Disease Knowledge and Treatment Adherence among Adult Patients with Thalassemia: A Cross-sectional Correlational Study

Aisha Alnaami; Dhuha Wazqar

doi:10.2478/pielxxiw-2019-0014

.blurhash-client-img { display: none !important; }

Disease Knowledge and Treatment Adherence among Adult Patients with Thalassemia: A Cross-sectional Correlational Study

Pielegniarstwo XXI wieku / Nursing in the 21st Century

Volume 18 (2019): Issue 2 (June 2019)

By: Aisha Alnaami and Dhuha Wazqar

Open Access

|Nov 2019

1. Cao A, Galanello R. Beta-Thalassemia. Genet Med. 2010;19(6):61-76. doi:10.1038/gim.2016.17310.1038/gim.2016.173
Open DOI Search in Google Scholar Back to article
2. Al-Kloub MI, Abed MA, Al khawaldeh OA, et al. Predictors of non-adherence to follow-up visits and deferasirox chelation therapy among Jordanian adolescents with thalassemia major. Pediatr Hematol Oncol. 2014;13(7):624-637. doi:10.3109/08880018.2014.939792.10.3109/08880018.2014.939792
Open DOI Search in Google Scholar Back to article
3. Alenazi SA, Ali HW, Alharbi MG, et al. Prevalence of thalassemia and sickle cell disease in Northern border region of Saudi Arabia. Kashmir J Med Sci. 2015;1(1):3-6.
Search in Google Scholar Back to article
4. Memish ZA, Owaidah TM, Saeedi MY. Marked regional variations in the prevalence of sickle cell disease and beta-thalassemia in Saudi Arabia: Findings from the premarital screening and genetic counseling program. J Epidemiol Glob Health. 2011;1(1):61-68. doi:10.1016/j.jegh.2011.06.002.10.1016/j.jegh.2011.06.002
Open DOI Search in Google Scholar Back to article
5. GBD 2015 Mortality and Causes of Death Collaborators. Global, regional, and national life expectancy, all-cause mortality, and cause-specific mortality for 249 causes of death, 1980-2015: A systematic analysis for the global burden of disease study 2015. Lancet. 2016;388(10053):1459-1544. doi:https://doi.org/10.1016/S0140-6736(16)31012-110.1016/S0140-6736(16)31012-1
Open DOI Search in Google Scholar Back to article
6. Alsaeed ES, Farhat GN, Assiri AM, et al. Distribution of hemoglobinopathy disorders in Saudi Arabia based on data from the premarital screening and genetic counseling program, 2011–2015. J Epidemiol Glob Health. 2018;7(1):S41-S47. https://doi.org/10.1016/j.jegh.2017.12.00110.1016/j.jegh.2017.12.001738644229801592
Open DOI Search in Google Scholar Open in PubMed Back to article
7. Olwi DI, Merdad LA, Ramadan EK. Thalassemia: a prevalent disease yet unknown term among college students in Saudi Arabia. J Community Genet. 2018;9(3):277-282. doi:10.1007/s12687-017-0351-3.10.1007/s12687-017-0351-3600230529238908
Open DOI Search in Google Scholar Open in PubMed Back to article
8. Kingdom of Saudi Arabia-Ministry of Health (MOH). Response to medical advice offered by the healthy marriage program on the rise. Retrieved March 9, 2019, from http://www.moh.gov.sa/en/
Search in Google Scholar Back to article
9. Trachtenberg FL, Mednick L, Kwiatkowski JL, et al. Beliefs about chelation among thalassemia patients. Health Qual Life Out. 2012;10:148. doi:10.1186/1477-7525-10-148.10.1186/1477-7525-10-148354584123216870
Open DOI Search in Google Scholar Open in PubMed Back to article
10. Burkhart PV, Sabaté E. Adherence to long-term therapies: Evidence for action. J Nurs Scholarsh. 2003;35(3):207.10.1111/j.1547-5069.2003.tb00001.x
Open DOI Search in Google Scholar Back to article
11. Borgna-Pignatti C, Rugolotto S, De Stefano P, et al. Survival and complications in patients with thalassemia major treated with transfusion and deferoxamine. Haematologica. 2004;89(10):1187-1193.
Search in Google Scholar Back to article
12. Lemay J, Waheedi M, Al-Sharqawi S, Bayoud T. Medication adherence in chronic illness: Do beliefs about medications play a role? Patient Prefer Adherence. 2018;12:1687-1698. doi:10.2147/PPA.S169236.3023314910.2147/PPA.S169236613027030233149
Open DOI Search in Google Scholar Open in PubMed Back to article
13. Pakbaz Z, Treadwell M, Yamashita R, et al. Quality of life in patients with thalassemia intermediary compared to thalassemia major. Ann N Y Acad Sci. 2005;1054:457-461. doi:10.1196/annals.1345.059.10.1196/annals.1345.05916339697
Open DOI Search in Google Scholar Open in PubMed Back to article
14. Awwad O, Akour A, Al-Muhaissen S, Morisky D. The influence of patients’ knowledge on adherence to their chronic medications: A cross-sectional study in Jordan. Int J Clin Pharmacol Ther. 2015;37(3):504-510. doi:10.1007/s11096-015-0086-3.10.1007/s11096-015-0086-325708124
Open DOI Search in Google Scholar Open in PubMed Back to article
15. Lee YL, Lin DT, Tsai SF. Disease knowledge and treatment adherence among patients with thalassemia major and their mothers in Taiwan. J Clin Nurs. 2009;18(4):529-538. doi:10.1111/j.1365-2702.2007.02150.x.10.1111/j.1365-2702.2007.02150.x19192002
Open DOI Search in Google Scholar Open in PubMed Back to article
16. Yang HC, Chen YC, Mao HC, Lin KH. Illness knowledge, social support and self care behavior in adolescents with beta-thalassemia major. Hu Li Yan Jiu=Nursing Research 2001;9:114-124. (Original Work Published in Chinese)
Search in Google Scholar Back to article
17. Patton DE, Hughes CM, Cadogan CA, Ryan CA. Theory-based interventions to improve medication adherence in older adults prescribed polypharmacy: A systematic review. Drugs Aging. 2017;34(2):97–113. doi:10.1007/s40266-016-0426-6.10.1007/s40266-016-0426-6529006228025725
Open DOI Search in Google Scholar Open in PubMed Back to article
18. Vardaki MA, Philalithis AE, Vlachonokolis I. Factors associated with the attitudes and expectations of patients suffering from beta-thalassemia: A cross-sectional study. Scand J Caring Sci. 2004;18(2):177-187. doi:10.1111/j.1471-6712.2004.00267.x.1514748110.1111/j.1471-6712.2004.00267.x15147481
Open DOI Search in Google Scholar Open in PubMed Back to article
19. Nazir SU, Hassali AM, Saleem F, et al. Disease related knowledge, medication adherence and glycaemic control among patients with type 2 diabetes mellitus in Pakistan. Prim Care Diabetes. 2016;10(2):136-141. doi:10.1016/j.pcd.2015.09.004.10.1016/j.pcd.2015.09.00426476867
Open DOI Search in Google Scholar Open in PubMed Back to article
20. Patel AP, Parmar PH, Patel RB, et al. Factors influencing beta-thalassemia awareness in Western India. Natl J Community Med, 2016;7(3):193-197.
Search in Google Scholar Back to article
21. Colah R, aItalia K, Gorakshakar A. Burden of thalassemia in India: The road map for control. Pediatr Hematol Oncol J. 2017;2(4):79-84. https://doi.org/10.1016/j.phoj.2017.10.00210.1016/j.phoj.2017.10.002
Open DOI Search in Google Scholar Back to article
22. Kourorian Z, Azarkeivan A, Hajibeigi B, et al. The effect of knowledge, attitude and practice on the function of thalassemia patients. Iranian Journal of Blood and Cancer. 2014;6(4):177-181.
Search in Google Scholar Back to article
23. Maheen H, Malik F, Siddique B, Qidwai, A. Assessing parental knowledge about thalassemia in a thalassemia center of Karachi, Pakistan. J Genet Couns. 2015; 24(6):945-951. doi:10.1007/s10897-015-9830-z.10.1007/s10897-015-9830-z25843562
Open DOI Search in Google Scholar Open in PubMed Back to article
24. Kosaryan M, Vabidshabi K, Siami R, et al. Knowledge, attitudes, and practices of reproductive behaviours in Iranian minor thalassemia couples. Saudi Med J. 2009;30(6):835-839.
Search in Google Scholar Back to article
25. Abolghasemi H, Amid A, Zeinali S, et al. Thalassemia in Iran: Epidemiology, prevention, and management. J Pediatr Hematol Oncolo. 2007;29(4):233-238. doi: 10.1097/MPH.0b013e3180437e02.10.1097/MPH.0b013e3180437e0217414565
Open DOI Search in Google Scholar Open in PubMed Back to article
26. Hinkle JL, Cheever KH. Brunner and Suddarath text book of medical surgical nursing. 14th Ed. Lippincott Williams & Wilikins: Philadelphia; Pa; 2017.
Search in Google Scholar Back to article
27. Pedram M, Zandian K, Keikhaie B, et al. A report on chelating therapy and patient compliance by determination of serum ferritin levels in 243 thalassemia major patients. Iran J Pediatr Society. 2010;2:65-69.
Search in Google Scholar Back to article
28. Zeydi AE, Moonaghi HK, Heydari A. Exploring Iranian β-Thalassemia major patients’ perception of barriers and facilitators of adherence to treatment: A qualitative study. Electron Physician. 2017;9(12):6102–6110. doi:10.19082/6102.10.19082/6102584344029560166
Open DOI Search in Google Scholar Open in PubMed Back to article
29. Pai ALH, Ostendorf HM. Treatment adherence in adolescents and young adults affected by chronic illness during the health care transition from pediatric to adult health care: A literature review. Child Health Care. 2011;40(1):16–33.10.1080/02739615.2011.537934
Open DOI Search in Google Scholar Back to article