Figure 1
![Flow DiagramDiagram illustrating the flow of information through the different phases of the review process for identifying current literature available on telemedicine technology and the methods that facilitate direct-to-consumer delivery of clinical services for patients with haemophilia. The process follows that outlined in the PRISMA Statement 2009 [27].](https://sciendo-parsed.s3.eu-central-1.amazonaws.com/647217e9215d2f6c89dbbb4c/j_jhp-2021-0011_fig_001.jpg?X-Amz-Algorithm=AWS4-HMAC-SHA256&X-Amz-Content-Sha256=UNSIGNED-PAYLOAD&X-Amz-Credential=ASIA6AP2G7AKOYFISJOZ%2F20251212%2Feu-central-1%2Fs3%2Faws4_request&X-Amz-Date=20251212T005612Z&X-Amz-Expires=3600&X-Amz-Security-Token=IQoJb3JpZ2luX2VjEC0aDGV1LWNlbnRyYWwtMSJHMEUCIQDiNBT0ei0i3I%2FqHTo2lAhmIHmn7hIF%2B4xvtuIBOVofhwIgB9gBx0DD%2BW5%2BMdMr4kALV3uFQYHhIGJuJNTCynmqrg8qxgUI9v%2F%2F%2F%2F%2F%2F%2F%2F%2F%2FARACGgw5NjMxMzQyODk5NDAiDDqHX0NM4Hwy5U5MzSqaBcAsOzQXDZ9mxcKKo9BZKmpVf2BWdpGSgBYz2qGTWEhoeGVbKdHyH5Slszljm%2F1UhVyxmD%2FRfVOCbs7C%2BnwaCMU41Q5AFqVQBqTGoFeD1wMMXlTthlhhOOAUALI2G1EO%2Fjze8kTaal3ZnyueQ9r1EQqi2phanVDnFa4IPxK1B8WGUKx8arjXzK2qpClSMc17GpkrfcSWZq%2FCA3Rru4jsCajnAiWYDupGeHkl%2BDF%2FeclJxHvl18XomtP7mGh6EyMRHCIpHO0iThehxnKMWprexaivpCp%2F992JhXBPTI%2BisSQj%2Bc3YnyiBXCB%2F8%2B%2Bf49P1PtvF%2BYug5P00iIAWwe461IIEUKHZcLDTISuEkJujbdTIHP6gkR%2BZXisMgvtUZbBEuaXkSvbhZSy%2B46liKkV4t9Wmmk8d8d%2B%2F6NDbzmxG8kgSuKv5MUScGVrt4XLxHyjLEDO8A%2Fd7rzmkK79gLIMtNxpj9maUktU7rr6QGO0ith%2FkmkdOJpIe45Kwvmiil5OLBgSCnGv57WqSue3bcD2OOkpYQ%2BncZ8P6q9qMVs86MZpopcMXzprVySWrAQSiXpcQ9l6ttOf9t23hiE22yZbSe3snjD41GvF4PXPMY9tQ1L1CueAHilug5pgQY%2Bn7bJ2Wyo%2F9Wes2Lk4lGVcUkhPmP23PQ9ocFbv7h4Gf7sZ%2F6oz%2Fn9bgQ9E75ZvHvhLbze2W%2BxlXaqVJhYJ6DtAn2KtMmhLMT021uioo2Q%2FQIP0iJtyWgRP%2FhgsVnz9Ul%2FieC1NYFYee33kxsS4GipmndssFkvN2%2F%2FSMuZ1PkQtCHeJ9NP80OXq%2FPpG4Hm2I0mr6filwKJmV6ZuKdzV702y7C6b9TVgG2pD7ZXvrWRWVdZX89MYcMiGRbNU4SEzEjDCh4%2BzJBjqxAVwuGsgu7HY6fImZWIgbYRh3B3oG%2B8X7X1ZvVByUBbYjCEaqKLa3BniVAVE5RS2TTEbRscKm17EBgkUfwsAXxikk%2BvZWlFuqG1jLLOEyiw2QrtxaBRAPp%2FPOkJVYIqQjoTZuLrnb2eIROCaj3ry3y4c6HEfxhKf6gjFa3G0CNdMr%2FmWq0LHVKJuRJmb61AunozT%2FEFyRPX5cX%2FUrsRt%2B17UzXCsZBVKDvYn6kb1mCArYrQ%3D%3D&X-Amz-Signature=faf33fc8bc9e2a3648b8c24d0dbbae2b1367f46594c945d6ca59f4368686eaab&X-Amz-SignedHeaders=host&x-amz-checksum-mode=ENABLED&x-id=GetObject)
j_jhp-2021-0011_tab_002
| 1 | telemedicine/ (26865) |
| 2 | telemedic*.mp. (33375) |
| 3 | virtual.mp. (85819) |
| 4 | remote.mp. (92061) |
| 5 | online.mp. (196046) |
| 6 | telehealth/ (7593) |
| 7 | exp telecommunication/ (75872) |
| 8 | telehealth.mp. (11717) |
| 9 | telecommunic*.mp. (27328) |
| 10 | teleconsult*.mp. (10848) |
| 11 | mobile health*.mp. (5743) |
| 12 | mhealth.mp. (4757) |
| 13 | telemonitor*.mp. (4272) |
| 14 | video conferenc*.mp. (1448) |
| 15 | videoconferenc*.mp. (5623) |
| 16 | videoconferencing/ (4529) |
| 17 | virtual visit*.mp. (327) |
| 18 | telerehab*.mp. (1439) |
| 19 | telephone visit*.mp. (155) |
| 20 | hemophilia/ (19114) |
| 21 | Hemophili*.mp. (42023) |
| 22 | hemophilia A/ (21239) |
| 23 | hemophilia B/ (7944) |
| 24 | Haemophili*.mp. (14590) |
| 25 | Christmas diseas*.mp. (133) |
| 26 | Factor VIII deficienc*.mp. (639) |
| 27 | Factor IX deficienc*.mp. (357) |
| 28 | blood clotting factor 11 deficiency/ (1148) |
| 29 | Factor XI deficienc*.mp. (751) |
| 30 | Rosenthal syndrome.mp. (778) |
| 31 | royal disease.mp. (19) |
| 32 | blood clotting factor deficiency/ (923) |
| 33 | factor 8 deficienc*.mp. (26) |
| 34 | factor 9 deficienc*.mp. (6) |
| 35 | factor 11 deficienc*.mp. (1151) |
| 36 | factor 13 deficienc*.mp. (1037) |
| 37 | factor deficienc*.mp. (2807) |
| 38 | factor XIII deficienc*.mp. (760) |
| 39 | F VIII deficienc*.mp. (7) |
| 40 | FVIII deficienc*.mp. (363) |
| 41 | F IX deficienc*.mp. (3) |
| 42 | FIX deficienc*.mp. (182) |
| 43 | F XI deficienc*.mp. (19) |
| 44 | FXI deficienc*.mp. (467) |
| 45 | F XIII deficienc*.mp. (28) |
| 46 | FXIII deficienc*.mp. (540) |
| 47 | 1 or 2 or 3 or 4 or 5 or 6 or 7 or 8 or 9 or 10 or 11 or 12 or 13 or 14 or 15 or 16 or 17 or 18 or 19 (438724) |
| 48 | 20 or 21 or 22 or 23 or 24 or 25 or 26 or 27 or 28 or 29 or 30 or 31 or 32 or 33 or 34 or 35 or 36 or 37 or 38 or 39 or 40 or 41 or 42 or 43 or 44 or 45 or 46 (47986) |
| 49 | 47 and 48 (557) |
j_jhp-2021-0011_tab_003
| 1 | Telemedicine/ (24455) |
| 2 | telemedic*.mp. (30936) |
| 3 | virtual.mp. (62770) |
| 4 | Remote Consultation/ (4886) |
| 5 | remote.mp. (77587) |
| 6 | online.mp. (127647) |
| 7 | teleconsult*.mp. (1351) |
| 8 | telemonitor*.mp. (1671) |
| 9 | telehealth.mp. (5862) |
| 10 | mhealth.mp. (5076) |
| 11 | mobile health.mp. (8213) |
| 12 | video conferenc*.mp. (840) |
| 13 | videoconferenc*.mp. (3161) |
| 14 | virtual visit*.mp. (226) |
| 15 | exp Telecommunications/ (94549) |
| 16 | Telecommunic*.mp. (8668) |
| 17 | exp Telerehabilitation/ (413) |
| 18 | telerehab*.mp. (1064) |
| 19 | telephone visit*.mp. (84) |
| 20 | Hemophilia A/ (20710) |
| 21 | Hemophilia B/ (4384) |
| 22 | Hemophili*.mp. (26582) |
| 23 | Haemophili*.mp. (9660) |
| 24 | Christmas diseas*.mp. (330) |
| 25 | Factor VIII deficiency.mp. (413) |
| 26 | Factor IX deficiency.mp. (260) |
| 27 | Factor XI Deficiency/ (764) |
| 28 | Factor XI deficiency.mp. (864) |
| 29 | Rosenthal syndrome.mp. (917) |
| 30 | royal disease.mp. (20) |
| 31 | Factor XIII Deficiency/ (660) |
| 32 | factor XIII deficienc*.mp. (814) |
| 33 | factor 8 deficienc*.mp. (260) |
| 34 | factor 9 deficienc*.mp. (2) |
| 35 | factor 11 deficienc*.mp. (1) |
| 36 | factor 13 deficienc*.mp. (10) |
| 37 | factor deficienc*.mp. (1210) |
| 38 | FVIII deficienc*.mp. (151) |
| 39 | FIX deficienc*.mp. (72) |
| 40 | FXIII deficienc*.mp. (244) |
| 41 | FXI deficienc*.mp. (216) |
| 42 | F VIII deficienc*.mp. (5) |
| 43 | F IX deficienc*.mp. (1) |
| 44 | F XIII deficienc*.mp. (19) |
| 45 | F XI deficienc*.mp. (6) |
| 46 | 1 or 2 or 3 or 4 or 5 or 6 or 7 or 8 or 9 or 10 or 11 or 12 or 13 or 14 or 15 or 16 or 17 or 18 or 19 (355256) |
| 47 | 20 or 21 or 22 or 23 or 24 or 25 or 26 or 27 or 28 or 29 or 30 or 31 or 32 or 33 or 34 or 35 or 36 or 37 or 38 or 39 or 40 or 41 or 42 or 43 or 44 or 45 (31850) |
| 48 | 46 and 47 (154) |
Study characteristics
| 1 | Jacobson K, Hooke C. Telehealth videoconferencing for children with hemophilia and their families: a clinical project. J PEDIATR ONCOL NURS 2016; 33(4): 282–8. | |
| Month/year | October 2015 | |
| Country | USA | |
| Study design | Cross-sectional survey | |
| Patient population (n) | Severe haemophilia, ages 2–18 (n=12) | |
| Healthcare team population & disciplines (n) | HTC staff (n=4): healthcare providers, HTC nurse | |
| Virtual medium | Telephone, videoconferencing, email with photographs | |
| Process of virtual consultation |
| |
| Outcomes | Patients: Easy to access, easy to set up consultation with HCPs, felt that HCPs have a better understanding of bleed using video when compared to phone calls alone, 50% felt more confident caring for child after video conference. | |