The journey of gene therapy in haemophilia – putting the patient at the centre of the hub and spoke model Cover

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The journey of gene therapy in haemophilia – putting the patient at the centre of the hub and spoke model

The Journal of Haemophilia Practice

Volume 9 (2022): Issue 1 (January 2022)

By: Declan Noone , Jan Astermark , Brian O'Mahony , Flora Peyvandi , Kate Khair , Luke Pembroke and Kathryn Jenner

Open Access

|Jan 2023

Authors

Declan Noone

noone.dec@gmail.com

Irish Haemophilia Society, Dublin, Ireland

Jan Astermark

Lund University, Skåne University Hospital, Lund

Brian O'Mahony

Irish Haemophilia Society, Dublin, Ireland

Flora Peyvandi

University of Milan, IRCCS Maggiore Hospital, Milan

Kate Khair

Haemnet Ltd, London, UK

Luke Pembroke

Haemnet Ltd, London, UK

Kathryn Jenner

Haemnet Ltd, London, UK

DOI: https://doi.org/10.2478/jhp-2022-0021 | Journal eISSN: 2055-3390

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Language: English

Page range: 156 - 166

Published on: Jan 3, 2023

Published by: Haemnet Ltd

In partnership with: Paradigm Publishing Services

Publication frequency: 1 issue per year

Keywords:

Hub and spoke care model,

Patient-centred care,

Decision making,

Related subjects:

Basic medical science,

Basic medical science, other,

Clinical medicine,

Clinical medicine, other,

© 2023 Declan Noone, Jan Astermark, Brian O'Mahony, Flora Peyvandi, Kate Khair, Luke Pembroke, Kathryn Jenner, published by Haemnet Ltd
This work is licensed under the Creative Commons Attribution-NonCommercial-NoDerivatives 3.0 License.

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