Patient agency: key questions and challenges – A report from the 1st workshop of the EHC Think Tank Workstream on Patient Agency Cover

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Patient agency: key questions and challenges – A report from the 1st workshop of the EHC Think Tank Workstream on Patient Agency

The Journal of Haemophilia Practice

Volume 9 (2022): Issue 1 (January 2022)

By: Amanda Bok , Declan Noone and Naja Skouw-Rasmussen

Open Access

|Mar 2022

Figures & Tables

Uneven patient-clinician relationships, paternalism, hierarchical cultures and resistance to change are among the key challenges identified in ensuring that patients with lifelong rare diseases, such as haemophilia, are empowered to engage with and share in decision-making around their care© Shutterstock

Iceberg Model template used to identify events, patterns, structures and mental models in challenges for patient agency. Image: Ia Brix Ohmann / Overlap (https://www.overlap.dk/english)

DOI: https://doi.org/10.2478/jhp-2022-0004 | Journal eISSN: 2055-3390

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Language: English

Page range: 27 - 35

Published on: Mar 29, 2022

Published by: Haemnet Ltd

In partnership with: Paradigm Publishing Services

Publication frequency: 1 issue per year

Keywords:

Patient agency,

Cultural change,

Health literacy

Related subjects:

Basic medical science,

Basic medical science, other,

Clinical medicine,

Clinical medicine, other,

© 2022 Amanda Bok, Declan Noone, Naja Skouw-Rasmussen, published by Haemnet Ltd
This work is licensed under the Creative Commons Attribution-NonCommercial-NoDerivatives 3.0 License.

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