. Coping, attributions, and health functioning among adolescents with chronic illness and their parents: Reciprocal relations over time. J. Clin. Psychol. Med. Settings. 2019; 26(4): 495-506.10.1007/s10880-018-9597-0
  34. 34. Craig F, Savino R, Scoditti S, et al. Coping, stress and negative psychological outcomes in parents of children admitted to a pediatric neurorehabilitation care unit. Eur. J. Phys. Rehabil. Med. 2019; 55(6): 772-782.10.23736/S1973-9087.19.05695-8
  35. 35. Clavé S, Tsimaratos M, Boucekine M, et al. Quality of life in adolescents with chronic kidney disease who initiate haemodialysis treatment. BMC Nephrol. 2019; 20(1):16310.1186/s12882-019-1365-3651562131088395
  36. 36. Chong LT, Chong MC, Tang LY, et al. The relationship between psychological distress and religious practices and coping in Malaysian parents of children with Thalassemia. J. Pediatr. Nurs. 2019; 48: e15-e20.10.1016/j.pedn.2019.05.01631213340
  37. 37. Bikmazer A, Orengul AC, Buyukdeniz A, et al. Coping and psychopathology in children with malignancy and bronchiectasis. Pediatr. Pulmonol. 2020; 55(1): 214-220.10.1002/ppul.2453431816196
  38. 38. Bell M, Biesecker BB, Bodurtha J, et al. Uncertainty, hope, and coping efficacy among mothers of children with Duchenne/Becker muscular dystrophy. Clin. Genet. 2019; 95(6): 677-683.10.1111/cge.13528
  39. 39. Ang KQP, Loh PR. Mental Health and Coping in Parents of Children with Autism Spectrum Disorder (ASD) in Singapore: An Examination of Gender Role in Caring. J. Autism. Dev. Disord. 2019; 49(5): 2129-2145.10.1007/s10803-019-03900-w30706349
  40. 40. Abdelaziz RB, Chehida AB, Chakchouk HK, et al. Self-Reported Anxiety, Depression and Coping in Parents of Children with Phenylketonuria. J. Dev. Phys. Disabil. 2019; 31(6): 753-776.10.1007/s10882-019-09674-4
  41. 41. Ludwig NN, Sil S, Khowaja MK, et al. Executive functioning mediates the relationship between pain coping and quality of life in youth with sickle cell disease. J Pediatr. Psychol. 2018; 43(10): 1160-1169.10.1093/jpepsy/jsy057
  42. 42. Johnson EJ, Onieka Mendoza S. Care-giving coping strategies among mothers with chronically ill children. J. Soc. Serv. Res. 2018; 44(3): 400-413.10.1080/01488376.2018.1476289
  43. 43. Chivukula U, Kota S, Nandinee D. Burden Experience of Caregivers of Acute Lymphoblastic Leukemia: Impact of Coping and Spirituality. Indian. J. Palliat. Care. 2018; 24(2): 189-195.10.4103/IJPC.IJPC_209_17
  44. 44. Abdoljabbari M, Sheikhzakaryaee N, Atashzadeh-Shoorideh F. Taking Refuge in Spirituality, a Main Strategy of Parents of Children with Cancer: a Qualitative Study. Asian Pac. J. Cancer Prev. 2018; 19(9): 2575-2580.
  45. 45. Waters DM, Olson AM, Fousheé N, et al. Perceptions of stress, coping, and intervention preferences among caregivers of disadvantaged children with asthma. J. Child. Fam. Stud. 2017; 26(6): 1622-1634.10.1007/s10826-017-0670-3
  46. 46. Schadewald A, Kimball E, Ou L. Coping Strategies, Stress, and Support Needs in Caregivers of Children with Mucopolysaccharidosis. JIMD Rep. 2018; 42: 89-97.10.1007/8904_2017_87622640329299872
  47. 47. Peng J, Yang H, Fu G, et al. A study of the stressors and coping behaviors of parents of Chinese hemophilic children. J. Child. Health Care. 2017; 21(2): 212-221.10.1177/1367493517705736
  48. 48. beGheibizadeh M, Gholami Z, Bassaknejad S, et al. Coping strategies of parents with chronic ill children hospitalized in educational hospitals, Ahvaz-Iran. Int. J. Pediatr. 2017; 5(10), 5813-5825.
  49. 49. Willis K, Timmons L, Pruitt M, et al. The relationship between optimism, coping, and depressive symptoms in Hispanic mothers and fathers of children with autism spectrum disorder. J. Autism. Dev. Disord. 2016; 46(7): 2427-2440.10.1007/s10803-016-2776-727017210
  50. 50. Lakkis NA, Khoury JM, Mahmassani DM, et al. Psychological distress and coping strategies in parents of children with cancer in Lebanon. Psychooncology. 2016; 25(4): 428-434.10.1002/pon.393426332297
  51. 51. Dellenmark-Blom M, Chaplin JE, Jönsson L, et al. Coping strategies used by children and adolescents born with esophageal atresia–a focus group study obtaining the child and parent perspective. Child. Care. Health Dev. 2016; 42(5): 759-767.10.1111/cch.1237227469614
DOI: https://doi.org/10.2478/pielxxiw-2022-0011 | Journal eISSN: 2450-646X | Journal ISSN: 1730-1912
Language: English
Page range: 106 - 114
Submitted on: Aug 21, 2021
|
Accepted on: Oct 28, 2021
|
Published on: Jun 24, 2022
Published by: Sciendo
In partnership with: Paradigm Publishing Services
Publication frequency: 4 issues per year

© 2022 Jadwiga Bąk, Danuta Zarzycka, published by Sciendo
This work is licensed under the Creative Commons Attribution 4.0 License.