Community Voices in Research (CVR): A lived experience expert-centred approach to advance the future of inheritable bleeding disorders Cover

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Community Voices in Research (CVR): A lived experience expert-centred approach to advance the future of inheritable bleeding disorders

The Journal of Haemophilia Practice

Volume 11 (2024): Issue 1 (January 2024)

By: Maria E Santaella , Cynthia D Nichols and Michelle Witkop

Open Access

|Feb 2025

Authors

Maria E Santaella

msantaella@bleeding.org

National Bleeding Disorders Foundation (NBDF) – Research Department, New York, United States

Cynthia D Nichols

Munson Medical Center, Traverse City, United States

Michelle Witkop

Bleeding Disorders Consultant, Contributed to CVR development while employed at NBDF, Michigan, United States

DOI: https://doi.org/10.2478/jhp-2024-0020 | Journal eISSN: 2055-3390

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Language: English

Page range: 136 - 146

Published on: Feb 11, 2025

Published by: Haemnet Ltd

In partnership with: Paradigm Publishing Services

Publication frequency: 1 issue per year

Related subjects:

Basic medical science,

Basic medical science, other,

Clinical medicine,

Clinical medicine, other,

© 2025 Maria E Santaella, Cynthia D Nichols, Michelle Witkop, published by Haemnet Ltd
This work is licensed under the Creative Commons Attribution-NonCommercial-NoDerivatives 4.0 License.

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