Development of a patient-reported outcomes tool to monitor changes in joint health and wellbeing for young people with haemophilia B

Bladen, Melanie; McDonagh, Janet; McLaughlin, Paul; Gooding, Richard; Holder, Kerry-Ann; Thind, Sharon; Klooster, Brittany; Shields, Alan; Turner-Bowker, Diane M.; Chatterton, Kaitlin; Leso, Allison; Volpi, Connor; Sivasubramaniyam, Sujan; Abulizi, Jiawula; Khan, Nisa

doi:10.2478/jhp-2024-0014

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Development of a patient-reported outcomes tool to monitor changes in joint health and wellbeing for young people with haemophilia B

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