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System change in practice: A report from the EHC Think Tank workstreams on Registries and Patient Agency Cover

System change in practice: A report from the EHC Think Tank workstreams on Registries and Patient Agency

The Journal of Haemophilia Practice
Volume 11 (2024): Issue 1 (January 2024)
By: Zita Gacser and  Naja Skouw-Rasmussen  
Open Access
|Feb 2024

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DOI: https://doi.org/10.2478/jhp-2024-0005 | Journal eISSN: 2055-3390
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Language: English
Page range: 1 - 10
Published on: Feb 26, 2024
Published by: Haemnet Ltd
In partnership with: Paradigm Publishing Services
Publication frequency: 1 issue per year
Keywords:
Registries,
Patient agency,
Mapping,
Co-creation
Related subjects:
Medicine,
Basic medical science,
Basic medical science, other,
Clinical medicine,
Clinical medicine, other,
Pharmacy,
Pharmacology

© 2024 Zita Gacser, Naja Skouw-Rasmussen, published by Haemnet Ltd
This work is licensed under the Creative Commons Attribution-NonCommercial-NoDerivatives 4.0 License.

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