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Designing ATHN 7: Safety, effectiveness and practice of treatment of people with haemophilia in the United States through a natural history cohort study Cover

Designing ATHN 7: Safety, effectiveness and practice of treatment of people with haemophilia in the United States through a natural history cohort study

The Journal of Haemophilia Practice
Volume 9 (2022): Issue 1 (January 2022)
By: Tyler W. Buckner,  Nabil Daoud,  Moses Miles,  Carrie O'Neill,  Crystal Watson and  Michael Recht  
Open Access
|Jan 2023

Figures & Tables

The American Thrombosis and Hemostasis Network (ATHN) is building a comprehensive dataset on treatment safety, effectiveness, regimens, target joints, and patient-reported outcomes for people with haemophilia in the United States
The American Thrombosis and Hemostasis Network (ATHN) is building a comprehensive dataset on treatment safety, effectiveness, regimens, target joints, and patient-reported outcomes for people with haemophilia in the United States

Figure 1

ATHN 7 schedule of eventsAE: Adverse event PRO: Patient-reported outcome
ATHN 7 schedule of eventsAE: Adverse event PRO: Patient-reported outcome

Figure 2

ATNH 7 accrualActual versus projected accrual into ATHN 7. The shaded area represents the onset of the COVID-19 pandemic and the decision to pause accrual into ATHN 7 with the planned transition of participants into ATHN Transcends.
ATNH 7 accrualActual versus projected accrual into ATHN 7. The shaded area represents the onset of the COVID-19 pandemic and the decision to pause accrual into ATHN 7 with the planned transition of participants into ATHN Transcends.

Figure 3

List of participating HTCs and accruals by site
List of participating HTCs and accruals by site

Patient-reported outcomes data collected from participants (or parent proxies) at enrolment in ATHN 7

AGE OF PARTICIPANT (YEARS)0–45–78–1112–17>18
EQ-5D-5L XX
PROMIS-29 X
PROMIS-25 XX
PROMIS-25 parent proxy X
GAR XX
GAR parent proxyXXX
DOI: https://doi.org/10.2478/jhp-2022-0020 | Journal eISSN: 2055-3390
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Language: English
Page range: 147 - 155
Published on: Jan 3, 2023
Published by: Haemnet Ltd
In partnership with: Paradigm Publishing Services
Publication frequency: 1 issue per year
Keywords:
Haemophilia A,
Haemophilia B,
Therapeutics,
Safety,
Effectiveness,
Natural history
Related subjects:
Medicine,
Basic medical science,
Basic medical science, other,
Clinical medicine,
Clinical medicine, other,
Pharmacy,
Pharmacology

© 2023 Tyler W. Buckner, Nabil Daoud, Moses Miles, Carrie O'Neill, Crystal Watson, Michael Recht, published by Haemnet Ltd
This work is licensed under the Creative Commons Attribution-NonCommercial-NoDerivatives 3.0 License.

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