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Key challenges for patient registries – A report from the 1st workshop of the EHC Think Tank Workstream on Registries Cover

Key challenges for patient registries – A report from the 1st workshop of the EHC Think Tank Workstream on Registries

The Journal of Haemophilia Practice
Volume 9 (2022): Issue 1 (January 2022)
By: Amanda Bok,  Declan Noone,  Naja Skouw-Rasmussen and  Ehc Think Tank  
Open Access
|Mar 2022

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DOI: https://doi.org/10.2478/jhp-2022-0002 | Journal eISSN: 2055-3390
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Language: English
Page range: 14 - 19
Published on: Mar 9, 2022
Published by: Haemnet Ltd
In partnership with: Paradigm Publishing Services
Publication frequency: 1 issue per year
Keywords:
Bleeding disorders,
Registries,
Patient-reported health data,
Systems change,
Co-creation
Related subjects:
Medicine,
Basic medical science,
Basic medical science, other,
Clinical medicine,
Clinical medicine, other,
Pharmacy,
Pharmacology

© 2022 Amanda Bok, Declan Noone, Naja Skouw-Rasmussen, Ehc Think Tank, published by Haemnet Ltd
This work is licensed under the Creative Commons Attribution-NonCommercial-NoDerivatives 3.0 License.

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