Figure 1.
![New nomenclature for haemophilia carriers and women and girls with haemophilia
Adapted from van Galen et al., 2021 [24].](https://sciendo-parsed.s3.eu-central-1.amazonaws.com/65dc978bb3bda3001181b291/j_jhp-2024-0003_fig_001.jpg?X-Amz-Algorithm=AWS4-HMAC-SHA256&X-Amz-Content-Sha256=UNSIGNED-PAYLOAD&X-Amz-Credential=ASIA6AP2G7AKHYAKB4KY%2F20251212%2Feu-central-1%2Fs3%2Faws4_request&X-Amz-Date=20251212T050149Z&X-Amz-Expires=3600&X-Amz-Security-Token=IQoJb3JpZ2luX2VjEDUaDGV1LWNlbnRyYWwtMSJIMEYCIQC2DOEX4g%2BJfZjlVOabKwQ8BB8BZcu8qRpru%2BoGCKNcxgIhAPmx1wsKRhkCjMnJBmHF7hzk9qZ8TiL15o9zk%2FMRayfpKsYFCP7%2F%2F%2F%2F%2F%2F%2F%2F%2F%2FwEQAhoMOTYzMTM0Mjg5OTQwIgxIx2sBuxFOAf0SOHsqmgUIQom%2FAnrn7JwS5GHWIo64NV7mAI9LtHcfXBM9%2F8Y2TEryd4kKSpJoXqGxmdJ%2ByVzK6O%2FaQP27vjyglQhvw3Pp9oA6jp%2FQgYv9YXBEhRB%2FTecm7g%2BKvSejw7ZP%2BZkH70j7f77J6w1BShk6dh7OOBDguWkhMYG7TjTVrLY8zOYEkGmeIG0EmVkv2wiWppfl9aOZmxHTKn7kL6Q17ScObiv2u5G8khku1cHHYAuiDQCmRumcg6vq%2B26qJfoVVeigUejKiKomh6RFSRBpoFOQFGlDYG49h%2BpVuXlxcrBbPCaKG7K1q68Ih%2FEW9y1DO9%2FEh381DSwVLGYhmqB%2FMJqkprKwKCOQBXV6LFUzm7gc6Kunsi86Cyix5Fgl7ZfSKxLjuujybmGUMiO9bccSpc8V7N8ByAFhwQ5DVeuRoR3FBWI9Tbg0HQIlvFaE6mfVJ5aN0PQPtJbrlEOlcJ3nk20sDIyFu39%2ByvxSeH4elYtgXMZt5%2B9ab%2Fq6oFy18kqhjfZ3om6fAT%2B4ElHF89Yc7hVujvnxm%2Bktz8DISCV73ykm1HaZSiuAVb3YR%2FlsYsuLlLM2h3JtXaNb%2BQ3ryXNGQB2%2F4NkKacqRKv4C0vhuoRd7BQmtdt3DtNSDb2vI7%2BXa%2BY5w0Nlkk0liIYpw7RbO2IbEMFvuNvn%2FC2ICV2ErLD0OyJ2HsM%2BW1XIP6XczV5q%2BgAg0xgX8lJZpVDV%2FoCRjfQeWEpNtkl9OwRONZ9dLekgWdLnDCy%2BrCaLcaFE95RPO8o42cdenh3%2FgDTXdb7Dq8wYzcyTX78wwPh10hP2bHMIfC%2FhKW26IW5yNo5pI4OmaMJJzDAe4H6w6TOIjRiJzAEFyJdEGP%2FBahk6VjXLaxVTpwktVs3a7VUUtY0dpduYw4rnuyQY6sAH6REGVx0MUZJB3l0mFiCUnDazQuFOox3%2FHkyH9E7c0oRw7ZdfVGlgPP8Mc9qymJKKZxGWEdGmPHi7zArTwLDP%2BCOvpYyXbcVA6DYSYpfBJ9L%2BlU91gHYZW34ig2bGqubKDPVWfbMoiu32tpih5EPxXqD9rcuPXqa9baZbi8ppPzi%2BWrl5kUciDbqFv0PMeMNwYK49NjhtAbXKXlhfZgcgn603eIz8V%2Fu1YkZMHhqQB9g%3D%3D&X-Amz-Signature=7c1546c3ad3552eef668ade0c9216dc72604eab70069b571185c11cc4f87e041&X-Amz-SignedHeaders=host&x-amz-checksum-mode=ENABLED&x-id=GetObject)
Figure 2.
![Three-talk model of shared decision-making
Adapted from Elwyn et al., 2017 [38].](https://sciendo-parsed.s3.eu-central-1.amazonaws.com/65dc978bb3bda3001181b291/j_jhp-2024-0003_fig_002.jpg?X-Amz-Algorithm=AWS4-HMAC-SHA256&X-Amz-Content-Sha256=UNSIGNED-PAYLOAD&X-Amz-Credential=ASIA6AP2G7AKHYAKB4KY%2F20251212%2Feu-central-1%2Fs3%2Faws4_request&X-Amz-Date=20251212T050149Z&X-Amz-Expires=3600&X-Amz-Security-Token=IQoJb3JpZ2luX2VjEDUaDGV1LWNlbnRyYWwtMSJIMEYCIQC2DOEX4g%2BJfZjlVOabKwQ8BB8BZcu8qRpru%2BoGCKNcxgIhAPmx1wsKRhkCjMnJBmHF7hzk9qZ8TiL15o9zk%2FMRayfpKsYFCP7%2F%2F%2F%2F%2F%2F%2F%2F%2F%2FwEQAhoMOTYzMTM0Mjg5OTQwIgxIx2sBuxFOAf0SOHsqmgUIQom%2FAnrn7JwS5GHWIo64NV7mAI9LtHcfXBM9%2F8Y2TEryd4kKSpJoXqGxmdJ%2ByVzK6O%2FaQP27vjyglQhvw3Pp9oA6jp%2FQgYv9YXBEhRB%2FTecm7g%2BKvSejw7ZP%2BZkH70j7f77J6w1BShk6dh7OOBDguWkhMYG7TjTVrLY8zOYEkGmeIG0EmVkv2wiWppfl9aOZmxHTKn7kL6Q17ScObiv2u5G8khku1cHHYAuiDQCmRumcg6vq%2B26qJfoVVeigUejKiKomh6RFSRBpoFOQFGlDYG49h%2BpVuXlxcrBbPCaKG7K1q68Ih%2FEW9y1DO9%2FEh381DSwVLGYhmqB%2FMJqkprKwKCOQBXV6LFUzm7gc6Kunsi86Cyix5Fgl7ZfSKxLjuujybmGUMiO9bccSpc8V7N8ByAFhwQ5DVeuRoR3FBWI9Tbg0HQIlvFaE6mfVJ5aN0PQPtJbrlEOlcJ3nk20sDIyFu39%2ByvxSeH4elYtgXMZt5%2B9ab%2Fq6oFy18kqhjfZ3om6fAT%2B4ElHF89Yc7hVujvnxm%2Bktz8DISCV73ykm1HaZSiuAVb3YR%2FlsYsuLlLM2h3JtXaNb%2BQ3ryXNGQB2%2F4NkKacqRKv4C0vhuoRd7BQmtdt3DtNSDb2vI7%2BXa%2BY5w0Nlkk0liIYpw7RbO2IbEMFvuNvn%2FC2ICV2ErLD0OyJ2HsM%2BW1XIP6XczV5q%2BgAg0xgX8lJZpVDV%2FoCRjfQeWEpNtkl9OwRONZ9dLekgWdLnDCy%2BrCaLcaFE95RPO8o42cdenh3%2FgDTXdb7Dq8wYzcyTX78wwPh10hP2bHMIfC%2FhKW26IW5yNo5pI4OmaMJJzDAe4H6w6TOIjRiJzAEFyJdEGP%2FBahk6VjXLaxVTpwktVs3a7VUUtY0dpduYw4rnuyQY6sAH6REGVx0MUZJB3l0mFiCUnDazQuFOox3%2FHkyH9E7c0oRw7ZdfVGlgPP8Mc9qymJKKZxGWEdGmPHi7zArTwLDP%2BCOvpYyXbcVA6DYSYpfBJ9L%2BlU91gHYZW34ig2bGqubKDPVWfbMoiu32tpih5EPxXqD9rcuPXqa9baZbi8ppPzi%2BWrl5kUciDbqFv0PMeMNwYK49NjhtAbXKXlhfZgcgn603eIz8V%2Fu1YkZMHhqQB9g%3D%3D&X-Amz-Signature=37714ff87a8d55a0bfb309829093f6ad010718d1e21f372dc7d7a626545ac96a&X-Amz-SignedHeaders=host&x-amz-checksum-mode=ENABLED&x-id=GetObject)

![New nomenclature for haemophilia carriers and women and girls with haemophilia
Adapted from van Galen et al., 2021 [24].](https://sciendo-parsed.s3.eu-central-1.amazonaws.com/65dc978bb3bda3001181b291/j_jhp-2024-0003_fig_001.jpg?X-Amz-Algorithm=AWS4-HMAC-SHA256&X-Amz-Content-Sha256=UNSIGNED-PAYLOAD&X-Amz-Credential=ASIA6AP2G7AKHYAKB4KY%2F20251212%2Feu-central-1%2Fs3%2Faws4_request&X-Amz-Date=20251212T050149Z&X-Amz-Expires=3600&X-Amz-Security-Token=IQoJb3JpZ2luX2VjEDUaDGV1LWNlbnRyYWwtMSJIMEYCIQC2DOEX4g%2BJfZjlVOabKwQ8BB8BZcu8qRpru%2BoGCKNcxgIhAPmx1wsKRhkCjMnJBmHF7hzk9qZ8TiL15o9zk%2FMRayfpKsYFCP7%2F%2F%2F%2F%2F%2F%2F%2F%2F%2FwEQAhoMOTYzMTM0Mjg5OTQwIgxIx2sBuxFOAf0SOHsqmgUIQom%2FAnrn7JwS5GHWIo64NV7mAI9LtHcfXBM9%2F8Y2TEryd4kKSpJoXqGxmdJ%2ByVzK6O%2FaQP27vjyglQhvw3Pp9oA6jp%2FQgYv9YXBEhRB%2FTecm7g%2BKvSejw7ZP%2BZkH70j7f77J6w1BShk6dh7OOBDguWkhMYG7TjTVrLY8zOYEkGmeIG0EmVkv2wiWppfl9aOZmxHTKn7kL6Q17ScObiv2u5G8khku1cHHYAuiDQCmRumcg6vq%2B26qJfoVVeigUejKiKomh6RFSRBpoFOQFGlDYG49h%2BpVuXlxcrBbPCaKG7K1q68Ih%2FEW9y1DO9%2FEh381DSwVLGYhmqB%2FMJqkprKwKCOQBXV6LFUzm7gc6Kunsi86Cyix5Fgl7ZfSKxLjuujybmGUMiO9bccSpc8V7N8ByAFhwQ5DVeuRoR3FBWI9Tbg0HQIlvFaE6mfVJ5aN0PQPtJbrlEOlcJ3nk20sDIyFu39%2ByvxSeH4elYtgXMZt5%2B9ab%2Fq6oFy18kqhjfZ3om6fAT%2B4ElHF89Yc7hVujvnxm%2Bktz8DISCV73ykm1HaZSiuAVb3YR%2FlsYsuLlLM2h3JtXaNb%2BQ3ryXNGQB2%2F4NkKacqRKv4C0vhuoRd7BQmtdt3DtNSDb2vI7%2BXa%2BY5w0Nlkk0liIYpw7RbO2IbEMFvuNvn%2FC2ICV2ErLD0OyJ2HsM%2BW1XIP6XczV5q%2BgAg0xgX8lJZpVDV%2FoCRjfQeWEpNtkl9OwRONZ9dLekgWdLnDCy%2BrCaLcaFE95RPO8o42cdenh3%2FgDTXdb7Dq8wYzcyTX78wwPh10hP2bHMIfC%2FhKW26IW5yNo5pI4OmaMJJzDAe4H6w6TOIjRiJzAEFyJdEGP%2FBahk6VjXLaxVTpwktVs3a7VUUtY0dpduYw4rnuyQY6sAH6REGVx0MUZJB3l0mFiCUnDazQuFOox3%2FHkyH9E7c0oRw7ZdfVGlgPP8Mc9qymJKKZxGWEdGmPHi7zArTwLDP%2BCOvpYyXbcVA6DYSYpfBJ9L%2BlU91gHYZW34ig2bGqubKDPVWfbMoiu32tpih5EPxXqD9rcuPXqa9baZbi8ppPzi%2BWrl5kUciDbqFv0PMeMNwYK49NjhtAbXKXlhfZgcgn603eIz8V%2Fu1YkZMHhqQB9g%3D%3D&X-Amz-Signature=7c1546c3ad3552eef668ade0c9216dc72604eab70069b571185c11cc4f87e041&X-Amz-SignedHeaders=host&x-amz-checksum-mode=ENABLED&x-id=GetObject)
![Three-talk model of shared decision-making
Adapted from Elwyn et al., 2017 [38].](https://sciendo-parsed.s3.eu-central-1.amazonaws.com/65dc978bb3bda3001181b291/j_jhp-2024-0003_fig_002.jpg?X-Amz-Algorithm=AWS4-HMAC-SHA256&X-Amz-Content-Sha256=UNSIGNED-PAYLOAD&X-Amz-Credential=ASIA6AP2G7AKHYAKB4KY%2F20251212%2Feu-central-1%2Fs3%2Faws4_request&X-Amz-Date=20251212T050149Z&X-Amz-Expires=3600&X-Amz-Security-Token=IQoJb3JpZ2luX2VjEDUaDGV1LWNlbnRyYWwtMSJIMEYCIQC2DOEX4g%2BJfZjlVOabKwQ8BB8BZcu8qRpru%2BoGCKNcxgIhAPmx1wsKRhkCjMnJBmHF7hzk9qZ8TiL15o9zk%2FMRayfpKsYFCP7%2F%2F%2F%2F%2F%2F%2F%2F%2F%2FwEQAhoMOTYzMTM0Mjg5OTQwIgxIx2sBuxFOAf0SOHsqmgUIQom%2FAnrn7JwS5GHWIo64NV7mAI9LtHcfXBM9%2F8Y2TEryd4kKSpJoXqGxmdJ%2ByVzK6O%2FaQP27vjyglQhvw3Pp9oA6jp%2FQgYv9YXBEhRB%2FTecm7g%2BKvSejw7ZP%2BZkH70j7f77J6w1BShk6dh7OOBDguWkhMYG7TjTVrLY8zOYEkGmeIG0EmVkv2wiWppfl9aOZmxHTKn7kL6Q17ScObiv2u5G8khku1cHHYAuiDQCmRumcg6vq%2B26qJfoVVeigUejKiKomh6RFSRBpoFOQFGlDYG49h%2BpVuXlxcrBbPCaKG7K1q68Ih%2FEW9y1DO9%2FEh381DSwVLGYhmqB%2FMJqkprKwKCOQBXV6LFUzm7gc6Kunsi86Cyix5Fgl7ZfSKxLjuujybmGUMiO9bccSpc8V7N8ByAFhwQ5DVeuRoR3FBWI9Tbg0HQIlvFaE6mfVJ5aN0PQPtJbrlEOlcJ3nk20sDIyFu39%2ByvxSeH4elYtgXMZt5%2B9ab%2Fq6oFy18kqhjfZ3om6fAT%2B4ElHF89Yc7hVujvnxm%2Bktz8DISCV73ykm1HaZSiuAVb3YR%2FlsYsuLlLM2h3JtXaNb%2BQ3ryXNGQB2%2F4NkKacqRKv4C0vhuoRd7BQmtdt3DtNSDb2vI7%2BXa%2BY5w0Nlkk0liIYpw7RbO2IbEMFvuNvn%2FC2ICV2ErLD0OyJ2HsM%2BW1XIP6XczV5q%2BgAg0xgX8lJZpVDV%2FoCRjfQeWEpNtkl9OwRONZ9dLekgWdLnDCy%2BrCaLcaFE95RPO8o42cdenh3%2FgDTXdb7Dq8wYzcyTX78wwPh10hP2bHMIfC%2FhKW26IW5yNo5pI4OmaMJJzDAe4H6w6TOIjRiJzAEFyJdEGP%2FBahk6VjXLaxVTpwktVs3a7VUUtY0dpduYw4rnuyQY6sAH6REGVx0MUZJB3l0mFiCUnDazQuFOox3%2FHkyH9E7c0oRw7ZdfVGlgPP8Mc9qymJKKZxGWEdGmPHi7zArTwLDP%2BCOvpYyXbcVA6DYSYpfBJ9L%2BlU91gHYZW34ig2bGqubKDPVWfbMoiu32tpih5EPxXqD9rcuPXqa9baZbi8ppPzi%2BWrl5kUciDbqFv0PMeMNwYK49NjhtAbXKXlhfZgcgn603eIz8V%2Fu1YkZMHhqQB9g%3D%3D&X-Amz-Signature=37714ff87a8d55a0bfb309829093f6ad010718d1e21f372dc7d7a626545ac96a&X-Amz-SignedHeaders=host&x-amz-checksum-mode=ENABLED&x-id=GetObject)

© 2024 Gary Benson, Nicola Curry, Simon Fletcher, Will Gregory, Cathy Harrison, Mike Laffan, Gillian Lowe, Kate Khair, Susan Kirk, Paul McLaughlin, Charles Percy, Denise Player, Sarah Whitaker, published by Haemnet Ltd
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