Figure 1.
Figure 2.
Code tree, themes and sub-themes identified through workshops and interviews
| CODE TREE | ||
|---|---|---|
| OVERARCHING THEMES | THEMES | SUB-THEMES |
| Living with haemophilia | Frustrations | Bleeds |
| Mobility | ||
| Joints | ||
| Pain | ||
| Treatment | ||
| IV access | ||
| Not being held back | ||
| Infected blood | ||
| The next generation | ||
| Goals | Achievable goals | Family/relationships |
| Education | ||
| Employment | ||
| Sport | ||
| Travel | ||
| Unachievable goals | Family/relationships | |
| Education | ||
| Employment | ||
| Sport | ||
| Travel | ||
| Future goals | Family/relationships | |
| Employment | ||
| Sport | ||
| Travel | ||
| Gene therapy | Uncertainty | Need for more information |
| Equitable access | ||
| The next generation | ||
| Psychological support | ||
| What gene therapy might offer | ||