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Experience of the patient's success in facing post-stroke urinary incontinence: the patient's perspective Cover

Experience of the patient's success in facing post-stroke urinary incontinence: the patient's perspective

Open Access
|Sep 2021

Figures & Tables

Thematic analysis_

ThemaSub-themaCategoryThema descriptionNumber of informants mentioning this theme (%)
1. Provided information to get to know and understand post-stroke UIInformation on physical condition during post-stroke UIPreliminary information on the occurrence of UI– Could not urinate as usual since a stroke6 (75)
– Could not urinate in the bathroom since a stroke6 (75)
– Urinated in pants / clothing since a stroke4 (50)
– Urinated in a sarong since a stroke3 (38)
– Urinated on a mattress since a stroke3 (38)
– Urinated in a bottle since a stroke, especially at night1 (13)
Unable to resist urinating– Feel like urinating but couldn’t hold it3 (38)
– Didn’t feel urinating3 (38)
– Urinated before reaching the bathroom5 (63)
– If standing up, the urine comes out2 (25)
– Pants, clothes, and sarong were often wet from urine3 (38)
Urine odor– Clothes smelt urine4 (50)
– The bedroom smelled of urine3 (38)
Sleep disturbed– Rarely took a nap5 (63)
– Couldn’t sleep because of urination2 (25)
– Woke up 1–4 times at night due to urination5 (63)
Information on psychosocial conditions during post-stroke UIAnxious feelings– Worried out of the house because of wet pants4 (50)
– Worry that urine will suddenly come out3 (38)
Feeling of not confident– Inferior3 (38)
– Embarrassed to pee in pants4 (50)
– Feel bad to go out the house4 (50)
Feeling helpless– Burdening the family6 (75)
– Like a child / baby4 (50)
– Not active in the environment / social activities3 (38)
– Can’t help the family make a living5 (63)

2. Did the ways to overcome post-stroke UIDid not use pads/diapers– Didn’t use pads because it was uncomfortable8 (100)
– Did not use pads because of irritated groin2 (25)
Tried to pee in the toilet– Tried walking slowly to the bathroom to pee5 (63)
– Walked to the bathroom using the tools (cane, wheelchair)6 (75)
– Holding on to a piece of wood that was glued to the wall when walked to the bathroom1 (13)
Hold back urinate– Stopped briefly walking to hold urination5 (63)
– Pressing on both thighs3 (38)
Distract when holding urinate– Divert attention from urinating while dhikr and pray4 (50)
– Thought about what to do if healed3 (38)
Did not limit the portion of drinking– Drank as usual6 (75)
– Did not limit drinking6 (75)
Conducted health checks on health workers– Control to a neurology / physiotherapy clinic regularly3 (38)
– Control to a neurology / physiotherapy clinic irregularly4 (50)
Environmental modification– Made a simple toilet in the bedroom1 (13)
Urinating in a nearby bathroom– Urinated in a nearby bathroom4 (50)
– Urinated in the bathroom that there was in the bedroom1 (13)

3. Conducted self-control and stay motivatedPositive thoughtsPositive thoughts– All must be faced3 (38)
– There were still many people who stroke worse4 (50)
– Must keep the spirit3 (38)
– Take advantage of time and opportunity4 (50)
– Tried to fight disease3 (38)
– Must be diligent in practicing and controlling3 (38)
– Must be able to walk4 (50)
Removed the burden of UI's mind– Just lived this disease3 (38)
– Illness should not be considered a burden3 (38)
– Did not want to think another things, just thought how to get well5 (63)
– If it didn’t hurt, it was not possible to urinate like this2 (25)
Drew close to GodPrayed– Asked God for healing8 (100)
– Dhikr4 (50)
– Asked forgiveness from God4 (50)
Read the bible– Reciting Al-Qur’an6 (75)
Surrendered to God's decision– Sincere5 (63)
– Leave it to God4 (50)
Run the command of god– Prayer4 (50)
Control of emotionsBe grateful– Grateful given the opportunity2 (25)
– Grateful given a long life3 (38)
– Thankful that things were better4 (50)
– Grateful there were still caring3 (38)
Be patient– Patiently in faced disease4 (50)
– Patiently in faced the words of people who are not well to be heard2 (25)
Hold back emotions– Not easily offended4 (50)
– Not easy to get angry2 (25)
BeliefsBeliefs in healing– Beliefs that it can be cured5 (63)
– Optimistic can recover3 (38)
Spiritual belief in interpreting UI post-stroke– These were all temptation from god4 (50)
– This was as a sin remover3 (38)

4. Performed daily activities independently according to abilityPerformed activities independently according to ability– Tried to do daily activities themselves8 (100)
– Bathing, dressing, and eating by him/herself7 (86)
– Tried to pee by self in the bathroom6 (75)
Performed activities according to ability– Did light activities as much as possible (such as sweeping the floor)5 (63)
– Did according to ability5 (63)

5. Family support and peer's attentionFamily support– Husband / wife and child gave support4 (50)
– The family gives encouragement, help care, and usher for6 (75)
control to the hospital4 (50)
– The family provided walking aids1 (13)
– The family made a simple toilet in the room
Peer's attention– Visited by a friend5 (63)
– Friends gave encouragement3 (38)

Informant characteristics_

Informant numberAge (years)Education backgroundMarital statusJobGenderMedical diagnosis
In156High schoolDivorcedRetiredMaleNHS, hemiparese dextra
In265High schoolDivorcedHousewifeFemaleNHS, hemiparese dextra
In335High schoolMarriedHousewifeFemaleNHS, hemiparese sinistra
In457High schoolMarriedHousewifeFemaleNHS, hemiparese dextra
In561High schoolSingleGardenerFemaleNHS, hemiparese sinistra
In651High schoolMarriedEntrepreneurMaleNHS, hemiparese dextra
In765High schoolDivorceRetiredMaleNHS, hemiparese dextra
In861High schoolMarriedRetiredFemaleNHS, hemiparese dextra
DOI: https://doi.org/10.2478/fon-2021-0030 | Journal eISSN: 2544-8994 | Journal ISSN: 2097-5368
Language: English
Page range: 291 - 301
Submitted on: Nov 21, 2020
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Accepted on: Dec 24, 2020
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Published on: Sep 21, 2021
In partnership with: Paradigm Publishing Services
Publication frequency: 4 issues per year

© 2021 Heltty Heltty, Ratna Sitorus, Evi Martha, Nury Nusdwinuringtyas, published by Shanxi Medical Periodical Press
This work is licensed under the Creative Commons Attribution 4.0 License.