References
- 1. Agamben, Giorgio. Homo Sacer: Sovereign Power and Bare Life. Stanford: Stanford University Press, 1995.
- 2. Andorno, Roberto, and Stefania Negri. “Regulating advance directives at the Council of Europe.” Queen Mary studies in international law (2012): 73–85 // doi.org/10.5167/UZH-68937.10.1163/9789004223585_004
- 3. Andorno, Roberto, David M. Shaw, and Bernice Elger. “Protecting prisoners’ autonomy with advance directives: ethical dilemmas and policy issues.” Medicine, health care and philosophy 18.1 (2015): 33–39.10.1007/s11019-014-9571-z
- 4. Andorno, Roberto. “Human Dignity and Human Rights” (2021) // https://www.academia.edu/8973976/Human_Dignity_and_Human_Rights.
- 5. Astromskė, Kristina, et al. “Sunkiomis ir nepagydomomis ligomis sergančių asmenų orumo apsaugos reikalavimas – tarptautinės ir nacionalinės teisės normos bei praktiniai jų taikymo aspektai.” Law Review 23, No. 1 (2021): 3–21 // https://doi.org/10.7220/2029-4239.23.1.10.7220/2029-4239.23.1
- 6. Barnes, Sarah, et al. “Enhancing patient-professional communication about end-of-life issues in life-limiting conditions: a critical review of the literature.” Journal of pain and symptom management 44.6 (2012): 866–879.10.1016/j.jpainsymman.2011.11.009
- 7. Billings, Andrew J. “The need for safeguards in advance care planning.” Journal of general internal medicine 27.5 (2012): 595–600.10.1007/s11606-011-1976-2
- 8. Brown, Samuel M. “Whose Advance Directives Are They, after All?” The Lancet Respiratory Medicine 5, No. 6 (June 2017): 464–66 // https://doi.org/10.1016/S2213-2600(17)30176-5.10.1016/S2213-2600(17)30176-5
- 9. Butkevičienė, Rūta, et al. “Being Heard: A Qualitative Study of Lithuanian Health Care Professionals’ Perceptions of Dignity at the End-of-Life.” Medicina 57.12 (2021) // doi.org/10.3390/medicina57121318.10.3390/medicina57121318
- 10. Delgado, Janet. “Re-thinking relational autonomy: Challenging the triumph of autonomy through vulnerability.” Bioethics Update 5.1 (2019): 50–65.10.1016/j.bioet.2018.12.001
- 11. Drahos, Peter, Martin Krygier. “Regulation, Institutions and Networks”: 1–22. In: Peter Drahos, ed. Regulatory theory: foundations and applications. Acton: ANU Press, 2017 // http://hdl.handle.net/1814/50511.10.22459/RT.02.2017.01
- 12. Fetherstonhaugh, Deirdre, et al. “Decision-making on behalf of people living with dementia: how do surrogate decision-makers decide?” Journal of Medical Ethics 43.1 (2017): 35–40.10.1136/medethics-2015-103301
- 13. Foucault, Michel. The History of Sexuality. London: Penguin, 1990.
- 14. Fritch, Jenna, et al. “Making decisions for hospitalized older adults: ethical factors considered by family surrogates.” The Journal of clinical ethics 24.2 (2013): 125–134.10.1086/JCE201324205
- 15. Guide on the decision-making process regarding medical treatment in end-of-life situations. Council of Europe, May 2014.
- 16. Hemati, Zeinab, et al. “Dying with dignity: a concept analysis.” Journal of clinical nursing 25.9-10 (2016): 1218–1228 // https://doi.org/10.1111/jocn.13143.10.1111/jocn.13143
- 17. Horn, Ruth. “‘Why Should I Question a Patient’s Wish?’ A Comparative Study on Physicians’ Perspectives on Their Duties to Respect Advance Directives.” European Journal of Health Law 24.5 (2017): 523–540.10.1163/15718093-12341437
- 18. Houben, Carmen H., et al. “Efficacy of advance care planning: a systematic review and meta-analysis.” Journal of the American Medical Directors Association 15.7 (2014): 477–489.10.1016/j.jamda.2014.01.008
- 19. Izumi, Shigeko, et al. “Defining end-of-life care from perspectives of nursing ethics.” Nursing ethics 19.5 (2012): 608–618.10.1177/0969733011436205
- 20. Jonsen, Albert R., Mark Siegler, and William J. Winslade. Clinical Ethics: A Practical Approach to Ethical Decisionsin Clinical Medicine. 8th ed. NY: McGraw-Hill, 2015.
- 21. Kudukytė-Gasperė, Renata, Danguolė Jankauskienė, and Kęstutis Štaras. “Assessment of nursing and social policy changes in Centro out-patient clinics.” Sveikatos Politika ir Valdymas (Health Policy and Management) 1.4 (2012): 127–146.
- 22. Kuhl, David, Matthew B. Stanbrook, and Paul C. Hébert. “What people want at the end of life.” CMAJ 182 (16) (November 2010): 1707 // doi.org/10.1503/cmaj.101201.10.1503/cmaj.101201
- 23. Lunder, Urška, Branka Červ, and Hana Kodba-Čeh. “Impact of advance care planning on end-of-life management.” Current opinion in supportive and palliative care 11.4 (2017): 293–298 // doi.org/10.1097/SPC.0000000000000306.10.1097/SPC.0000000000000306
- 24. Miller, David Gibbes, Rebecca Dresser, and Scott YH Kim. “Advance euthanasia directives: a controversial case and its ethical implications.” Journal of medical ethics 45.2 (2019): 84–89 // http://dx.doi.org/10.1136/medethics-2017-104644.10.1136/medethics-2017-104644
- 25. Moisă, Stefana, et al. “Advance directives in Romania and Lithuania.” Studia Universitatis Babes-Bolyai, Philosophia 64.1 (2019): 89–98.10.24193/subbphil.2019.1.05
- 26. Moore, K. J., E. L. Sampson, N. Kupeli, and N. Davies. “Supporting families in end-of-life care and bereavement in the COVID-19 era.” International psychogeriatrics 32(10) (2020): 1245-1248 // DOI:10.1017/S1041610220000745.10.1017/S1041610220000745
- 27. Morrison, R.Sean. “Advance directives/care planning: clear, simple, and wrong.” Journal of Palliative Medicine 23.7 (2020): 878–879.10.1089/jpm.2020.0272
- 28. Neuhäuser, Christian. “The Right to a Dignified Life On the Relation of Respect, Human Rights, and Justice”: 13–32. In: The Human Right to a Dignified Existence in an International Context. Nomos Verlagsgesellschaft mbH & Co. KG, 2019.10.5771/9783845299297-13
- 29. Peicius, Eimantas, Aurelija Blazeviciene, and Raimondas Kaminskas. “Are advance directives helpful for good end of life decision making: a cross sectional survey of health professionals.” BMC medical ethics 18.1 (2017): 1–7 // DOI:10.1186/s12910-017-0197-6.10.1186/s12910-017-0197-6
- 30. Rabow, Michael W., Joshua M. Hauser, and Jocelia Adams. “Supporting family caregivers at the end of life: They don’t know what they don’t know.” JAMA 291.4 (2004): 483–491 // DOI:10.1001/jama.291.4.483.10.1001/jama.291.4.483
- 31. Republic of Lithuania Law on the Establishment of Death of a Human Being, and on Critical Conditions. 25 March 1997, No. VIII-157.
- 32. Republic of Lithuania Law on the Rights of Patients and Compensation for the Damage to Their Health. 3 October 1996, No. I-1562.
- 33. Republic of Lithuania Minister of Health Order on the Establishment of the Standards of Resuscitation. 31 August 2011, No. V-822.
- 34. Resolution 1859 concerning “Protecting human rights and dignity by taking into account previously expressed wishes of patients”. Council of Europe, Parliamentary Assembly (25 January 2012) // http://assembly.coe.int/Main.asp?link=/Documents/AdoptedText/ta12/ERES1859.htm.
- 35. Simon, A. “Historical Review of Advance Directives”: 3–16. In: Peter Lack, Nikola Biller-Andorno, and Susanne Brauer, eds. Advance Directives. Vol. 54 (Dordrecht: Springer Netherlands, 2014) // https://doi.org/10.1007/978-94-007-7377-6_1.10.1007/978-94-007-7377-6_1
- 36. Singer, Peter A., Gerald Robertson, and David J. Roy. “Bioethics for clinicians: 6. Advance care planning.” CMAJ: Canadian Medical Association Journal 155.12 (1996): 1689–1692.
- 37. Sulmasy, Daniel P., and Lois Snyder. “Substituted interests and best judgments: an integrated model of surrogate decision making.” JAMA 304.17 (2010): 1946–1947 // doi:10.1001/jama.2010.1595.10.1001/jama.2010.1595
- 38. Vergallo, Gianluca Montanari. “Advance healthcare directives: binding or informational value?” Cambridge Quarterly of Healthcare Ethics 29.1 (2020): 98–109.10.1017/S0963180119000823
- 39. Winter, Laraine. “Patient values and preferences for end-of-life treatments: are values better predictors than a living will?” Journal of palliative medicine 16.4 (2013): 362–368 // https://doi.org/10.1089/jpm.2012.030310.1089/jpm.2012.0303
- 40. WMA. “The World Medical Association Statement on Advance Directives (‘Living Wills’).” By the WMA General Assembly, Helsinki (2003) // https://www.wma.net/policies-post/wma-statement-on-advance-directives-living-wills/
- 41. Wolf, Susan M., Nancy Berlinger, and Bruce Jennings. “Forty years of work on end-of-life care – from patients’ rights to systemic reform.” N Engl J Med (2015): 678–682 // https://doi.org/10.1056/NEJMms1410321.10.1056/NEJMms1410321
- 42. Zivkovic, Tanya. “Forecasting and Foreclosing Futures: The Temporal Dissonance of Advance Care Directives.” Social Science & Medicine 215 (2018): 16–22 // https://doi.org/10.1016/j.socscimed.2018.08.035.10.1016/j.socscimed.2018.08.035